"no such luck getting F40 as was not in stock yet at the hospital. Tried the F30 but unfortunately my nose is so small that even the smallest mask is not small enough and leeks. Now trying out the Philips Dreamwear full mask/ Hybrid mask.
So…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
cpap since dec
I have been on CPAP since Dec and I have never had more than 4 hours a night sleep with it. In fact having 4 hours is a good night and I normally manage about 2 hours. I put my mask on to go to sleep - sometimes I get to sleep quickly and other times it takes a while, but when I get to sleep I only sleep for the longest 2 hours. I have no idea what wakes me, as when I do not use the CPAP I do sleep for longer, but yes, I still wake up. However, using the CPAP has made me worse sleeping, though I did get 2 good nights sleep when the sleep clinic gave me an APAP machine for 2 nights. I am going to see the specialist again soon but I am at the end of my tether with it all, and I know I need to use the CPAP as I am a nurse.
Kath has been supporting me and has been a great help, but I've still not managed. I've tried different masks, but I do not think it is the mask as I am ok with it. I have no leakage and I've even taken sleep relaxing tablets. In fact I have tried everything and I am not someone who gives in easy, but the last week I've stopped trying with the mask. I do not know why i am posting this really but you never know.... someone my have some other ideas to try .
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Replies to This Discussion
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Permalink Reply by LINDA on
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Hi Gina,
I am reading your replies with great interest, as I too have same problem. I don't have any bother dropping off to sleep, but awaken about 2 hours later with the pressure in the mask. As I'm fairly new to this,( I was diagnosed in march) I know nothing about settings on machine. I know it starts off at 4 and when I look when I get leaks its usually up at 15/16. So I am thinking it must be the settings. I have resmed S9 escape with attached H5i humidifier and I think every mask that is on the market lol
I will follow this topic with great interest....and hope we both have better nights soon.
Linda
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Permalink Reply by Terry Vella on
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Linda, are you getting mask leaks that you can feel? Does that seem to be what is waking you up?
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yes terry, it is the leaks that waken me up, and the noise of the air escaping. I have tried adjusting it lying down, sitting up, machine off and on, but to no avail.
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Permalink Reply by Kath Hope on
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That is normally the settings the clinicians use to titrate us to check what pressure we are to be set at on CPAP. Is that what they're supposed to be doing Linda, or is this your regular machine?
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Permalink Reply by cathy on
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Hi Kath thanks for this, i was shattered last going to bed but then I had a bad night last night around 3ish and was awake (or felt like i was every half hour) i had tried to tighten the mask - but then felt claustraphobic so had to relax it to the previous nights tension. if i look at my stats and capture a screen shot and paste it - do you think (if you had time of course) you could give me a brief rundown of what it looks like is happening - that way i get to understand the graphs a little more??
Kath Hope said:Cathy, the software you're now using will help you identify some problems I hope. However, you asked the question on if certain things you're eating and drinking will have an effect on your sleep..... most definitely! I'm sure you're aware of alcohol within at least 3 hours, preferably 4, of bedtime. It's better to have a drink during the day than before sleep which is a hard one, as most people who drink like it in the evening. Eating a large meal within 3-4 hours of bedtime will also affect your sleep. If you like water before bed, it's best to only have a sip as any apnoeas will result in the juices of food or drink being sucked back up and could cause you to wake up (it's more detailed that this, but it's late and I should be in bed). Your body temperature also has an effect, and particularly if you're of the age where the per-imenopause is upon you. Let's see what the results from the software bring eh?
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I have no idea Kath, had the machine now for nearly 8 weeks, I go back to clinic on 14th May, so hope to find out more then.
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That's no problem Cathy or you can post it on here, as I'll be away for a few hours.
Linda, I would go along with all your questions written down so you don't forget anything. It sounds like they're trying to titrate you, but because of your problems they're delaying it. However, the problems could quite easily be caused through these default pressures.
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Thanks Kath, you are an angel, don't know what I would have done these past two months without your help. The hoselift was a great idea, thank you. I will keep you posted
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Linda, I agree with Kath, 20 seems very high that is probably why it's blowing your mask off. Everyone's treatment is different and it depends on the results at your sleep study. Just for me as an example my AHI at the sleep study was 30, so my range is 4 to 12. Mine was original set at a constant pressure of 10 but I didn't like the constant pressure so changed to auto. I would also suggest that you use or at least try the ramp, you should be able to adjust it yourself. That way if you do wake you in the middle of the night and turn the CPAP off, it will slowly adjust. When you do wake up after a couple of hours what do you do? Even after a year of CPAP it sometimes happen to me, if for example I have to go to the toilet, I turn my CPAP off, leave the mask on, then when I get back into bed, plug the hose back in and turn the CPAR on again. I also say to myself, it's like I when I went to bed at 10.30pm, mask is set right etc. I couldn't remember which machine and mask you are using. Let us know because there maybe some other tips we can suggest.
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Linda, I just looked at your profile and we use the same machine so I suggest that you use the ramp feature, I also use the RESMED FULL FACE MIRAGE QUATTRO, I do wear a chin strap as well because it seems to keep the mask in place. Are you using mask liners with that mask ans a strip of material on the head plate. Also, have you tried adjusting the setting on the head set? There is no exact setting that one is a bit of trial and error. Also it depends on where the leaks are coming from determines which straps you tighten, if it is on the side of your nose into your eyes, tighten the top straps, if it's from the side of your mouth tighten the lower straps.
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I was once called the 'CPAP Guardian Angel' Linda - bless! However, even angels have to sleep, so off now, but keep us posted. I would hang in there for your appointment that's coming up soon and hope you get the answers you need. Keep us posted + we'll all help with the next step if you're still struggling.
Glad you like the Hose Lift - I wouldn't be without mine, and I'm lazy so have a spare one packed for trips away, even though they only take seconds to disassemble LOL.
LINDA FERRIER said:Thanks Kath, you are an angel, don't know what I would have done these past two months without your help. The hoselift was a great idea, thank you. I will keep you posted
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