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99's Discussions (105)

Discussions Replied To (90) Replies Latest Activity

"it took thirty years to diagnose my apnoea people with apnoea find it very difficult…"

99 replied May 31, 2012 to DID THIS POOR LADY SUFFER FROM UNDIAGNOSED SLEEP APNOEA?

5 Jun 9, 2012
Reply by ZolliStar

"do you have blood pressure and by extension blood pressure tablets like enalapril"

99 replied May 24, 2012 to Nasal sleep endosocopy

14 May 30, 2012
Reply by Joe barnes

"you need an asv ASVAdaptive Servo Ventilation machines: essentially operates as woul…"

99 replied May 22, 2012 to Apnoea worse with C pap machine

9 May 30, 2012
Reply by Kath Hope

"you need check manuel plus you pressure settings this is obviously without the humid…"

99 replied May 20, 2012 to Can anyone help

10 Oct 3, 2013
Reply by 99

"we want a name and shame discussion of consultants and hospitals this doctor does no…"

99 replied May 15, 2012 to cpap since dec

61 May 23, 2012
Reply by Roz B

"the maximum capacity allowed for in-flight cabin use (105 Wh) non spill"

99 replied May 7, 2012 to Airport hand baggage allowance and CPAP

93 Oct 15, 2012
Reply by Kath Hope

"it is not ebay stopping these sale, it is resmed and respironics to keep prices high…"

99 replied May 6, 2012 to Welcome to our Forum - Feel Free to Introduce Yourself Here.

751 Aug 24, 2024
Reply by Kath Hope

"Dame Helena Shovelton, Chief Executive, British Lung Foundation is a good person to…"

99 replied May 5, 2012 to Airport hand baggage allowance and CPAP

93 Oct 15, 2012
Reply by Kath Hope

"CPAP batteries over a certain capacity are not allowed for air  transport  "

99 replied May 5, 2012 to Airport hand baggage allowance and CPAP

93 Oct 15, 2012
Reply by Kath Hope

"may is sleep apnoea month plan for next year"

99 replied May 4, 2012 to 3 Year Mission to Raise Sleep Apnoea Awareness in the UK

6 Jul 13, 2012
Reply by Kath Hope

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

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