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John Wilkinson
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  • Wakefield
  • United Kingdom
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John Wilkinson's Discussions

I've 'hit a wall' can any body help me?
4 Replies

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44…Continue

Started this discussion. Last reply by John Wilkinson May 17.

DVLA and Medical Review Driving Licences
3 Replies

Hi,I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for…Continue

Started this discussion. Last reply by John Wilkinson Jan 31.

Dreamstation humidifier heated hose and simplus 'mask type' settings
7 Replies

Hi Everyone,I have recently purchased and started to use a heated hose with my dream station humidifier as my unheated hose used to 'bubble and gurgle' with condensation and also wet my face, even on…Continue

Started this discussion. Last reply by N Feb 18.

My first review
5 Replies

After only 15 days on my cpap machine I have recently had my first review. I was diagnosed with severe OSA, I had an AHI of 42. My partner timed some of my apnoeas at 28. seconds.My AHI is now down…Continue

Started this discussion. Last reply by Sleep2snore Jan 21.

 

John Wilkinson's Page

Latest Activity

John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
May 17
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
May 17
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
May 17
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
May 16
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much less physically and mentally tired. At my last visit to the Sleep Clinic, about 3 weeks ago, my max pressure was reduced from 20cm to 16cm as this was the average highest pressure recorded on my data. This also reduced the instances of my mask…See More
May 16
N replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, I had the same problem until I disvovered that the setting for the heating was “adaptive” (works following a piece of software that switches the humidifier on/off during the night), as opposed to “fixed”. I changed…"
Feb 18
grumpycamel replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, It may help if you switch on the preheat function on the DreamStation main menu before you go to bed. It warms up the humidifier for 30 minutes and switches itself off to get things warmed up. I tend to have the hose and humidifier on 5…"
Feb 13
John Wilkinson replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
"Thank you for your advice. I contacted my insurance company (LV), with trepidation, and informed them that I now held a 3 year medical review licence and that I had moderate OSA and they were ok with that. They said if the DVLA said I was fit…"
Jan 31
John Wilkinson replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
Jan 31
Sleep2snore replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"It is very much a setting of your own choice, I also found the lower settings did very littel. You just have to play around and adjust things slowly until you find a sweet spot. I am not going to comment where my mind has wondered to now…"
Jan 26
Sleep2snore replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
"You need to get at least 5 hours under your belt every night, plus you really need to get it down to 5 or less events per night. It is not easy to get it down right away for some people, but keep working at it and if you are struggling contact your…"
Jan 25
John Wilkinson posted a discussion

DVLA and Medical Review Driving Licences

Hi,I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for my second review.  On the advice of my sleep clinic I submitted the S1 form to the DVLA and after they referred to my consultant I now have to submit my current licence and have it replaced with a medical review licence.Obviously I am going to refer this to my insurance company. Does anyone know if…See More
Jan 25
John Wilkinson replied to George's discussion Sleep Apnea and DVLA
"Hi, I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for my second review. Personally I feel to have…"
Jan 25
John Wilkinson replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi Sleep to snore, Thanks once again for your support. I have turned the adaptive setting off and defaulted to fixed. The sleep clinic also recommended this. I went to sleep with the hose on 2 and humidifier on 3. When I woke up about 4 hours later…"
Jan 23
Sleep2snore replied to John Wilkinson's discussion My first review
"Hi John, I have had over 20 yrs of it so far, it just takes a while for your brain to accept that it needs to use a machine. We are not used to air at pressure being blown into us, so stick with it and in no time you will not be able to sleep…"
Jan 21
Sleep2snore replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"I am not sure about the dream station, but if the humidifier has an AUTO setting, put it on manual. I just looked up the manual and it has an adaptive setting, turn this setting off and work the temperature settings manually, the adaptive settings…"
Jan 21

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Philips DreamStation
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
F&P simplus nose and mouth mask

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Latest Activity

Edam replied to Edam's discussion Double inhaling
"I have been using   Remstar and S9 APAP,s for about 9 years now and my COPD was diagnosed at the same time. A consultant wanted to stop my Steroid inhaler completely as my COPD was not bad enough to require it but the nurse just…"
Tuesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"It is always good to have a dealer that you can trust and will sort out problems when they arise. It is always nice to have someone that has the time to sort things out with a customer and take time to do it rather than some salesman that don't…"
Tuesday
Sleep2snore replied to Edam's discussion Double inhaling
"Well the inhaler makes the lungs open up and if anything the dryness from a CPAP will dry them up and shut them down again. I am no doctor, but if you needed an inhaler before CPAP you would certainly need one after you start. Why did they cut you…"
Tuesday
Sleep2snore replied to Edam's discussion Twisted strap ouchhh!!
"What kind of strap is it, is it a cloth one or a silicone one? If it is a cloth one you could sew a strip along it to give it a bit more rigidity/stiffness. If it is a plastic one or a silicone one you could sew a bit of fabric round it to make it…"
Tuesday
Edam replied to Edam's discussion Twisted strap ouchhh!!
"I twisted the forehead strap again last night and OUCH!! Can anybody suggest a full face mask without the forehead strap. I cant use the Resmed Airfit masks as I seem to be exactly between sizes "
Tuesday
Edam replied to Edam's discussion Double inhaling
"Using the  increased steroid dosage inhaler, 200 /6 rather than 100/6, has reduced my 95% pressures by about 5 cm. Doing some detective work I have found that I was put onto a lower dosage inhaler in May last year. I think that is when the…"
Tuesday
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
May 17
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
May 17
Edam replied to Edam's discussion Double inhaling
"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having. I am now having to use twice the dose of steriods just to keep the APAP happy If I can ever get in touch with my hospital I…"
May 17
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Thanks Chris and we certainly are doing our homework Sleep2Snore.  Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
May 17
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
May 17
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
May 16
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much…See More
May 16
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date. You could try to see if they will do it on a sale or return basis, them you could keep one or two.  However, I think most are ordering…"
May 15
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"Hi, I see from medistrom website they are looking for dealers, is it worth considering Kath"
May 15
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"I wish the ResMed was 12Vdc, it would make life a lot easier. I wonder why they need 24Vdc anyway? My APAP is not mine to and see why it has to be 24Vdc! I don't think the clinic might be to impressed if I opened it for a look. "
May 14
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
May 14
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
May 13
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, at the time amazon were selling the pilot for £285 and the co pilot for £137, gone up a lot since then chris"
May 13
Edam replied to Edam's discussion Double inhaling
"I have read that if you have Asthma a CPAP is better than a APAP  When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse ..... This is exactly whats…"
May 13

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