"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
helpUARS
Hello All
After years of TMJ and morning migraines (sine 2008) I was finally diagnosed with UARS in 2018. I did a few soft palate and easy procedures with radiotherapy and laser (first was using nasal dilator and a MAD device. Anyways in 2019 September tried a cpap for the first time (dream station) and it changed my life. For the first time ever I barely had any migraines or fast heartbeat and so on. IT was like a miracle. Anyways now all of a sudden since January the symptoms are back and I even downloaded Oscar to start checking my data (I am clueless as to what I am reading) but I am desperate to find out why the symptoms are suddenly back. The only think I did different was I got off my Nexium in November so my doctor suggested I try a mild dose again (I have been starting). I was first using the DreamWear nasal cushion and it was great. Then after I came back from my laser surgery in January the symptoms have been returning. I tried to switch to the full face mask for a few days (I felt worse). Then now I switched to the Philips nasal pillows (they feel better) but my symptoms of exhaustion and moodiness and rapid heart rate are all back. I even tried Benzos one or two times to calm myself down from the anxiety of this coming back! Any advice you can provide would be really appreciated it! (note I also have a heated hose as well but the air still feels a bit cold). I wonder if my LPR (have nighttime reflux) is contributing or is it my opening of mouth at night (my husband said a few times my mouth was open (but there is no leak rate on the machine) I even suspected it could be my nose and allergies but I'm on immunotherapy and take Claritin and am wearing a nasal dilator with my nasal pillow mask. Please note also I am not over weight I weight around 56 kg. I am also happy to post some data but wouldn't know what to post. Thank you so much!
Views: 98
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Hi Haneen
It's very difficult to pinpoint what happens when symptoms return. If you can post a daily screenshot from an average night we could take a look for you. Without seeing that, a few other things to consider is that the recent laser surgery could have affected things - interestingly occasionally surgery can make things worse. Also look up withdrawal symptoms from the Nexium - sometimes this can cause a rebound of reflux which could have upset your system. Anyway, try to get us a screenshot from Oscar of a 'Daily' reading.
-
Permalink Reply by Haneen Ghabra on
-
Hi Kath Thanks so much for your reply - I attached some screen shots... Thanks so much ! wow I wonder how the laser surgery could have made things worse!
- Attachments:
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
"No personal experience, but CPAP.com review of AirMini
The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
ResMed AirMini for travel
I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
© 2025 Created by The SleepGuide Crew.
Powered by
