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John Wilkinson
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  • Wakefield
  • United Kingdom
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John Wilkinson's Discussions

I've 'hit a wall' can any body help me?
4 Replies

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44…Continue

Started this discussion. Last reply by John Wilkinson May 17.

DVLA and Medical Review Driving Licences
3 Replies

Hi,I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for…Continue

Started this discussion. Last reply by John Wilkinson Jan 31.

Dreamstation humidifier heated hose and simplus 'mask type' settings
7 Replies

Hi Everyone,I have recently purchased and started to use a heated hose with my dream station humidifier as my unheated hose used to 'bubble and gurgle' with condensation and also wet my face, even on…Continue

Started this discussion. Last reply by N Feb 18.

My first review
5 Replies

After only 15 days on my cpap machine I have recently had my first review. I was diagnosed with severe OSA, I had an AHI of 42. My partner timed some of my apnoeas at 28. seconds.My AHI is now down…Continue

Started this discussion. Last reply by Sleep2snore Jan 21.

 

John Wilkinson's Page

Latest Activity

John Wilkinson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I have been using a Cpap machine for 7 months. I too struggled with a full face mask (Simplus as issued by sleep clinic) but I changed from a large to medium size mask and it is a lot more comfortable and, because it fits better, I…"
Jul 9
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
May 17
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
May 17
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
May 17
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
May 16
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much less physically and mentally tired. At my last visit to the Sleep Clinic, about 3 weeks ago, my max pressure was reduced from 20cm to 16cm as this was the average highest pressure recorded on my data. This also reduced the instances of my mask…See More
May 16
N replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, I had the same problem until I disvovered that the setting for the heating was “adaptive” (works following a piece of software that switches the humidifier on/off during the night), as opposed to “fixed”. I changed…"
Feb 18
grumpycamel replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, It may help if you switch on the preheat function on the DreamStation main menu before you go to bed. It warms up the humidifier for 30 minutes and switches itself off to get things warmed up. I tend to have the hose and humidifier on 5…"
Feb 13
John Wilkinson replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
"Thank you for your advice. I contacted my insurance company (LV), with trepidation, and informed them that I now held a 3 year medical review licence and that I had moderate OSA and they were ok with that. They said if the DVLA said I was fit…"
Jan 31
John Wilkinson replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
Jan 31
Sleep2snore replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"It is very much a setting of your own choice, I also found the lower settings did very littel. You just have to play around and adjust things slowly until you find a sweet spot. I am not going to comment where my mind has wondered to now…"
Jan 26
Sleep2snore replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
"You need to get at least 5 hours under your belt every night, plus you really need to get it down to 5 or less events per night. It is not easy to get it down right away for some people, but keep working at it and if you are struggling contact your…"
Jan 25
John Wilkinson posted a discussion

DVLA and Medical Review Driving Licences

Hi,I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for my second review.  On the advice of my sleep clinic I submitted the S1 form to the DVLA and after they referred to my consultant I now have to submit my current licence and have it replaced with a medical review licence.Obviously I am going to refer this to my insurance company. Does anyone know if…See More
Jan 25
John Wilkinson replied to George's discussion Sleep Apnea and DVLA
"Hi, I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for my second review. Personally I feel to have…"
Jan 25
John Wilkinson replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi Sleep to snore, Thanks once again for your support. I have turned the adaptive setting off and defaulted to fixed. The sleep clinic also recommended this. I went to sleep with the hose on 2 and humidifier on 3. When I woke up about 4 hours later…"
Jan 23
Sleep2snore replied to John Wilkinson's discussion My first review
"Hi John, I have had over 20 yrs of it so far, it just takes a while for your brain to accept that it needs to use a machine. We are not used to air at pressure being blown into us, so stick with it and in no time you will not be able to sleep…"
Jan 21

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Philips DreamStation
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
F&P simplus nose and mouth mask

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Latest Activity

Rod J Brunton posted a discussion

NEEDED: CPAP nasal pillow style mask & headgear - FX, DREAMWEAR or any similar style

Does anyone have a nasal pillow style mask & headgear they don't like or don't use? Mine vanished somewhere between Vancouver & Glasgow & I didn't notice till I got to Kirky.  I have a spare one at home, but that's not helping me while I…See More
Wednesday
Rod J Brunton is now a member of Hope2SleepGuide
Wednesday
Andy Falconer updated their profile
Tuesday
Andy Falconer replied to Andy Falconer's discussion First night with CPAP
"Hi Kath, I'm hoping the next few nights will see me get my AHI down further, but i'm also keen not to put too much pressure on the situation. I have to say i'm very impressed with the Hope2Sleep service so far, with regular updates…"
Tuesday
Kath Hope replied to Andy Falconer's discussion First night with CPAP
"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'  Your other goods will be…"
Tuesday
Andy Falconer posted a discussion

First night with CPAP

So last night was my first with my new CPAP machine (a Philips DreamStation with an Amara style mask), and got on surprisingly well. It took me a while to fall asleep and woke briefly a handful of times in the night but I would say it was very…See More
Tuesday
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi I was a mouth breather.  I also slept flat on my stomach.  I now sleep on my side, and with a nose-only mask rapidly learned to keep my trap shut at night :)  The airway through my nose has significantly improved, which makes…"
Sunday
Andy Falconer replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thank you both for the welcome and the advice! I've read a lot about the humidifiers, so I suspect this will be one of the first things I will purchase. I'm a mouth breather, so I'm hoping the hospital will provide a full mask when I…"
Saturday
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Andy Sorry you've had a rough ride.  How times change.  My sleep study 10 years ago was just a finger pulse thing, and a camera.  I had 86 events per hour.  I guess we're all different, but the first night with my…"
Dec 8
Iain Noble replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Andy, Sorry you have had so little support from the NHS. We have an excellent sleep clinic here in Cleveland. You won't have to surrender your driving licence but you will have to tell them if you are diagnosed with sleep apnea. Once you are…"
Dec 8
Andy Falconer replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi everyone, I'm Andy and I am currently in the process of being diagnosed with OSA (I suspect), with an appointment at the Royal Stoke Uni Hospital to be fitted for a CPAP machine this coming Monday.   So far it has taken 12 months from…"
Dec 7
Andy Falconer is now a member of Hope2SleepGuide
Dec 7
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3
Sleep2snore replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Hi Judy, Try drinking a glass if water before going to bed. Dehydration can play a part in the mornings."
Dec 2
Amanda Moore is now a member of Hope2SleepGuide
Nov 30
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Hi again Kath, Just found how I can see Clear airway/Obstructed airway. So sorry for the previous question. It appears I have approx 80% obstructed. Thanks for your time, best regards"
Nov 28
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Thanks for your answer Kath. The app I have is Philips Dreamapper . It tells me minimum/maximam/ 90% pressure, My AHI and mask fit, Hours usage. I cant see anything about obstructive or centrals. Is my app out of date, or my machine?"
Nov 28
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"I don't think those symptoms are specific to central sleep apnoea.  Your app should tell you if those apnoeas are obstructive or  centrals.  It sometimes says 'CA.'  Sometimes when people first wake it takes a…"
Nov 27
Judy Y posted a discussion

Could I have developed Central Sleep Apnoea ?

HiI was diagnosed with severe sleep apnoea Jan 2017 after hiring a device from Hope2sleep. Think I had this problem for around 10 years. I eventually got my cpap machine in August 2017. I have had a few ups and downs, and had my machine adjusted a…See More
Nov 26
Edam replied to Edam's discussion Double inhaling
"Im on Warfarin for life because of leg DVT,s and Warfarin would be stopped 5 days before the operation. This could leave me at risk of another DVT.. Also the last time my Warfarin was stopped I has to self inject Heparin so my belly turned into a…"
Nov 25

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