"It sounds like you're getting rainout issues (condensation) so here's an article to help with this.
www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
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APAP or CPAP?
It would be interesting to know who uses CPAP or APAP. For those who aren't sure, CPAP is set at one level of constant pressure (after ramping) and APAP is automatic pressure, which is set low and raises when the machine senses an apnoea is about to happen. Most people I speak to love APAP, but there are some who prefer CPAP.
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Replies to This Discussion
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Permalink Reply by paula jones on
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Apap!! Starts of nice and gentle while i get sleep and if i wake suddenly,i have to hit the reset button to slow it down abit!! goes well powerful,but i musta need it for it to do it!! x x
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Permalink Reply by Rachel Dickinson on
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Emil has cpap set at a pressure of 12 and he's stableOn that now, took some finding his pressure but finally settled on 12! They don't use apap for children at the children's hospital here!
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Permalink Reply by Rosemary Kemp on
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What can I say? I got an apap machine, (which I paid for myself) a few days ago. I have not slept so well apart from the week when I had an apap on loan from the hospital because I wanted to know why I was still waking up so much even with a brand new cpap machine! It was this experience that made me get my own.
I have actually slept through the night on most of the nights so far on apap and remember my dreams. Now; that is something I haven't done for years! Gory and horrible dreams they may be but they are dreams nevertheless. This means that I am falling deep asleep and this is a new situation for me. Two and a half years on cpap and I am very very grateful for it; don't get me wrong but oh, I wish I had had an apap machine from the word go.
I have also found out (with the information on the loaned machine - like a mini sleep study) that I have x number of central apnoeas; y number of mixed apnoeas and the others which are obstructive ones. The hospitals don't seem to encourage us to get this information, certainly where I live. My hospital, in fact, seems to have restricted the infornation I can get now from my apap (perhaps by accident?) but as I am sleeping so well and it so quiet and comfortable, I'm not going to make a fuss. This can be sorted out over time.
Instead of a constant stream of air; at the highest pressure I may need over the night; bombarding me whether I am breathig in or out and whether I have stopped breathing or not; I now have low pressure air hitting me when I breathe in and hardly any when I breathe out. The apap machine only cranks up the pressure duing an apnoea or a threatened apnoea. So in my case I say, excellent apap! I love you!
Rosemary
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Yeh,i defo love mine as well !! rather have None at all,but saying that iv really nothing to compare with as iv only ever had this one mask and machine,thinks its about 8wks into it now!! Yep im still tired as!! but im used to my machine x x x
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Permalink Reply by Kath Hope on
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You are very lucky if you've been given APAP from the beginning Paula, as not many hospitals/clinics give them out.
paula jones said:
Yeh,i defo love mine as well !! rather have None at all,but saying that iv really nothing to compare with as iv only ever had this one mask and machine,thinks its about 8wks into it now!! Yep im still tired as!! but im used to my machine x x x
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CPAP - NHS doesn't offer anything else unfortunately!
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i USE CPAP DUE TO POLIO AT THE AGE OF 8 MONTH WHICH I HAVE SCOLIOSIS. ANY OTHER MEMBERS WHO HAVE THE SAME I WOULD LIKE TO CHAT TO
BRENDA LUXTON PEARCE
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I prefer CPAP with no ramp. I found that if I used ramp, then as the pressure grew I'd find that the mask leaked because it was not seated properly - a similar argument with APAP which I had on loan for a check some time ago, when the pressure dropped the mask would unseat and leak.
I'm on a pressure of 10 and usually sleep for 6 to 7 hours.
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I don't kno how to put what I mean to say here so it might cone out wrong, everyone who has a fixed rate
seems to be at a lower rate than emil, he started at 8 in the paediatric intensive care unit where he had to be established, his established rate to keep his sats above 90 and his breathing settled is 12. Is it different for children? Like I mean do they usually require more pressure? Or is it maybe the condition of his trachea with it been floppy?
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In reply to Rachel, although I know children with the condition, I don't have any statistics. I can tell you that my settled pressure on the cpap machine was and is 12 though, so this is the same as for Emil.
In reply to Caveman, I know that my mask would leak a lot when the pressure changed when I was six stone bigger. As for you, the change from ramp to steady pressure was a drag! I often preferred no ramping time at all. It isn't easy to know whether the better seal is really due to the apap machine or to the weight loss.
I always use the nasal masks now and have had to stop using my full face mask because that continuously leaked. This is difficult for me when I have a problem with congestion or the like but I absolutely can't cope with a continuously leaking mask. The nasal pillows also hurt my nostrils.
One of the difficulties with masks has been that as I've lost weight and my face shape has changed, the masks have started leaking again and it has been a constant struggle. I didn't get on too well with this new "self adjusting" mask either and the conclusion I draw is that it is different for all of us! There are so many variables but someone else's experience can be helpful nevertheless. This is where the forum is so good to have! Also it is nice to not feel so alone isn't it?
Rosemary
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Permalink Reply by diane lester on
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i am happy with my cpap as i hadn't heard about the other ones. how do you know what pressure your machine is set at? do you have to look inside it?
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