Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

The hospital swapped out my sleep cube for an Airsense 2 about a year ago.
Now the machine reports my sleep quality to them over the airwaves.
I've never been convinced that these reports are accurate because, even though the hospital staff are breezily confident about them, I still feel knackered.

I watched a you tubevideo just now about the flags that the machine uses to report an apnea. It seem like you can still have disturbed breathing, but the machine won't flag it as an apnea or hypoxia.

Early days on this, I've just started looking into it, but does this ring a bell?

Does anyone know how the reports from their machine compare with an independent device like an oxygen/heart rate monitor?

thanks

Views: 177

Reply to This

Replies to This Discussion

The hospitals see far more than we see on the app in their clinical software, and do bear in mind that it's the opinion of a Youtuber you must have seen, as sleep professionals worldwide have used their software for many years, and Resmed's software, along with the clinical software from other manufacturers, are very well respected and important to the sleep clinicians.

If you're not feeling good and your AHI is 5 or below then it may help to check your oxygen levels and you'll need an overnight recording pulse oximeter, such as Nonin 3150 (expensive) or Viatom etc (don't rely on a smart watch). You do have to bear in mind though that oxygen desaturations can also be from other causes, as well as apnoeas. It would be a good place to start though.

Also, if all seems to be going well with your CPAP therapy, there's other things that can cause daytime tiredness - some often common in sleep apnoea, so blood tests for thyroid, diabetes, iron, B12 and Vit D are all worth doing. Plus checking the side effects of any regular medication you take as lots of meds cause tiredness and some also cause disruptions to sleep. Oh and also make sure you're getting a good 7-9 hours sleep every night with your CPAP.

Hi Kath, I did get myself an O2 Ring, but it hid behind some furniture somewhere and won't come out. When I find it I can check what's going on. I read that, like you say, smart watches aren't that good so I went for dedicated kit with a high sample rate. I got the OSCAR software which breaks out a load of info from resmed SD cards
I agree you have to be a bit streetwise with what blokes on youtube say. I don't quite know what to make of it. It was this


regards,
John

The o2 ring is good if you can retrieve it 😂

Yes I've seen Nick's videos and he has a lot of great content, but it doesn't mean everything is 100% correct (same for us all as we just try our best with the knowledge we have). Oscar is very good and reports very similar to Resmed. Nick uses his own software which I've never used so can't comment, but millions of sleep professionals use Resmed's software and I'm sure any issues would have been picked up over the many years it's been used if it was unreliable.

As I said in the last comment, there can be so many reasons why remaining tiredness continues, and because we have a sleep disorder we tend to be quick to blame that. To complicate things even further, sometimes there can be hidden problems though that don't always show up on the CPAP results as it's not possible. As an example, my CPAP therapy was 100% spot on, but what wasn't realised is that I was retaining co2, which is more common in obesity which I aren't, but can also happen with over conditions like COPD, neuromuscular problems etc (my reason isn't know as I'm always a mystery lol). The only way of confirming co2 retention (also called hypercapnia or hypoventilation) is to have arterial blood gases (ABG) done.

I'd suggest (assuming your AHI is 5 or below and you're getting 7-9 hours sleep) getting your oxygen checked and also those blood tests done I mentioned, then if all come up fine, it's time to speak with your clinic for further investigation.

John said:

Hi Kath, I did get myself an O2 Ring, but it hid behind some furniture somewhere and won't come out. When I find it I can check what's going on. I read that, like you say, smart watches aren't that good so I went for dedicated kit with a high sample rate. I got the OSCAR software which breaks out a load of info from resmed SD cards
I agree you have to be a bit streetwise with what blokes on youtube say. I don't quite know what to make of it. It was this


regards,
John

Hi Kath, thanks for your great answer. I think even if the CPAP was perfect it's the other rigmarole interferes with sleep, for me anyway - oh the pipe's gurgling, oh didn't shave and have to tighten everything, oh the temperature changed and now the condensation on the mask is whistling, oh I didn't refill the tank enough etc etc - all those constant tweaks.
I don't know if other people fiddle constantly with the kit, maybe they find it easier to settle on one set up.

One thing I've found is my nose can't be relied upon to stay clear so it's a nasal mask one day, then wake up with it stuffed so back to a full face, then a pillow because it feels clear again and so on.

I found I may have nasal valve collapse, if I do the Cottle procedure the air flow is like day to night it feels so much better. One of those things you don't realise is abnormal because you've always had it. I hope I can find a GP who knows about it and can tell me what's what.

So I use a silicone nostril expander, "Brez", which makes things feel much better and can go under a mask, but I worry that any mask pressing even lightly on the bridge of the nose will close already half closed nostrils. I think when you're asleep things can move around and without knowing it the nice nasal flow gets shut off.

Nose breathing, I'm given to understand, is the best way and mouth breathing can have negative consequences.

I did address the whistling vents on the mask by rubbing a little oil on the inside, a fine smear of veg oil that I hoped wouldn't hurt the plastic. I figured if I put something hydrophobic on then water won't collect so easily. It seemed to mitigate the whistling somewhat.

I'd have thought having a design with fewer, bigger holes would give the same vent flow but without being blocked so easily with water drops and turning into a whistle.

I never heard of co2 retention I'll have to look that up.

Hope some of that is helpful to others.

thanks,

John

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service