Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Marion@As I Live and Breathe's Discussions (45)

Discussions Replied To (44) Replies Latest Activity

"Quote from "CPAP and Ventilator Secrets" (available from www.Hope2Sleep.co.uk)Some e…"

Marion@As I Live and Breathe replied Feb 4, 2012 to Power Cuts

6 Feb 4, 2012
Reply by Roz B

"Thanks for the kind words Sally - this book was written by me and my son,, under our…"

Marion@As I Live and Breathe replied Jan 4, 2012 to Childrens Book

3 Jan 4, 2012
Reply by Kath Hope

"Best to avoid real diamantes - not child-friendly. Dinosaurs sounds nice. How about…"

Marion@As I Live and Breathe replied Dec 1, 2011 to Hose huggies (Kath)

6 Dec 1, 2011
Reply by Marion@As I Live and Breathe

"I've mentioned this on Facebook in the hope that others will come over and join us."

Marion@As I Live and Breathe replied Nov 28, 2011 to BREATHING PROBLEMS AND VENTILATOR

2 Nov 28, 2011
Reply by Marion@As I Live and Breathe

"I've just been for my regular overnight Sleep Study in hospital.As usual, my Hose-Li…"

Marion@As I Live and Breathe replied Nov 20, 2011 to Stand for CPAP mask.

4 Nov 20, 2011
Reply by symmit

"The book isn't published til December 5th. It will be available from Kath's website.…"

Marion@As I Live and Breathe replied Oct 13, 2011 to BLOATING

19 Aug 17, 2012
Reply by Kath Hope

"It's advisable to clean out the humidifier regularly to prevent build-up of mineral…"

Marion@As I Live and Breathe replied Oct 11, 2011 to Choose a machine

13 Oct 11, 2011
Reply by Marion@As I Live and Breathe

""Petroleum-based creams and lotions should NOT be used when using Oxygen Therapy as…"

Marion@As I Live and Breathe replied Oct 11, 2011 to BLOATING

19 Aug 17, 2012
Reply by Kath Hope

"Journalists and programmers do not allow facts to get in the way of a good story.I'v…"

Marion@As I Live and Breathe replied Oct 9, 2011 to Comments about OSA on TV Shows

5 Oct 9, 2011
Reply by Kath Hope

"There's a free exhibition of the book's art work at a Suffolk Art Gallery 12-19th Oc…"

Marion@As I Live and Breathe replied Oct 9, 2011 to A Monkey, a Mouse and a CPAP Machine - Childrens Book

1 Oct 9, 2011
Reply by Marion@As I Live and Breathe

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Latest Activity

Jonathan Lait is now a member of Hope2SleepGuide
Thursday
Becky Murkin replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"no such luck getting F40 as was not in stock yet at the hospital. Tried the F30 but unfortunately my nose is so small that even the smallest mask is not small enough and leeks. Now trying out the Philips Dreamwear full mask/ Hybrid mask.  So…"
Thursday
Becky Murkin posted a discussion

mask "whiskers" marks

Hello lovely wise people,How do you prevent/ remove marks (indents) on your face left by mask for hours later. I call them my "whiskers". Still experimenting trying to loosen mask straps but keeping the seal.Using my Xylimelts at night for dry mouth…See More
Thursday
Becky Murkin replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"I have an appointment with my NHS Respiratory physio team on Friday and will plead my case for an F30 or F40. They said to me last week they did not have f40 in as yet however they are soon to see resmed rep any day now."
May 7
Judy posted a discussion

Headgear tips please

Hi, this is a rather trivial question, and apologies if it isn't appropriate for this forum, but I’m hoping someone might have some tips.I use the Resmed N20 mask. I also dye my white hair roots with a decent brand (as it would take several years to…See More
May 6
Judy updated their profile
May 6
Jonathan replied to Iain Noble's discussion Resmed Airfit F20 Woes
"Hi.  No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask I notice cpap.com still appear to be selling the Quattro FX.  I have imported stuff from…"
Apr 28
Iain Noble posted a discussion

Resmed Airfit F20 Woes

Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
Apr 28
Iain Noble replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"Hi All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
Apr 28
Sarah Martin is now a member of Hope2SleepGuide
Apr 27
jjimjam updated their profile
Apr 17
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Apr 16
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13

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