"You don't mention whether you have a humidifier on your CPAP machine. I think that would help a lot."
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this new Fit Life face mask
does anyone use the total face mask? emil has got this respironics fitlife total face mask, i have put a pic on, its great he is so calm no sores anywhere no breaking down of skin nothing my only question if anyone can help is, he is a bit symptomatic since using it, i have tried getting hold of his home ventilation nurse but hes not getting bk to me, and his consultant is on holiday, in my home town the nurses dont kno anything about the whole thing, since having it he has been snoring and snorting and got a bit of a tracheal tug back, doeas anyone know if it alters the way the pressure is if u get what i mean? cos its a larger area instead of a small mask does it change the force at what the ressure goes in? that might not make sense i kno what i mean im not sure if i am putting it correctly tho!
Rachel
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Replies to This Discussion
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Permalink Reply by Rachel Dickinson on
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He wasn't been looked after to start with! The cons in our lOcal hospital tried convincing me there was nothing wrong with his airway! I knew tho, u just kno! The staff St the Childrens hospital are amazing if it wasn't for them he wouldn't be here now! It terrified me the thought having cpap at home I hated it wen he was in neonatal intensive care i always thought it looked awful, now I love it!!
Kath Hope said:Sorry.... don't know how I missed the videos. However, the difference is amazing. Brilliant! Seems like you're being looked after real well, which is not always the case. I wish you and Emil all the best, and really hope he grows out of this, even if just for a few years as he grows older. So often children do get a break after surgery and help, even though OSA comes back to haunt them in the future. Awareness is the golden key!
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Permalink Reply by Kath Hope on
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Well, thank God he has you as his Mum and you didn't give up. My GP always listens to the Mum, as he said to me once that we know our children better than anyone (this was when my 25 year old was supposed to go into hospital to have grommits at 8 years old, but I knew she'd been cured by nature and could finally hear again). He also suspected OSA in me which was confirmed by the ENT surgeon he sent me to. Guess I'm lucky!
Rachel Dickinson said:
He wasn't been looked after to start with! The cons in our lOcal hospital tried convincing me there was nothing wrong with his airway! I knew tho, u just kno! The staff St the Childrens hospital are amazing if it wasn't for them he wouldn't be here now! It terrified me the thought having cpap at home I hated it wen he was in neonatal intensive care i always thought it looked awful, now I love it!!
Kath Hope said:Sorry.... don't know how I missed the videos. However, the difference is amazing. Brilliant! Seems like you're being looked after real well, which is not always the case. I wish you and Emil all the best, and really hope he grows out of this, even if just for a few years as he grows older. So often children do get a break after surgery and help, even though OSA comes back to haunt them in the future. Awareness is the golden key!
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