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Sleep Apnoea Forum Bringing Help + Support to the Patient

Cathy Smith
  • Female
  • Murrieta, CA
  • United States
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Cathy Smith's Friends

  • Elianna Halsey
  • Carolyn Tipping
  • Joanne Hollett
  • Kath Hope

Cathy Smith's Discussions

Frozen Sleepless
10 Replies

Back to square one.  Haven't worn my mask in over a month.  Had a couple of nights where I woke up feeling entire body was paralyzed & felt like my mask was smothering me.  Trying to get nerve…Continue

Started this discussion. Last reply by RockRpsgt Jan 23, 2012.

My Quest to Overcome Mask Leaks
8 Replies

 I just returned from my sleep doctor and have great news.  My AHIs have improved from 88 prior to treatment to 1.4 with my BiPap (Central Apnea).  What's is really interesting is that my personality…Continue

Tags: Mirage, FX, ResMed, Lift, Leaks

Started this discussion. Last reply by Cathy Smith Oct 6, 2011.

 

Cathy Smith's Page

Profile Information

Treatment Being Used, if any?
ASV
If Machine Being Used, What Make or Model?
Respironics Bipap Auto SV
If Mask Being Used, What Type or Name?
ResMed MirageFX

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Comment Wall (3 comments)

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At 19:47 on September 4, 2011, Joanne Hollett said…
I know what you mean I'm also a side sleeper and have the same problem with the leaking mask, try yawning with it on or twitching your nose (like Samantha from Bewitched years ago used to do); I find it helps me, might help you too... also a good tip to try, lie down when you put the mask on to go to sleep - your face changes shape when you lie down and sometimes the mask loses it's seal because of this.  Keep on trying though - it really IS worth it! x
At 10:03 on September 2, 2011, Joanne Hollett said…
No lucky her!  She's a great comfort though and I wouldnt be without her now!  Wishing you good luck with your new mask, I know you haven't been impressed so far and I'm glad that my sucess has given you the confidence to have another go - I hope I've helped a little and I'm sure this forum will help a lot - it certainly helped me. Lots of useful information and support on here and Kath has been just brilliant! I wouldn't be without my CPAP now, I've left it off a couple of nights and have really noticed the difference the next day - it's my new best friend next to you and Honey!  Best of luck Sis, happy sleeping zzzzzzzzzzzzzz
At 22:15 on September 1, 2011, Kath Hope said…

Welcome to our forum Cathy, and hope you find it helpful on here.  Look forward to interacting with you.

Best Wishes + Good Sleep!

Kath

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
38 minutes ago
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
23 hours ago
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
23 hours ago
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
yesterday
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
yesterday
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Tuesday
5 Comments
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
6 Comments
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
1 Comment
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
Welcome Them!
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
0 Comments
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
0 Comments
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

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