Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone.
Hi Kath, thanks for the comment about Marion and sorry to hear she's not well. I've added her as a friend and am waiting for her to accept. I'm not sure where I should copy/paste my comment to her though as it already appears to be there? I'm not familiar with the forum set-up yet - that's my excuse anyway! x
Interesting ... thanks Kath, I'll take a look. I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!). What I do hate is the weight and bulk of it. I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive. I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!
Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.
I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.
The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.
I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.
I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?
NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).
I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.
Thank you Kath it's nice to be here. I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it
Thank you so very much for reply especially on a Sunday when Im suree you must have better things to do!! I managed in between the torrential rain, to get in an hours walk with the dogs and theyve had a good grooming session today!!
I am so very sorry to hear of your losing your mum at such a young age. So terribly sad and I do feel for you but what a testament you are to her memory in what you are doing here! So many people don't know about this illness and lots of people just laugh at me when I tell them as they don't undertsnad how dangerous it can be.
I have been sitting here in floods of tears reading through all of this as I feel at last, as though maybe someone now can help? It's true, it is a very isolating experience and I have felt so alone in trying to cope with it and so ill all the time as nothing seems to have worked over the past 3 years. I so need to feel more positive and energised and maybe with your help I will.
Hi Kath. Thank you for your message. Yes I am the proud owner of 4 collies and a GSD x collie plus I sponsor a deaf and blind collie too. Love my dogs and have owned and worked collies in agility for 30 years!!
I was diagnosed with OSA 3 years ago. I tried the CPAP machine for over a year but found it wasn't helping and was in fact so uncomfortable and waking me up more than I was waking up without it. I am under Papworth Hospital but apart from getting me to try several different masks, none of which were any better (I sleep on my side and breathe through my mouth) they have been pretty unsympathtic to be honest! A year ago a nurse suggested I try a mandibular device and I tried this for a year. In principle I like the idea as the CPAP is just so awful for me. However I have been becoming more and more ill in that it really wasn't doing its job and half the time was falling out of my mouth and spending most of the night under my arm!!!! Papworth discharged me in January as I wasn't using my CPAP anymore and they said I was wasting their time!!
3 weeks ago I went back to the CPAP and have asked my doctor to refer me back to Papworth and I have tried to be a lot more patient and to change my mindset on this horrid thing but it leaks all the time, is noisy and wakes me up every hour, and, despite having the humidifier, I have such a dry cracked mouth all the time and my nose is so pinched and I wake up and go to work with great bug "tram lines" down my face - not very attractive! Plus I feel so blimin awful. Am normally a very upbeat person, have a lot of hobbies but nowadays I seem to feel so down, have no concentration and feel exhausted permanantly and fell asleep driving once!
I am hoping I may find out more inforomation and get some help as I am at the end of my tether now.
No sorry I'm using cpap at the moment but not getting on very well
I'm being fitted with a dental devise in November for mandular mouth guard in the hope that this will work very well just had enough now so tired
Thxs for your message , glad to be on board , so sad that you lost your mom at such an early age but one thing you can be sure of Kath is she will be very proud of what you have achieved with your website helping & assisting others as they cope with the problems encountered with sleep apnoea, keep up the good work & well done
Kath, thanks for the welcome, I'm glad to be here to get my daily OSA support "fix". SleepGuide is on the wane. We never see Mike anymore. I hope that when he lost weight he didn't need CPAP any longer. Am I right in thinking last month you had a two year anniversary? Good Work with the forum and your business.
The only pain is the filters need changing evert 18-21 days. The hospital are complaint as they send out only 3 at a time and want you to make them last 3 months. I'd I don't change them every 18-21 days the alarm keep going off much to our annoyance
Thank you for your kind comments my boy has aspergers and other disabilities so I speak on his behalf. He has mild to moderate communication problems but overall a happy pleasent young man .anyone know if there is anything I could use to clean the insides of the hose, can't use water as it doesn't dry
I am selling a virtually new ResMed Power Station II.It is a battery pack which I purchased directly from ResMed to use on a trek in Nepal when mains electricity was unavailable. It was used for only six nights and is virtually new.The battery pack…See More
"If you do buy one make sure you get a good one and ask if they will look after it if you do buy one.
Some clinics will supply filters and check it every year after the warranty is out. They might even repair and give you a loan machine. …"
"It is quite normal, some feel it interrupts sleep due to using the machine and mask, turning over can disturb you with the mask moving and leaks. Give it a month or two and you should start to feel a lot better. If not contact your Sleep…"
"It may be just responding a bit quicker or just suits you better.
It amazes me that anything so small can produce enough pressure to work in the first place.
I wouldn't worry about unless you start to feel it is not keeping you feeling…"
Thank you very much for your response. No I am not travelling. There is a significant difference in pressure in the two machines. That was the cause of my worry. Thank you again for allaying it.
"Hi Mathura and welcome to our forum. With good results like that it shouldn't cause a concern, as it could just be that the Z1 algorithm suits you better. Just like with masks suiting people better, so can machines, but mostly…"
I have been using RESMED in auto mode. The pressure used to settle around 11cmWG with AHI between 2 and 4. I have recently switched over BREAS Z1 in auto mode. The pressure has now changed to around 5.5 cmWG with AHI remaining below 5. What would be…See More
"Great to hear you're having an in-patient sleep study Savannah. You may not need to investigate UARS either, because if a simple study (probably pulse oximetry) has picked up an issue that warrants an in-patient study, then it's…"
"Sometimes the tiredness can feel worse Ruth if you're having some interrupted sleep when new to CPAP. I definitely felt like that. Although I'd been diagnosed with severe sleep apnoea I slept through it all, whereas when I was…"
"Dear Sleep2snore, thanks for your reply and apologies for my late response.
In the case that UARS is detected, may I enquire what you mean regarding a more complex machine? Are you referring to BiPAP machines?
"Dear Kath, many thanks for your reply and the link to the page; apologise my late response.
I have recently had a simple sleep study done at home, and am awaiting a more comprehensive inpatient sleep study. I will ask whether Esophageal…"