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Joanne Hollett
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Joanne Hollett's Discussions
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36 Replies
Hello everyone,I thought I would share a recent experience with you all in the hope that it will be of help to some of you. I have just completed my first 8 weeks of therapy using the CPAP and I…Continue
Started this discussion. Last reply by Kath Hope Sep 19, 2011.
New lease of life
7 Replies
Well what can I say? One week into treatment I already feel like a "new" person. For me the relief was immediate and the benefits I have gained through getting my life back, far outweigh the minor…Continue
Started this discussion. Last reply by Joanne Hollett Sep 3, 2011.
Joanne Hollett's Page
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- ResMed S9 Escape CPAP machine.
- If Mask Being Used, What Type or Name?
- ResMed Mirage Micro nasal mask
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Latest Activity
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
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.....I can fully understand how you're feeling with living alone, and sounds like a great plan going to stay with your family. I can promise you that you won't suffocate though :) Trying a full face mask might be the best way forward initially so that it doesn't matter whether you're breathing through your nose, mouth or both. All sleep clinics are different, but see if yours will let you bring home a full face mask home, as well as a nasal one. Tonight when you have more time to have a good look around the forum, you will probably find much more help too from others who've posted help and advice.
So pleased you've found us, and speak soon.
Best Wishes
Kath
Hi again Joanne, and so glad you've found us. Just to know that you have other people on hand on this forum to help and support you is a real bonus that I wish I'd had at the beginning. If you feel like introducing yourself properly to the others, this link would be a good place to do it http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike?id=6381638%3ATopic%3A206&page=1#comments
Have a look on my website too, and you'll see my own personal story there at this link
http://www.hope2sleep.co.uk/page/my-story but unlike you, I didn't suspect that I had sleep apnoea.
Some people are very lucky in that they adapt really quickly to CPAP, but I can assure you that most of us aren't so lucky and have to work at it in the early days. However, we are definitely the lucky ones, in that we've been diagnosed, bearing in mind what other conditions sleep apnoea can lead to if left untreated.
Regarding the full face mask, that's definitely a 'must' if you're aware that you breathe through your mouth, like me. Your best bet would be to practise wearing the mask with and without the machine on whilst distracting yourself with watching tv., reading a book or listening to your favourite music. Try not to panic and just relax into your breathing, and keep in mind that the air from the CPAP is actually keeping you safe in your sleep, rather than an enemy trying to take over LOL.
As for the masks, again some people are lucky in finding a suitable one straight away, whereas people like me have to try practically everyone that's ever been manufactured LOL.
I wish you all the best in these early days and should out for any help you need.
Kath x
Welcome to the Forum Joanne, and I hope you find your time on here to be beneficial to you!
Kind regards
Kath Hope