"Hi. No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask
I notice cpap.com still appear to be selling the Quattro FX. I have imported stuff from…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
3 Year Mission to Raise Sleep Apnoea Awareness in the UK
This can only be good news for all the poor people who are struggling on, unaware their problem is connected with their sleep (or should I say lack of)! Meanwhile, we you are the lucky ones with the diagnosis need to keep on watching out for our families and friends. Our 'condition' is so much more common than people realize.
"The British Lung Foundation and Philips Respironics partner to raise awareness of Obstructive Sleep Apnoea
29 March 2011
The British Lung Foundation and Philips Respironics, leader in sleep therapy solutions, have partnered to create a three year programme that aims to raise public awareness and improve diagnosis of obstructive sleep apnoea (OSA).
In the UK it is estimated that over one million people may be suffering from OSA, with prevalence being higher in men and those that are overweight. To date only 10% of sufferers are aware of their condition and are being treated to alleviate their symptoms. Obstructive sleep apnoea is a disorder that is characterised by the airway collapsing (behind the tongue) during sleep, which stops breathing. This can result in snoring, laboured breathing, gasping and choking. The collapsing of the airway is followed by attempts to breathe leading to a fitful and restless night’s sleep. If untreated, it can contribute to the development of high blood pressure, diabetes, heart attacks and strokes.
The three year partnership between Philips Respironics and The British Lung Foundation will begin with a research programme to uncover issues and opportunities to improve the awareness of OSA and diagnosis channels and treatment for patients.
The research will form the backbone of discussions of the advisory panel who will lobby the findings onto the health agendas throughout the UK. This activity will be coupled with a communications programme where the latest educational materials about OSA will be developed for both healthcare providers and the public. The activity will culminate in pilot OSA testing events throughout the country.
Dame Helena Shovelton, Chief Executive, British Lung Foundation, said:
"Obstructive Sleep Apnoea (OSA) doesn't just affect your health; the interrupted sleep reduces your ability to work and leaves people at risk of accidents and in danger of falling asleep throughout the day. Many thousands of people suffer from this condition yet few people are diagnosed. The British Lung Foundation will be carrying out a range of activities over the next few years to raise awareness of OSA and the help that's on offer. We will also be gathering information about the patient pathway to drive improvements. We're delighted to be working in this area of health as it has been an ambition of ours for some time"
“OSA can be easily and effectively treated using a simple Continuous Positive Airway Press (CPAP) device, which can greatly improve the health and well-being of patient’s lives. However, sleep disorders do not always get the recognition they deserve as a major public health issue. In partnering with The British Lung Foundation, our aim is to show the serious side of sleep and help many undiagnosed suffers in the UK.” Comments Darren Umbers, Regional Director, Philips Respironics UK."
Views: 218
Replies to This Discussion
-
Permalink Reply by Jackie on
-
Thanks for the info Kath, it is about time the word was spread more.
Do you think they will be asking diagnosed osa sufferers for any information or trialling? I would certainly be interested in following just what they are achieving and how during the 3 years.
It would be fantastic if everyone knows more about it - who knows how many lives could be saved - even just one is worth it and considering that diagnosed sufferers like me have little knowledge of it and are given 'dumb' treatment, it could also be of benefit.
The medical world and certainly the NHS, need sleep apnoea highlighting and clinicians to be given more knowledge and appreciation of how serious it can be. Advice is so conflicting to sufferers within sleep clinics at times that it frightens me how bad it is in the general medical world.
If raising awareness could bring attention to the NHS Sleep Clinics, in the form of funding and training, this would benefit a lot of people.
If huge number of people are diagnosed and have to rely on the NHS sleep clinics I would think this will have a critical effect on people receiving and continuing their treatment this way.
Cynical me, knows that raising awareness will also benefit businesses and I have no objection to this, but not at the expense of good customer care.
I do not have the energy or will to keep on trolling everywhere for news and information to make a dent in my ignorance, so this forum is a fantastic way of feeling more up to date and gaining more knowledge and confidence - God bless for the internet and this forum, because without it I would be a shrivelled heap of depression in bed!
thank you Jacks xxx
-
Permalink Reply by Rosemary Kemp on
-
What an excellent scheme and thanks to Philips Respironics and the British Lung Foundation for carrying out this work for people like myself. Had my endocrinologist at Eastbourne DGH not noticed the fact that the sleep disorder questionnaire needed to be completed; rather than continuing to treat all of the separate symptoms as isolated conditions in need of treatment, I believe that I would now be dead or close to death. I am very lucky that I didn't have a heart attack or a stroke.
The cpap treatment which followed my diagnosis has led me to be able to shift over six stones in weight and be removed from the diabetic register (that is what my GP suggested last time I visited the surgery) as I am controlling the glucose so well with effective dieting (only possible once I started to sleep at night and own a body which now behaves more normally). I have also become euthyroid rather than hypothyroid and my blood pressure medication has been quartered. My BP and pulse are now in the normal range.
There are no more calls for a gastric band operation to save my life and my cholesterol readings are also close to normal. I survive (not enjoy as such) the gym and now use "profiles" such as "cross country" and "aerobics" on the treadmill and exercise bike and can actually walk after being on the cross trainer, without my knees collapsing.
I no longer need to walk backwards into the wind or use my inhaler. I can walk without my back hurting and I can move and climb the stairs on my feet rather than on all fours!
The reason I share this on the forum is that without the awareness of one particular specialist just over two years ago, I would not have such a good story to share. Recognising severe OSA has it made it possible for me to reverse my walk into an early grave. I totally applaud a project which aims to improve awareness of OSA and treat it.
Rosemary Kemp (Sussex)
-
-
what a fantastic intiative I think alot of health professionals including Ent consultants do not know enough about Apnea and I think any awareness increase is a great thing...... My husband was the brunt of our jokes for years regarding his snoring had I not had a baby diagnosed with OSA he would probably not be here ........my search for information and my own knowledge lead to him being treated with CPAP thank god for the WWW :)
-
Permalink Reply by Kath Hope on
-
The 1st Year's Report from the British Lung Foundation is now available to view, and makes interesting reading. It's available as a PDF if you click HERE
Also, our own Helen Potts is currently preparing for her Manchester Run to raise funds for this campaign. You can sponsor her via the Events page on the forum HERE
-
-
As part of the British Lung Foundation's 3 Year Campaign, which Resmed are now supporting too as well as Respironics, they have just released their new 10 Point Charter:-
The OSA Charter
The British Lung Foundation...
Believes that people with OSA and their families have a right to:
1. OSA screening, through primary care wherever possible;
2. a speedy and accurate diagnosis in a sleep clinic, wherever they live in the UK;
3. access to appropriate treatment and to a comprehensive specialist sleep service if needed, wherever they live in the UK;
4. appropriate information and ongoing support for the management of the condition, according to agreed national standards and provided by suitably qualified and trained staff; and
5. timely and relevant information on the implications of an OSA diagnosis for vigilance-critical job roles, and fast-tracking for diagnosis and treatment if people with OSA drive for a living.Calls on governments across the UK to:
6. make OSA a national priority;
7. increase awareness of the symptoms and dangers of, and issues that surround, OSA among medical professionals, employers, the general public and those at greatest risk;
8. ensure collection of comprehensive data to enable commissioners and service planners to provide effective services; and
9. encourage investment in research, including clinical trials, recognising the potential cost savings and improvements to quality of life that could be made.And encourages employers to:
10. arrange for all staff who are employed as drivers or in other vigilance-critical roles to be screened for OSA.
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
Resmed Airfit F20 Woes
Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
"Hi
All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this.
www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
noisy humidifier normal?
Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up and I have to give up and switch off for the night.See More
Dentists in Hull that know about Mewing ?
I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
Nasal valve collapse
Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
F20 AirFit small marking bridge of nose
Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?
I'll try again and I'll also discuss with the clinic whether an APAP…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
"This is NOT a recommendation
http://www.youtube.com/watch?v=VNUWhd2UgQM"
Air Sense 10 - changing pressure settings
I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
© 2024 Created by The SleepGuide Crew.
Powered by
