"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
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Elizabeth Howard
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Elizabeth Howard's Discussions
BREATHING PROBLEMS WITH VENTILATOR
6 Replies
I use a nippy 3+ ventilator as I have scoliosis. I also use oxygen, 1 litre. I am 48 years old. A few weeks ago I started with a cold, was given nothing for it by another Dr in a different surgery, I…Continue
Started this discussion. Last reply by Elizabeth Howard Dec 14, 2014.
NIPPY AND OXYGEN
1 Reply
Not sure if this came out on my original post, as no record of it. I am 45 years old and have scoliosis with respiratory failure. I have had 3 operations for scoliosis, I was told when I was very…Continue
Started this discussion. Last reply by Kath Hope Nov 28, 2011.
Elizabeth Howard's Page
Profile Information
- Treatment Being Used, if any?
- Other
- If Machine Being Used, What Make or Model?
- Nippy ventilator and oxygen
- If Mask Being Used, What Type or Name?
- Full face mask for nippy 3+ and nasal cranula for oxygen
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Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
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One last though Elizabeth . I have no caffine after 5pm (unbless socializing). Instead I drink camomile tea. This approach has definately helped me.
I really am going now !
Phil
HI Last comment and I will go away. Honest.
My consultant at Papworth says that sleep A is rarely an entity is its own right i.e. there are often conditions running along side it.
I have read dozens of books. The best is by my consultan Dr Schneerson, which you can get from the British Library. A heavy going medical book, most of which I do not understand, but the most informative by far. He has three hundred publications.
Phil Earl
Hi again
Also, I bought a belt with inflatable bags in the back to stop me sleeping on my back when I am somewhere where I cannot use CPAP. I also bought a sleep apnea pillow from Resmed to help reduce air leaks and a tempur pillow to keep my neck aligned.
I will leave you in peace now. The last thing you want is these sort of emails on a Sunday, but I know how confusing it can all be.
Phil
Hi Elizabeth.
I have a Remsatar M series contant pressure and from what I have read would not want a non constant pressure machine. I have tried three Resmed masks and prefer the full face mask to nasal mask as it has less side effects to deal with. My top tips. Buy a CMF50, so you can change diet/ lifestile/ pressure settings to see what gives you the best results. Print your results off for comparisons, noting weight, if stressed, what you eat and when etc. Buy a hose lift from Kath. Makes a massive difference in trying to sleep and reduces some air leaks as the hose does not drag over the bed. Hospital checks are to far apart. Use 'OUCH' sainsbury's microporous tape if your mask rubs your nose. Better than anything else I have tried, including special hospital plasters and comes off easily. The CPAP spray, wipes and face cream hope to sleep sell work well. Go to bed and get up same times. Buy a daylight alarm clock.
Hope this helps. Anything else you want to know please ask.
Good luck
Phil
Suffolk
Hi Elizabeth,
I actualy live in Gosfield which is near suffolk.
Where do you live in suffolk?
Regards Joe
Hi Elizabeth and nice that you've joined us on here, especially as you use the Nippy Ventilator, as hopefully you'll be a good source of help to others on the same treatment. Hope you'll find the forum to be beneficial for yourself too :)
Best Wishes
Kath