"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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Joanne Hollett
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Joanne Hollett's Discussions
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36 Replies
Hello everyone,I thought I would share a recent experience with you all in the hope that it will be of help to some of you. I have just completed my first 8 weeks of therapy using the CPAP and I…Continue
Started this discussion. Last reply by Kath Hope Sep 19, 2011.
New lease of life
7 Replies
Well what can I say? One week into treatment I already feel like a "new" person. For me the relief was immediate and the benefits I have gained through getting my life back, far outweigh the minor…Continue
Started this discussion. Last reply by Joanne Hollett Sep 3, 2011.
Joanne Hollett's Page
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- ResMed S9 Escape CPAP machine.
- If Mask Being Used, What Type or Name?
- ResMed Mirage Micro nasal mask
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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.....I can fully understand how you're feeling with living alone, and sounds like a great plan going to stay with your family. I can promise you that you won't suffocate though :) Trying a full face mask might be the best way forward initially so that it doesn't matter whether you're breathing through your nose, mouth or both. All sleep clinics are different, but see if yours will let you bring home a full face mask home, as well as a nasal one. Tonight when you have more time to have a good look around the forum, you will probably find much more help too from others who've posted help and advice.
So pleased you've found us, and speak soon.
Best Wishes
Kath
Hi again Joanne, and so glad you've found us. Just to know that you have other people on hand on this forum to help and support you is a real bonus that I wish I'd had at the beginning. If you feel like introducing yourself properly to the others, this link would be a good place to do it http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike?id=6381638%3ATopic%3A206&page=1#comments
Have a look on my website too, and you'll see my own personal story there at this link
http://www.hope2sleep.co.uk/page/my-story but unlike you, I didn't suspect that I had sleep apnoea.
Some people are very lucky in that they adapt really quickly to CPAP, but I can assure you that most of us aren't so lucky and have to work at it in the early days. However, we are definitely the lucky ones, in that we've been diagnosed, bearing in mind what other conditions sleep apnoea can lead to if left untreated.
Regarding the full face mask, that's definitely a 'must' if you're aware that you breathe through your mouth, like me. Your best bet would be to practise wearing the mask with and without the machine on whilst distracting yourself with watching tv., reading a book or listening to your favourite music. Try not to panic and just relax into your breathing, and keep in mind that the air from the CPAP is actually keeping you safe in your sleep, rather than an enemy trying to take over LOL.
As for the masks, again some people are lucky in finding a suitable one straight away, whereas people like me have to try practically everyone that's ever been manufactured LOL.
I wish you all the best in these early days and should out for any help you need.
Kath x
Welcome to the Forum Joanne, and I hope you find your time on here to be beneficial to you!
Kind regards
Kath Hope