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Sleep Apnoea Forum Bringing Help + Support to the Patient

Joanne Hollett
  • LIVERPOOL, Merseyside
  • United Kingdom
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Joanne Hollett's Discussions

Vaseline

I have just read this month's newsletter regarding the use of vaseline.  I too was given this advice from the Sleep Clinic.  Fortunately I had already found Kath and had purchased a tube of CPAP…Continue

Started Nov 27, 2012

If in any doubt - ASK!
36 Replies

Hello everyone,I thought I would share a recent experience with you all in the hope that it will be of help  to some of you.  I have just completed my first 8 weeks of therapy using the CPAP and I…Continue

Started this discussion. Last reply by Kath Hope Sep 19, 2011.

New lease of life
7 Replies

Well what can I say? One week into treatment I already feel like a "new" person.  For me the relief was immediate and the benefits I have gained through getting my life back, far outweigh the minor…Continue

Started this discussion. Last reply by Joanne Hollett Sep 3, 2011.

 

Joanne Hollett's Page

Profile Information

Treatment Being Used, if any?
CPAP
If Machine Being Used, What Make or Model?
ResMed S9 Escape CPAP machine.
If Mask Being Used, What Type or Name?
ResMed Mirage Micro nasal mask

Comment Wall (8 comments)

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At 22:30 on September 13, 2011, Cathy Smith said…
Don't you gag when you open your mouth to yawn?
At 23:35 on September 1, 2011, Kath Hope said…
Hi Joanne.  Just read the comment you've left for Cathy (and thanks for the lovely compliment you've added about me.....my head's swelled :-D  )  The only thing I've noticed is that it says you've left the comment for yourself rather than Cathy so I hope she can see it.  Do you two know each other?
At 22:50 on September 1, 2011, Joanne Hollett said…
No lucky her!  She's a great comfort though and I wouldnt be without her now!  Wishing you good luck with your new mask, I know you haven't been impressed so far and I'm glad that my sucess has given you the confidence to have another go - I hope I've helped a little and I'm sure this forum will help a lot - it certainly helped me. Lots of useful information and support on here and Kath has been just brilliant! I wouldn't be without my CPAP now, I've left it off a couple of nights and have really noticed the difference the next day - it's my new best friend next to you and Honey!  Best of luck Sis, happy sleeping zzzzzzzzzzzzzz
At 22:20 on September 1, 2011, Cathy Smith said…
Hiya Sis, well it doesn't look like Honey needs a mask!
At 14:53 on June 17, 2011, Kath Hope said…
Oh, another thing I meant to say, is that a lot of people find their diabetes and high blood pressure improves once they're being treated properly, so look forward to hearing good news from you as time goes on....
At 14:52 on June 17, 2011, Kath Hope said…

.....I can fully understand how you're feeling with living alone, and sounds like a great plan going to stay with your family.  I can promise you that you won't suffocate though :)  Trying a full face mask might be the best way forward initially so that it doesn't matter whether you're breathing through your nose, mouth or both.  All sleep clinics are different, but see if yours will let you bring home a full face mask home, as well as a nasal one.  Tonight when you have more time to have a good look around the forum, you will probably find much more help too from others who've posted help and advice.

So pleased you've found us, and speak soon.

Best Wishes

Kath

At 14:21 on June 17, 2011, Kath Hope said…

Hi again Joanne, and so glad you've found us.  Just to know that you have other people on hand on this forum to help and support you is a real bonus that I wish I'd had at the beginning.  If you feel like introducing yourself properly to the others, this link would be a good place to do it http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike?id=6381638%3ATopic%3A206&page=1#comments


Have a look on my website too, and you'll see my own personal story there at this link 

http://www.hope2sleep.co.uk/page/my-story but unlike you, I didn't suspect that I had sleep apnoea.

 

Some people are very lucky in that they adapt really quickly to CPAP, but I can assure you that most of us aren't so lucky and have to work at it in the early days.  However, we are definitely the lucky ones, in that we've been diagnosed, bearing in mind what other conditions sleep apnoea can lead to if left untreated.

 

Regarding the full face mask, that's definitely a 'must' if you're aware that you breathe through your mouth, like me.  Your best bet would be to practise wearing the mask with and without the machine on whilst distracting yourself with watching tv., reading a book or listening to your favourite music.  Try not to panic and just relax into your breathing, and keep in mind that the air from the CPAP is actually keeping you safe in your sleep, rather than an enemy trying to take over LOL.

 

As for the masks, again some people are lucky in finding a suitable one straight away, whereas people like me have to try practically everyone that's ever been manufactured LOL.

 

I wish you all the best in these early days and should out for any help you need.

 

Kath x

At 13:11 on June 17, 2011, Kath Hope said…

Welcome to the Forum Joanne, and I hope you find your time on here to be beneficial to you!

Kind regards

Kath Hope

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Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

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