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Elizabeth Howard
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  • UK
  • United Kingdom
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  • Philip
  • Marion@As I Live and Breathe
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Elizabeth Howard's Discussions

BREATHING PROBLEMS WITH VENTILATOR
6 Replies

I use a nippy 3+ ventilator as I have scoliosis. I also use oxygen, 1 litre. I am 48 years old. A few weeks ago I started with a cold, was given nothing for it by another Dr in a different surgery, I…Continue

Started this discussion. Last reply by Elizabeth Howard Dec 14, 2014.

NIPPY AND OXYGEN
1 Reply

Not sure if this came out on my original post, as no record of it. I am 45 years old and have scoliosis with respiratory failure.  I have had 3 operations for scoliosis, I was told when I was very…Continue

Started this discussion. Last reply by Kath Hope Nov 28, 2011.

 

Elizabeth Howard's Page

Profile Information

Treatment Being Used, if any?
Other
If Machine Being Used, What Make or Model?
Nippy ventilator and oxygen
If Mask Being Used, What Type or Name?
Full face mask for nippy 3+ and nasal cranula for oxygen

Comment Wall (6 comments)

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At 15:28 on November 27, 2011, Philip said…

One last though Elizabeth . I have no caffine after 5pm (unbless socializing). Instead I drink camomile tea. This approach has definately helped me.

I really am going now !

Phil

At 11:26 on November 27, 2011, Philip said…

HI Last comment and I will go away. Honest.

My consultant at Papworth says that sleep A is rarely an entity is its own right i.e. there are often conditions running along side it.

I have read dozens of books. The best is by my consultan Dr Schneerson, which you can get from the British Library. A heavy going medical book, most of which I do not understand, but the most informative by far. He has three hundred publications.

Phil Earl

At 10:34 on November 27, 2011, Philip said…

Hi again

Also, I bought a belt with inflatable bags in the back to stop me sleeping on my back when I am somewhere where I cannot use CPAP. I also bought a sleep apnea pillow from Resmed to help reduce air leaks and a tempur pillow to keep my neck aligned.

I will leave you in peace now. The last thing you want is these sort of emails on a Sunday, but I know how confusing it can all be.

Phil

At 10:24 on November 27, 2011, Philip said…

Hi Elizabeth.

I have a Remsatar M series contant pressure and from what I have read would not want a non constant pressure machine. I have tried three Resmed masks and prefer the full face mask to nasal mask as it has less side effects to deal with. My top tips. Buy a CMF50, so you can change diet/ lifestile/ pressure settings to see what gives you the best results. Print your results off for comparisons, noting weight, if stressed, what you eat and when etc. Buy a hose lift from Kath. Makes a massive difference in trying to sleep and reduces some air leaks as the hose does not drag over the bed. Hospital checks are to far apart. Use 'OUCH' sainsbury's microporous tape if your mask rubs your nose. Better than anything else I have tried, including special hospital plasters and comes off easily. The CPAP spray, wipes and face cream hope to sleep sell work well. Go to bed and get up same times. Buy a daylight alarm clock.

Hope this helps. Anything else you want to know please ask.

Good luck

Phil

Suffolk

At 9:26 on November 27, 2011, Joe barnes said…

Hi Elizabeth,

I actualy live in Gosfield which is near suffolk.

Where do you live in suffolk?

 

Regards Joe

At 0:53 on November 27, 2011, Kath Hope said…

Hi Elizabeth and nice that you've joined us on here, especially as you use the Nippy Ventilator, as hopefully you'll be a good source of help to others on the same treatment.  Hope you'll find the forum to be beneficial for yourself too :)

Best Wishes

Kath

 
 
 

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Decline in hearing

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