Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hi, My apnea reading is 73 per hour.  Has anyone else got a reading this high??

 

Views: 619

Reply to This

Replies to This Discussion

Mine was 30, just on the border of severe sleep apnoea, but I have come across several people in with an AHI in the 80's.

Hello. Mine was 34.

Hi Margaret,

Sorry to hear of your high reading, thought mine was bad enough at 63 per hour. A year on and 3 different machines and several masks I am now down to 28 per hour and feeling better but it can be slow progress!

Good luck

 

Robert

www.mobilityproducts4u.org

66, and that was before CPAP raised it to the seventies.  Researchers at Harvard Medical School included my case in a  journal article about treating patients who cannot be treated with CPAP.  They believe that a score that high is evidence that the problem is neurological and that CPAP pressure often makes it worse. 

That's interesting Robert.  What did you have to do and was yours central, obstructive or mixed sleep apnoea?

Robert W Daly said:

66, and that was before CPAP raised it to the seventies.  Researchers at Harvard Medical School included my case in a  journal article about treating patients who cannot be treated with CPAP.  They believe that a score that high is evidence that the problem is neurological and that CPAP pressure often makes it worse. 

My reading was 76 per hour on my first sleep study.  I started using CPAP in August and feel so much better. Still early days for me, my machine pressure is still very high which I am told I need.

 

That's great to hear how much better you're feeling already Helen, and will be interesting to know how low your AHI has come down to when you go for your check up.

Helen said:

My reading was 76 per hour on my first sleep study.  I started using CPAP in August and feel so much better. Still early days for me, my machine pressure is still very high which I am told I need.

 

In the U.S. the official classification under the Medicare program, which covers seniors over age 65 is "Complex Sleep Apnea", but "mixed" is close enough.  The researchers believe that the essential problem is that the patients respond abnormally to changes in carbon-dioxide in the blood, and that this confuses the respiratory centers in the brain, resulting in very frequent central or central/obstructive breathing events.  Their studies indicate that, when this is present--and it is quite common--CPAP alone has little chance of helping.  Instead, they use various means of stabilizing the patient's control of breathing, which make it possible for the patient to use CPAP effectively.  Beyond that I would be practicing medicine without a license to discuss online how they approach this, but all of it has been published in Sleep or elsewhere and available to any physician to read about.  There is a vigorous scientific discussion going on about this, with people on both sides of the issue.  My own opinion is that apnea scores above 60 should automatically trigger the question as to whether this is what is happening.  Just as a disclaimer, I got pulled into this whole business because I came to them as a patient but they found out that I had a background with medical devices and was handy enough with a screwdriver to help them build some gear they needed in order to conduct some of these experiments.  This was also a positive for me because they gave me a good going-over and managed to really help me, and they were kind enough to include me as an author on a few of their papers because I built some of the experimental gear.  I know it doesn't need to be said though that only a fool would think of treating themselves and the only way to look into any of this is through your physician, who will know how to find out about what is going on and evaluate whether it has anything to do with a particular person's problem.   

Thanks for that very detailed response Robert, which is all very interesting.  Seems your own issues ended up being a blessing for helping others too.  Thankfully these problems are rare and most people are able to be treated with CPAP, BiPap or VPAP.  Hope you're enjoying Thanksgiving :)

Mine was 30 and after 6 months of CPAP, I'm down to 3.1 and most of those left are Centrals. I do know someone that was 120 per hour he is overweight and has had a heart attack and bypass. Margaret are yours Obstructive or Central or both and have you commenced treatment? If so, it will be interesting to see what they are after 3-6 months.

Hi Margaret,

 

When I was diagnosed they told me that they stopped counting at 30 times per hour but that I was at the highest end of 30 to 100 times per hour. I have since lost eight stone and my health is much better three years into treatment. The cpap and apap treatment isn't exactly foolproof even now but I registered 7 apnoeas for the whole night last time it was measured. Stay with the treatment and do what you can. Best of luck.

Rosemary   

My Apnea's where 60 times an Hour,  Dont have them anymore since Cpap but im no more awake for it, x x x

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service