"Hi. No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask
I notice cpap.com still appear to be selling the Quattro FX. I have imported stuff from…"
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BREATHING PROBLEMS WITH VENTILATOR
6 Replies
I use a nippy 3+ ventilator as I have scoliosis. I also use oxygen, 1 litre. I am 48 years old. A few weeks ago I started with a cold, was given nothing for it by another Dr in a different surgery, I…Continue
Started this discussion. Last reply by Elizabeth Howard Dec 14, 2014.
NIPPY AND OXYGEN
1 Reply
Not sure if this came out on my original post, as no record of it. I am 45 years old and have scoliosis with respiratory failure. I have had 3 operations for scoliosis, I was told when I was very…Continue
Started this discussion. Last reply by Kath Hope Nov 28, 2011.
Elizabeth Howard's Page
Profile Information
- Treatment Being Used, if any?
- Other
- If Machine Being Used, What Make or Model?
- Nippy ventilator and oxygen
- If Mask Being Used, What Type or Name?
- Full face mask for nippy 3+ and nasal cranula for oxygen
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Latest Activity
Resmed Airfit F20 Woes
Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
"Hi
All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this.
www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
noisy humidifier normal?
Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up and I have to give up and switch off for the night.See More
Dentists in Hull that know about Mewing ?
I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
Nasal valve collapse
Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
F20 AirFit small marking bridge of nose
Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?
I'll try again and I'll also discuss with the clinic whether an APAP…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
"This is NOT a recommendation
http://www.youtube.com/watch?v=VNUWhd2UgQM"
Air Sense 10 - changing pressure settings
I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
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One last though Elizabeth . I have no caffine after 5pm (unbless socializing). Instead I drink camomile tea. This approach has definately helped me.
I really am going now !
Phil
HI Last comment and I will go away. Honest.
My consultant at Papworth says that sleep A is rarely an entity is its own right i.e. there are often conditions running along side it.
I have read dozens of books. The best is by my consultan Dr Schneerson, which you can get from the British Library. A heavy going medical book, most of which I do not understand, but the most informative by far. He has three hundred publications.
Phil Earl
Hi again
Also, I bought a belt with inflatable bags in the back to stop me sleeping on my back when I am somewhere where I cannot use CPAP. I also bought a sleep apnea pillow from Resmed to help reduce air leaks and a tempur pillow to keep my neck aligned.
I will leave you in peace now. The last thing you want is these sort of emails on a Sunday, but I know how confusing it can all be.
Phil
Hi Elizabeth.
I have a Remsatar M series contant pressure and from what I have read would not want a non constant pressure machine. I have tried three Resmed masks and prefer the full face mask to nasal mask as it has less side effects to deal with. My top tips. Buy a CMF50, so you can change diet/ lifestile/ pressure settings to see what gives you the best results. Print your results off for comparisons, noting weight, if stressed, what you eat and when etc. Buy a hose lift from Kath. Makes a massive difference in trying to sleep and reduces some air leaks as the hose does not drag over the bed. Hospital checks are to far apart. Use 'OUCH' sainsbury's microporous tape if your mask rubs your nose. Better than anything else I have tried, including special hospital plasters and comes off easily. The CPAP spray, wipes and face cream hope to sleep sell work well. Go to bed and get up same times. Buy a daylight alarm clock.
Hope this helps. Anything else you want to know please ask.
Good luck
Phil
Suffolk
Hi Elizabeth,
I actualy live in Gosfield which is near suffolk.
Where do you live in suffolk?
Regards Joe
Hi Elizabeth and nice that you've joined us on here, especially as you use the Nippy Ventilator, as hopefully you'll be a good source of help to others on the same treatment. Hope you'll find the forum to be beneficial for yourself too :)
Best Wishes
Kath