Lisa, I think I have said to Kath before that a Aussie winter day is like a English summer day LOL, only joking. The weather in Melbourne has really been nice, cool nights and mornings but sunny days. Good luck with the battery
Lisa, how was your trip back? Did you use your CPAP on the plane going back? You probably went back at the right time, it's starting to get cooler here but I like it that way I can sleep better.
thank you for your comments, i do indeed go to Ninewells. Just diagnosed last month, so only been the twice, i go back on 16th April, and will have questions written down this time lol
reading previous posts i gather your over in sunny australia, lucky you. i was over in brisbane for 6 weeks last year and loved every minute of it. saving up hard for another visit, but want to go business class, so probably wont be for 4 or 5 years, unless lottery comes up.
Lisa, glad to see you like Aus, my father in law is from Scotland so my wife is half and half, but he has been here about 50 years and hasn't been back. I've decided to give Sleep Disorders Australia a miss because they didn't get back to me and want to charge a membership fee and meeting fee. I get more out of this site and others for free. Thaks for telling me about daylight savings in NY, we change at the end of this month and will be back to 16 hours ahead of time, I think. I get lost, wht can't we all be on the same time lol, it would make things a lot easier. I have a couple of people at my work that work in Newcastle and commute to Sydney most days, I think it's about a 2 hour drive, anyway have a good weekend.
Lisa, Thanks for the info, I'm a member of sleep vantage as I have a Resmed CPAP and mask, it doesn't cost anything but to date I haven't got anything either. They are supposed to mail out info on new equipment etc. I listen to Dr Park every second week when his is on and yes sometimes I get the times wrong. It's actually good that it's 12.00 noon our time so I have lunch listening to him. Have a good weekend. Terry
Lisa, I finally got an Email through to Sleep Disorders Australia.
I'll wait for a reply, in Melbourne meetings are on the 3rd Thursday at night in the city.
Not sure if I'll go as it is difficult to park in the city.
I have given you the details for the NSW group.
They don't seem very organised.
SLEEP DISORDERS AUSTRALIA
ABN 98 075 427 459
NEW SOUTH WALES BRANCH
REGULAR INFORMATION SESSIONS for 2012 held monthly
Have you been recently diagnosed with OSA (obstructive sleep apnea) or had CPAP (Continuous Positive Airway Pressure) prescribed?
Do you want to know more about sleep apnea and its treatment?
If so, why not come along to an Education Session to learn much more about sleep apnea and its treatment.
These days are held on the first Saturday of each month. They are intended to complement the activities of the sleep clinic which you have attended.
These sessions are particularly useful to people who believe they may have sleep apnea, newly diagnosed sufferers, those
waiting for their second sleep study as well as those using CPAP for the first time, but all interested people are welcome.
These days start at 1pm and finish at 3pm.
Tea and coffee is supplied. Sessions are very interactive, questions are encouraged and all explanations are given in easily understandable language.
Topics:
• obstructive sleep apnea
• your sleep study
• treatment options
• questions and answers
Venue: Merrylands
Cost: $10.00
Partner free
Telephone: 02 9896 6102
(bookings are essential)
Lisa, I'm trying what you suggested re the message but still having problems. If your going back at the end of March you may not have time to see a Sleep Dr here. On the plane, thanks for the info, I'm not sure when we are going to the US. I have a very old dog (17 years) who has had a stroke and is half blind and half deaf and has a special diet. We can't leave him so will wait till he passes away before we go. Just planning but haven't booked anything.
Lisa, I am having trouble sending you this via messaging.
Lisa, how long are you in Australia for? If it's not long your probably not going to get into a sleep Dr. Also our health system is shocking, public takes a huge amount of time but is free and private is quicker but for sleep apnea you have to pay most of the costs yourself. I wasn't sure why you needed to see a Dr as well? If it's going to be a while and you go private, I can ring around and see if anyone can suggest a Dr in Sydney. I'm in Melbourne but my Dr may know someone good up there.
I was going to ask about the flight, I read that you used the CPAP on the plane, did you get any questions from the attendents or other passengers? I'll planning a trip to the US shortly and was wondering what others thought of it.
Sorry I have been on night duty so a little slow in answering your request. I have not doing well with this cpap for some reason and I think it may be the masks but still struggling with it. I will definately try to make the conference in Sept. I hope you are enjoying yourself in Australia :) wish it was me :). Will catch up with you when you get back.
Lisa, Nice to have you in Aus even if it is Sydney. I was probably being a bit slack when I said there are no support groups, I meant I hadn't really bither looking and my Dr didn't suggest any. I have look up Sleep Disorders Australia which says they have them but when I try to send them a message the Email crashes. I'll give them a call on Monday. Have a good weekend.
Hi Lisa. Pleased to have you back after your computer problems. I have a feeling you're going to be a valuable member to newbies to sleep apnoea who, hopefully, find us for support. Thanks for joining us :)
Hi Lisa and a warm welcome to the forum, where it's my 'hope' that folk will get answers to their own questions and share their experience with others. Above all, it's nice to chat with fellow sufferers, so enjoy your time on here.
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I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?
I'll try again and I'll also discuss with the clinic whether an APAP…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP. After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry. On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
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Good to know I'm not alone here! The idea for a local group sounds good.
Hi Lisa,
That might be a nice idea, and I had no idea there were others from Tayside! Let me know what the others think.
Tricia
Thank you Lisa,
I wondered why I didn't have the information everyone else seemed to be talking about. Hadn't thought about it being a basic model.
Hi Lisa,
thank you for your comments, i do indeed go to Ninewells. Just diagnosed last month, so only been the twice, i go back on 16th April, and will have questions written down this time lol
reading previous posts i gather your over in sunny australia, lucky you. i was over in brisbane for 6 weeks last year and loved every minute of it. saving up hard for another visit, but want to go business class, so probably wont be for 4 or 5 years, unless lottery comes up.
have a great time, speak soon
I'll wait for a reply, in Melbourne meetings are on the 3rd Thursday at night in the city.
Not sure if I'll go as it is difficult to park in the city.
I have given you the details for the NSW group.
They don't seem very organised.
SLEEP DISORDERS AUSTRALIA
ABN 98 075 427 459
NEW SOUTH WALES BRANCH
REGULAR INFORMATION SESSIONS for 2012 held monthly
Have you been recently diagnosed with OSA (obstructive sleep apnea) or had CPAP (Continuous Positive Airway Pressure) prescribed?
Do you want to know more about sleep apnea and its treatment?
If so, why not come along to an Education Session to learn much more about sleep apnea and its treatment.
These days are held on the first Saturday of each month. They are intended to complement the activities of the sleep clinic which you have attended.
These sessions are particularly useful to people who believe they may have sleep apnea, newly diagnosed sufferers, those
waiting for their second sleep study as well as those using CPAP for the first time, but all interested people are welcome.
These days start at 1pm and finish at 3pm.
Tea and coffee is supplied. Sessions are very interactive, questions are encouraged and all explanations are given in easily understandable language.
Topics:
• obstructive sleep apnea
• your sleep study
• treatment options
• questions and answers
Venue: Merrylands
Cost: $10.00
Partner free
Telephone: 02 9896 6102
(bookings are essential)
Lisa, how long are you in Australia for? If it's not long your probably not going to get into a sleep Dr. Also our health system is shocking, public takes a huge amount of time but is free and private is quicker but for sleep apnea you have to pay most of the costs yourself. I wasn't sure why you needed to see a Dr as well? If it's going to be a while and you go private, I can ring around and see if anyone can suggest a Dr in Sydney. I'm in Melbourne but my Dr may know someone good up there.
I was going to ask about the flight, I read that you used the CPAP on the plane, did you get any questions from the attendents or other passengers? I'll planning a trip to the US shortly and was wondering what others thought of it.
Hi LIsa,
Sorry I have been on night duty so a little slow in answering your request. I have not doing well with this cpap for some reason and I think it may be the masks but still struggling with it. I will definately try to make the conference in Sept. I hope you are enjoying yourself in Australia :) wish it was me :). Will catch up with you when you get back.
Isla x
Hi Lisa. Pleased to have you back after your computer problems. I have a feeling you're going to be a valuable member to newbies to sleep apnoea who, hopefully, find us for support. Thanks for joining us :)
Sleep Well!
Hi Lisa and a warm welcome to the forum, where it's my 'hope' that folk will get answers to their own questions and share their experience with others. Above all, it's nice to chat with fellow sufferers, so enjoy your time on here.
Kath
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