Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Over the last month I have been having good numbers below three but I am very tired.   I have noticed that on sleepihead that it I am having areas on the graph there is a totally flat line.  On average I am still having  16 hypopnoea and also my RERA have increased up to 30 a night.  Why arent I getting a good nights sleep as i havent changed anything in the bedroom.  I know that my pain levels havent been great over the last few weeks but normally this doesnt effect my sleep.

Dee

Views: 346

Reply to This

Replies to This Discussion

I am glad that i rang the unit as they hadn't booked my transport for next weeks appointment, and the appointment is with a consultant so hopefully I will find out what is going on.  I will let you know how it goes when I get back.  I'm on third week of the increase think I feeling a bit better.

Dee

Great to hear you're feeling a little better, and hope your appointment goes well too

My appointment went well. the doctor I saw said that on average I have around 5 CSA an hour and he feels that it could be caused by certain medications that I take like gabapentin, tramadol and mirtazapentin are the most likely the ones causing it.  The sleep study showed that I had about 48 episodes an hour.  So still on APAP with no changes to the setting.  Hospital transport can be a nightmare as I was picked up too early so I was there by 9:30am for 11:10 appointment and then the transport was booked for 12:10pm but it didn't turn up until just after 1:30pm .

Dee

Good to hear the appointment went well Dee and hope you continue to start feeling better now the meds are kicking in.  Yes, several drugs are responsible for causing central events, but they're obviously necessary for other medical conditions.  This is why some people do better on Adaptive Servo Ventilation rather than CPAP, but they're very expensive so not often supplied.

Yes, the gabapentin stops the spasms I get and nerve pain. The citialopram and mirtazapine is for my chronic depression, tramadol is for pain.  I see them again in 6 months time and if it hasnt changed then I will ask about having a trial of ASV to see that helps.

I don't think that the medication is the cause of the CSA but I will try and see if it makes a difference.

Also I am hoping that I will be 13-kg lighter which will bring me down to around 71-kg. (11-st 2.2-lb).  At the beginning of the year is was 88kgs (13-st 11.6-lbs) that will be over 2 stone lighter which will be good.but will still have another 22-kg tp lose. In total once I get to my goal weight I would have lost 39-kg or 6-st 2lbs around 45% of my body weight.  I am hoping to get to my goal weight in around a year's time.  

Dee

How can you spot a central sleep apnoea event on sleepyhead and also encore

I have uploaded my sleepy head readings from last night.

I have also noticed that I have the full version of Encore where I could change my pressures but I wont as that would be wrong. I got this version from American Apnea Site. Wish I could get all the wave form data from the past. I have added the correct humidifier and serial number. Dee
Attachments:

Congratulations on your weight loss already achieved and good luck at reaching your target Dee

Please bear in mind I'm not a medic, but I've had a look at your readings and there are certainly a lot of central apnoeas there.  Respironics calls these Clear Airways (CA).  Sometimes centrals can be CPAP-induced, often caused by pressures raising, and I can't see the pressures on the chart.  I do know of several people who have got better therapy with mixed/complex sleep apnoe via ASV, but unfortunately not all hospitals are willing/able to supply these.  See this old discussion from Snoreyhead http://hope2sleepguide.co.uk/forum/topics/no-need-to-suffer-are-you...

I will keep you up-to-date with my charts on a regular basis to see if you can see what is going on.  Last night the figures were a bit better:

CA: 13    HY: 14   OB: 10  PP: 33 RERA: 15 =3.48

On the charts it looks like i had many CSA again but I thought that I a good night.

Dee

I have attached my wave pattern from last night.

Dee

Since last week I have finally noticed that I am feeling a bit more positive about things so it looks like the 45mg of Mirtazapine has started to work.  So Manda was right that it would kick in around the four week mark.  I start reducing my Gabapentin today by 300mgs over the next three weeks I will get rid of one whole dose with the tramadol. I will then speak to my chemist to drop back to 4 doses a day instead of 6 as I could add the Mirtazapine to the bedtime one.  I am hoping that I can get down to a lower dose if possible before the pain and spasms kick in.

Dee

That's great to hear Dee, and am sure Manda will be too when she spots this.

Hi

I started reducing the Gapabentin and I have already noticed that my pain levels have started to increase where I get 90% of my spasms.  It's been the first day I have noticed that my upper back is getting painful but I am still going to try and reduce until I cant cope anymore with the pain.  I was hoping to nearly half the dose of it so that I wasnt so much medication.  I will keep a record of how I am feeling and if my pain levels have increased.  For the first time in ages my pain levels were higher than my fatigue levels.

Dee

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service