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The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
PLEASE USE CPAP EVERYTIME YOU SLEEP
This is a very sad day, as I have learnt that a lovely young 36 year old fellow Sleep Apnoea Sufferer who I used to speak regularly with on Twitter passed away in the early hours of this morning. She was suffering from a stuffy nose and finding CPAP hard to use, so unfortunately left it off last night. Her devastated fiance has asked that I pass on this news to ensure existing sufferers keep safe and use their CPAP every night, and he wants this news passing on to help raise awareness of sleep apnoea to the undiagnosed.
Lisa was a lovely lady and did everything in her own power to raise sleep apnoea awareness. She did the same for arthritis, as her own 8 year old daughter was born with JIA (Junior Idiopathic Arthritis).
Rest In Peace Lisa x
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Replies to This Discussion
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Permalink Reply by Rosemary Kemp on
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How sad! This is such shocking news and my condolences go out to Lisa's family and friends. We need to listen to this message! Every night!!!
Rosemary
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That really is shocking news. My condolences to Lisa's fiance, daughter, family and friends.
People really need to learn more about this condition, it seems to be trivialised. We need to get the word out on just how devestating apnea can be.
Let me know if there is anything I can do from my bed. ( I am still bedbound)
Rest in peace Lisa.
Hugs to you Kath.
Faith xxx
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I've just taken a look at the masks etc on the Hope2sleep site in respose to this news. We need to do everything we can to make it easier to use the cpap therapy every single night of our lives.
Thank you Kath, for getting hold of all of this equipment for us to check out and buy. I'll be spending time over Christmas working out what I can try to make my cpap experience even more successful. Perhaps we need a reminder every so often that this is real - serious - not something we can just float along with and dismiss for even one night.
The occasions we fall asleep on the sofa or throw our masks off when we can't breathe easily need to become a thing of the past. Every little bit of help is welcome. Thank goodness you work so hard for all of us with sleep apnoea! Thank you. You are so appreciated. Rosemary (again).
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Permalink Reply by Kath Hope on
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I used to help Lisa when she came across problems, and I only wish she'd told me she had a stuffy nose as I would have still advised her to use it. No way am I trying to use this dreadfully sad case to promote products (and I know my friends of here with believe this), but the FitLife mask is the best one to use with stuffy noses as the air is circulated everywhere. Lisa's devastated fiance wants to know what he can do to help, but I've assured him he needs to look after himself and the children and rely on us to spread the news to help others.
Rosemary Kemp said:I've just taken a look at the masks etc on the Hope2sleep site in respose to this news. We need to do everything we can to make it easier to use the cpap therapy every single night of our lives.
Thank you Kath, for getting hold of all of this equipment for us to check out and buy. I'll be spending time over Christmas working out what I can try to make my cpap experience even more successful. Perhaps we need a reminder every so often that this is real - serious - not something we can just float along with and dismiss for even one night.
The occasions we fall asleep on the sofa or throw our masks off when we can't breathe easily need to become a thing of the past. Every little bit of help is welcome. Thank goodness you work so hard for all of us with sleep apnoea! Thank you. You are so appreciated. Rosemary (again).
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It puts things into perspective doesn't it Faith? Still sorry to hear you are bed-bound though and hope you'll soon feel better. Thanks for the offer, but her fiances wish is to just spread the news.
Faith Harper said:That really is shocking news. My condolences to Lisa's fiance, daughter, family and friends.
People really need to learn more about this condition, it seems to be trivialised. We need to get the word out on just how devestating apnea can be.
Let me know if there is anything I can do from my bed. ( I am still bedbound)
Rest in peace Lisa.
Hugs to you Kath.
Faith xxx
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I agree with everything you said Rosemary. Thank goodness Kath is here looking out for us all. I have only gone one night without using my mask and woke up with an atrocious headache, so won't repeat that again. But I must admit I sleep a lot in the day and don't wear it. I want to invest in a minimal contact mask then I can wear my glasses with it on. I always fall asleep reading.
My 13 yr old son has just read this as well and he is shocked and made me promise to always wear my mask.
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Such sad, sad news - my heart goes out to Lisa's family & Fiance.
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Being very new to all this, I am learning all the time. When issued with my machine I asked what to do if I got a cold and could not breathe using the machine. I was told a couple of nights off until I breathe easily again would be OK. This obviously is NOT the case!!
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I use my Kindle Ebook for reading with the masks on and set it to the largest font possible so I can just get away without needing my glasses. Have a look at the Blog posts on here as there's info about Magnetic Reading Glasses.
Faith Harper said:I agree with everything you said Rosemary. Thank goodness Kath is here looking out for us all. I have only gone one night without using my mask and woke up with an atrocious headache, so won't repeat that again. But I must admit I sleep a lot in the day and don't wear it. I want to invest in a minimal contact mask then I can wear my glasses with it on. I always fall asleep reading.
My 13 yr old son has just read this as well and he is shocked and made me promise to always wear my mask.
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Well, I for one would never risk a night without the mask no matter whether the medics told me I could :( Lisa always wore hers, apart from this one night with the stuffy nose, and due to this her breathing would have been more difficult than normal. I even wore mine immediately after 2 separate nose operations, which was painful. Just not worth the risk!
Margaret Ward said:Being very new to all this, I am learning all the time. When issued with my machine I asked what to do if I got a cold and could not breathe using the machine. I was told a couple of nights off until I breathe easily again would be OK. This obviously is NOT the case!!
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My thoughts go ut to Lisas fmily at this terrible time.I will start using my mask again tonight. I have had a bad chest infection for six weeks and was told by my doctor not to use the machine till my stuffly nose cleared. Perhaps Doctors too need more awareness of the problem?
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Well said Sally - they certainly do!
Sally Gould said:My thoughts go ut to Lisas fmily at this terrible time.I will start using my mask again tonight. I have had a bad chest infection for six weeks and was told by my doctor not to use the machine till my stuffly nose cleared. Perhaps Doctors too need more awareness of the problem?
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