Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Anyone out there with mainly central apneas that has to use an ASV machine?

Views: 289

Reply to This

Replies to This Discussion

I think we have a couple of members with more centrals Elianna.  How are you finding the ASV machine?

Quite honestly I'm find the ASV machine to be terrible.  I've had it almost 2 months and have yet to sleep with it on more than 3 hours, and most nights not that long.  If I fall asleep quickly, before the pressure changes start kicking in I can leave it on for a while.  But, sometimes the pressure ramps up early on and constantly jolts me awake, which leads to a lot of frustration b/c all I want to do is sleep, so I take it off and end up in the recliner.  It's really quite miserable.  If anyone has any tips, suggestions, or encouragement I would greatly appreciate it!

Elianna, You should be able to change the ramp setting, I use a Resmed Autoset and can have mine between 0 and 30 Mins, my pressures are set at 4-12 so it doesn't move from 4 for the first 30 mins. It is difficult to get used too but does get better over time if you persist with it and really you don't have many other options. Dp you take any meds to calm you, I take Valerian Forte which is herbal, non addictive and leaves me clear in the morning. I used to be on prescription meds and they didn't work and I felt groggy the whole of the next day and started getting clear when it was time to take my next dose. Stick with it and let us know if you need anymore advice.

The ASV machines take a bit of getting used to compared to the CPAP/APAP and the secret is to to relax to try to 'breathe with' the machine.  It may be that you need the settings tweaking regarding the comfort and with an ASV I certainly wouldn't try adjusting it myself.  If you can work towards gaining good therapy this is certainly the machine that will treat your centrals, and unfortunately most people needing this kind of therapy just don't get it offered to them.

Good luck, and look forward to hearing your progress.

Elianna Halsey said:

Quite honestly I'm find the ASV machine to be terrible.  I've had it almost 2 months and have yet to sleep with it on more than 3 hours, and most nights not that long.  If I fall asleep quickly, before the pressure changes start kicking in I can leave it on for a while.  But, sometimes the pressure ramps up early on and constantly jolts me awake, which leads to a lot of frustration b/c all I want to do is sleep, so I take it off and end up in the recliner.  It's really quite miserable.  If anyone has any tips, suggestions, or encouragement I would greatly appreciate it!

Thank you, Terry, for the advice.  Right now the ramp feature is not programmed to be used on my machine (Respironics Bipap auto SV Advanced).  I do have an appt. on Thurs. and am planning to ask if it is possible to program it so I can use the ramp feature when needed.  I was going to ask for a short term Rx for ambien, but am a little hesitant for the very reasons you listed.  Maybe I will try the Valerian Forte and see if it helps.  I seem to be having victory with getting to sleep with the machine, initially, but have not been able to get back to sleep after removing the mask and then trying to put it back on.  Maybe the herb would help with that.  Again, thank you for the advice!
 
Terry Vella said:

Elianna, You should be able to change the ramp setting, I use a Resmed Autoset and can have mine between 0 and 30 Mins, my pressures are set at 4-12 so it doesn't move from 4 for the first 30 mins. It is difficult to get used too but does get better over time if you persist with it and really you don't have many other options. Dp you take any meds to calm you, I take Valerian Forte which is herbal, non addictive and leaves me clear in the morning. I used to be on prescription meds and they didn't work and I felt groggy the whole of the next day and started getting clear when it was time to take my next dose. Stick with it and let us know if you need anymore advice.

Did you have a sleep study utilizing the ASV machine?

Elianna, one of my issues with CPAP was getting over the fear of having something covering your face especially in the middle of the night when it is dark and cold. You will get over it eventually. Try the things that are being suggested, you seem to have a positive attitude towards CPAP and that will get you a long way, keep reminding yourself that it will make you better if you persist. Good luck and ask any questions anytime.

Terry, I think it's FANTASTIC to see you posting and helping people so much.  I remember when you were new to CPAP and now you're well on the way on your successful journey.  It's so lovely to read how you're encouraging others - just what these forums are about :)

Terry Vella said:

Elianna, one of my issues with CPAP was getting over the fear of having something covering your face especially in the middle of the night when it is dark and cold. You will get over it eventually. Try the things that are being suggested, you seem to have a positive attitude towards CPAP and that will get you a long way, keep reminding yourself that it will make you better if you persist. Good luck and ask any questions anytime.
Thanks Kath, I'm seeing my Sleep Dr this afternoon for my first 6 month formal review, so looking forward to discussing my results with him and have a list of questions. The last time we spoke it was 40c here, right now it's 14c and hailing and as windy as anything and it's the middle of summer here in Melbourne and I have to drive to the city to see my Dr.

Wow, that's a change in the weather - sounds worse than it is here, as it's fairly mild so far, but have bought my new wellington boots ready for some snow (sun and snow are my favourites).  Drive safely, and look forward to hearing how your consultation goes.  Meanwhile, Good Night from the UK.

Terry Vella said:

Thanks Kath, I'm seeing my Sleep Dr this afternoon for my first 6 month formal review, so looking forward to discussing my results with him and have a list of questions. The last time we spoke it was 40c here, right now it's 14c and hailing and as windy as anything and it's the middle of summer here in Melbourne and I have to drive to the city to see my Dr.

Yes, I did.  Had the same issues in the sleep lab and assumed I would be able to eventually work through them with time.  Maybe I just haven't given it enough time.

RockRpsgt said:

Did you have a sleep study utilizing the ASV machine?

It's encouraging to hear that things will get better eventually.  I definitely want them to.  I am tired of being tired.  I have a nine year-old that I homeschool and a two year-old who is very, very active, as well as a two year-old nephew whom I babysit.  I really need some more energy, as well as the assurance that I'm not doing further harm to my body by not breathing at night.  I want to be here and be healthy when they grow up, which I know I won't be if I don't get this under control.  Again, thanks for the advice.

Terry Vella said:

Elianna, one of my issues with CPAP was getting over the fear of having something covering your face especially in the middle of the night when it is dark and cold. You will get over it eventually. Try the things that are being suggested, you seem to have a positive attitude towards CPAP and that will get you a long way, keep reminding yourself that it will make you better if you persist. Good luck and ask any questions anytime.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Tuesday
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Sunday
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Sunday
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26
Profile Icontim richards, mark & les, Lesley Parks and 1 more joined Hope2SleepGuide
Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
Feb 7

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service