"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
Welcome to our Forum - Feel Free to Introduce Yourself Here.
Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers.
Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation. Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.
Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...
Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum. Don’t be shy in posting and sharing, as we’re all in this together and to help each other.
Best Wishes for good sleep!
Kath
Views: 12973
Replies to This Discussion
-
Permalink Reply by Jonathan on
-
Hi
It may be worth a chat with your sleep clinic to see if they have a different mask you could try. And Kath's mask liners may help (I hear, I've never had a problem). Overtightening your mask can be a cause of leaks too.
Jonathan.
Linda Lyon said:Hi Kath and members,
It's great to have somewhere to vent
I started on cpap a few months ago. It's taking me a while to get used to it.
Anyone else find it hard to breathe normally when first putting the mask on each night? Using ramp has helped.
My main problems are air blowing into my eyes...resulting in eye bags :o( I'm also conscious of the air blowing onto my Husband...keep expecting him to say he has a stiff neck!
Suction marks on the bridge of my nose.
I have the will to persevere but find I am sleeping more in the daytime than pre cpap?
-
-
Hi Linda
I got a useful tip from the nurse at the hospital who provide my CPAP. Buy a roll of the stick on towelling tape that tennis players use for their racket handles. About 3/4 inch wide. Cut a piece about 2.5 inches long and stick it across the top of the rubber which goes across the bridge of your nose. Stops the rubbing completely and you can change the tape daily of you want to (I do it every couple of days). The rolls of tape last for months.
Hope this helps
Regards
Diane
-
-
Iain,
We laugh at it to, I used to get a jab in the ribs for snoring, then it was for the tornado's. Having tried/looked at many different masks all except one had the vent "exhaust" blasting straight ahead. We found one that had the pipe connect at crown of the head, but even that had the vents at the front. Eventually this was our only solution, no matter how silly it looks, but then you can't look more silly than going to bed like your a member of 633 Squadron going on a mission :)
Iain Noble said:... i am afraid i laughed at the image of kevin sleeping with a tee shirt over his head! as if we didn't have enough stuff
-
-
I use a Respironics DreamWear mask which doesn't go near the bridge of my nose. Different masks suit different folk.
Diane Finlayson said:Hi Linda
I got a useful tip from the nurse at the hospital who provide my CPAP. Buy a roll of the stick on towelling tape that tennis players use for their racket handles. About 3/4 inch wide. Cut a piece about 2.5 inches long and stick it across the top of the rubber which goes across the bridge of your nose. Stops the rubbing completely and you can change the tape daily of you want to (I do it every couple of days). The rolls of tape last for months.
Hope this helps
Regards
Diane
-
-
Mine is a Phillips Amara View, that doesn't cross the the bridge of my nose either, Linda it would be worth you asking for alternates at your clinic next time you visit, although at mine that are not too keen on giving you too many to try out.
Jonathan said:I use a Respironics DreamWear mask which doesn't go near the bridge of my nose. Different masks suit different folk.
-
Permalink Reply by Linda Lyon on
-
Thanks folks :o)
Useful tips there.
Have to say my sleep apnoea dept in hospital have sent me 4 masks to try (and a chin strap ....more mirth lol)
Has anyone suffered with a sore tongue? GP gave me moisture gel. I only get the problem with nasal masks..oh and aeropagia with those too.
Yes the 'tornado' I was wondering if that occurs when we stop breathing?
I have literature from the hospital on panic attacks and am trying the 4 in 4 out breathing (seconds) Does help.
We shall soldier on!
-
-
The Tornado is a permanent presence, all the air pumped out from the machine has to go somewhere, I imagine there are peaks and toughs as we breathe, but it must be negligible as I can't feel the change on my hand. The other slight advantage is that I'm no longer awoken by thunder storms, I cant hear anything over my personal gale.
Linda Lyon said:Thanks folks :o)
Useful tips there.
Have to say my sleep apnoea dept in hospital have sent me 4 masks to try (and a chin strap ....more mirth lol)
Has anyone suffered with a sore tongue? GP gave me moisture gel. I only get the problem with nasal masks..oh and aeropagia with those too.
Yes the 'tornado' I was wondering if that occurs when we stop breathing?
I have literature from the hospital on panic attacks and am trying the 4 in 4 out breathing (seconds) Does help.
We shall soldier on!
-
-
After many (many!) years on CPAP, I can now open my mouth and even talk, whilst the CPAP is blowing air up my nose. I guess it's trained my airways.
-
Permalink Reply by Bill Thomson on
-
I can’t, even after more than 24 years of the therapy
Jonathan said:After many (many!) years on CPAP, I can now open my mouth and even talk, whilst the CPAP is blowing air up my nose. I guess it's trained my airways.
-
-
It's certainly a journey of ups and downs.
Early days for me...when I try to talk I sound unearthly!
-
-
Hi all my name is Mark and I'm after some advice please. I had a 2 night sleep study done with hope2sleep going back four years ago where my AHI's came back at 18.3 and 18.6. I then spoke to my doctor as recommended and asked for a sleep study to be done and was referred. Months later I took my sleep study from here and showed the consultant but he wasn't in the slightest bit interested in the study and dismissed it totally. I was given a finger oximeter to wear for the night where the results came back as normal and the next thing i know i was signed off. I argued my case with my doctor that surely i should have a proper study done after the results of the sleep study done from here and he agreed. Months down the line again I was given a Somno medics study for 1 night and to my dismay my AHI came back as 3 and normal so was signed off again. I then went and purchased the withings sleep analyzer mat which is clinically validated and for the first 3mths I was showing an average AHI of 23 which backed up the evidence from my first sleep study I had done here. So with the information I now have, my question is how can I get treated privately for this and purchase a machine, can I do it through the charity or will I need a NHS diagnosis? I was hoping to keep this short, sorry for that.
Cheers Mark.
-
Permalink Reply by Kath Hope on
-
Hi Mark
I've had a look at your previous pre-diagnostic from 4 years ago and due to the fact your ODI (oxygen desaturation index) wasn't particularly high (often people work very hard to maintain their oxygen levels during sleep) then the finger pulse oximeter wouldn't have diagnosed you and why it's not really classed as a sleep 'study.' Also sorry to hear ours was dismissed, as there are many sleep clinics who welcome them and the device we used to use 4 years ago was used in some of the sleep clinics. I can't explain why the Somnomedics sleep study showed such a low AHI though, as you did 2 nights on ours and both were consistent with moderate sleep apnoea. It could be that your sleep apnoea is positional though and that you slept on your back for ours, but perhaps not for the Somnomedics.
You would need a repeat sleep study after 4 years to see if anything has changed and the sleep studies we do now at the Hope2Sleep Charity are diagnostic ones, manually scored by a sleep consultant https://www.hope2sleep.co.uk/sleep-apnoea-home-screening-service.html
If this still shows sleep apnoea, the sleep consultant would approve CPAP to purchase yourself if you can't get treated in a sleep clinic, and the diagnostic equipment we use now will show which position you slept in and also has a microphone.
Hope this helps.
Mark O'Sullivan said:Hi all my name is Mark and I'm after some advice please. I had a 2 night sleep study done with hope2sleep going back four years ago where my AHI's came back at 18.3 and 18.6. I then spoke to my doctor as recommended and asked for a sleep study to be done and was referred. Months later I took my sleep study from here and showed the consultant but he wasn't in the slightest bit interested in the study and dismissed it totally. I was given a finger oximeter to wear for the night where the results came back as normal and the next thing i know i was signed off. I argued my case with my doctor that surely i should have a proper study done after the results of the sleep study done from here and he agreed. Months down the line again I was given a Somno medics study for 1 night and to my dismay my AHI came back as 3 and normal so was signed off again. I then went and purchased the withings sleep analyzer mat which is clinically validated and for the first 3mths I was showing an average AHI of 23 which backed up the evidence from my first sleep study I had done here. So with the information I now have, my question is how can I get treated privately for this and purchase a machine, can I do it through the charity or will I need a NHS diagnosis? I was hoping to keep this short, sorry for that.
Cheers Mark.
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
© 2024 Created by The SleepGuide Crew.
Powered by
