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Deb Purcell
  • Female
  • Qld
  • Australia
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Profile Information

Treatment Being Used, if any?
CPAP
If Machine Being Used, What Make or Model?
Fisher & Paykel HC 221
If Mask Being Used, What Type or Name?
Resmed nasal

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Comment Wall (8 comments)

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At 0:37 on June 18, 2012, Kath Hope said…

Terry's right about the Hose Lift, and is our biggest seller to Australia.  I would have thought one of the CPAP distributors over there would be stocking them by now.  There is a very good CPAP Moisture Cream that can be used WITH the masks, as it won't damage them like 'normal' moisturisers do.  My sleep clinic calls it the 'magic cream.'  There's also the CPAP Nasal Cushion Pads if the problem is on the bridge of your nose.

5 hours usage is good in the early days, and as your body gets used to it, people normally find they can tolerate the equipment longer in time. 

At 5:24 on June 17, 2012, Terry Vella said…
Deb, it does take time to get used to wearing the mask all night, I've had mine for a bit over a year and still some night I just find I put it off without knowing. I have not got to the stage where I can't sleep without mine, it is another part of my body lol. CPAP also doesn't help you sleep. it helps you breathe or breathes for you and therefore the flow on should be better sleep. I say to everyone it's a marathon not a sprint. Where are you getting the red marks? on the bridge of your nose? If so, a couple of this I always suggest to new users, Use Mask Liners, You can get a 6 pack of Remzzz's either from where you get your mask and machine and then if they help you can make your own and have your hose coming from above your head, either over a bedhead or you can buy a hose lift for about $25 or you could get someone to make you one. Having your hose coming from above your head stops the mask being pulled down or getting tangle and helps with leaks. Your mask could be too tight which causes the marks, if you do the other two things you may be able to loosen the mask a little, let us know how you go.
At 2:22 on June 17, 2012, Deb Purcell said…

Hi Lisa

Thank you for getting back to me..That is good news then, that it is normal to only have 5 hours sleep, I guess I was hoping for a miracle. and finally sleep through...I just cannot bring myself to put the mask back on at 3am it feels as though I am about to put a blanket over my face, at least when I go to bed at 10.30 ish I am worn out and usually only toss and turn for a short while, but at 3 in the morning I try and I toss and turn and just end up taking it off..I am only on a low setting 5.5 so there is no need for a ramp, even though there is one on my machine...

I also wake up with a red nose, is there a cream or anything else that I can use to prevent that..

I do have a humidifier and I have it on a low setting as I experience rainout if I turn it up any higher..

Thanks for your input...it has been very helpful

Deb 

At 0:53 on June 17, 2012, Lisa said…

Hi Deb, welcome to the forum. If you are managing to get 4-5 hours sleep with your mask on then you are tolerating your mask pretty well. You are doing much better than I did when I started.

I've used CPAP and APAP for quite a few years now, but it did take me a long time to adjust to wearing a mask and feeling comfortable with it. When you wake up and go to put your mask on is the suffocating feeling because you feel like you are getting too much air, not enough air or perhaps not enough humidity?

I can remember in the past having a suffocating feeling when I was using a fixed pressure machine because it felt like I was getting too much air blowing at me. A lot of machines have a ramp feature that can be set to bring up the pressure in stages.

I think I saw on your page that you are using an auto adjusting machine. Has it been set at a fixed pressure or is it set to auto adjust? If it is set to auto adjust is the pressure it starts at quite low? Does it feel like you are not getting enough air? The settings can be adjusted so I would check in with  your sleep specialist.

Also are you using a humidifier? I was in Australia earlier this year and really appreciated that I was breathing in cool, moist air through my humidifier. I know it is your winter just now, but it is still a lot warmer than our summer!

Wishing you good sleeps, Lisa.

At 23:36 on June 16, 2012, Deb Purcell said…

Hi Terry..Thank You...I look forward to hearing everyones hints and clues... at the moment  I still only have 4-5 hours sleep..then  most times I  do not put the Mask back on...I feel like I am gong to suffocate at 3 in the morning if I put the Mask back on, I have been using the Mask now for 6 months...it that normal???

At 8:20 on June 16, 2012, Terry Vella said…
Wwelcome Deb, I'm in Melbourne, please ask any questions you have, Terry.
At 7:37 on June 16, 2012, Kath Hope said…

Well, there's plenty of people on here Deb :)  Feel free to start any new discussions for any help you need.

Kath

At 23:41 on June 15, 2012, Kath Hope said…

Welcome to the forum Deb, and hope you find it benefits you.

Best Wishes and Good Sleep!

Kath

 
 
 

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