Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

paula jones
  • Female
  • England,Wigan
  • United Kingdom
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Sleep Apnoea Support Group..

Monday 3rd Dec..2.00pm till 4.00pm At St Benedicts Club,off market street ,Hindley,WN2 3AA...x xContinue

Started Nov 12, 2012

Nocturnal Epilepsy...Any one else have this,as well as severe OSA?
32 Replies

i knew it !!! always said there was somet not right, i knew i shouldnt still be tired with cpap..everyone was doin so brill, but not me,i go to Neurology Clinic 1st oct (thats an emergency…Continue

Tags: Nocturnal-Epilepsy

Started this discussion. Last reply by paula jones Nov 16, 2012.

Grrr My first cold and snotty nose,with the dreaded full nasal mask!! im having a Pity Party!!
2 Replies

Ohhhh i feel ill,,iv been dreading getting ill every since i got my equipment...only cause i read someones page and its all true!! it really is horrible....LOL..Ere's to a speedy recovery for me and…Continue

Tags: Flu, Virus, Cold

Started this discussion. Last reply by paula jones Nov 15, 2011.

Cleaning equipment!! and Distilled Water??
22 Replies

i got told at hospital just use warm water and a drop of washing up liquid,but iv heard white vinegar is good as well,is there like somet mega good and amazing out there?? wots everyone else do?? …Continue

Started this discussion. Last reply by diane lester Apr 23, 2013.

 

paula jones's Page

Profile Information

Treatment Being Used, if any?
CPAP
If Machine Being Used, What Make or Model?
Machine: PR System One REMstar Auto CPAP Machine with A-Flex
If Mask Being Used, What Type or Name?
Mirage Liberty™ Full Face CPAP Mask with Nasal Pillows including Headgear
PR System One Heated Humidifier

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Comment Wall (1 comment)

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At 21:14 on July 3, 2011, Kath Hope said…

Hi Paula and welcome to the forum.  Hope you find your time on here helpful to you, and look forward to your own posts.

Kind regards

Kath

 
 
 

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Latest Activity

Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
0 Comments
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
1 Comment
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
1 Comment
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
Welcome Them!
David McDade is now a member of Hope2SleepGuide
Jan 3
Welcome Them!
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
2 Comments
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Welcome Them!
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
1 Comment
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024

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