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Sleep Apnoea Forum Bringing Help + Support to the Patient
Hello,have just found out my 3 yr old son has SA :((
Hello all.
My son is 3 and has always been a poor sleeper from birth. He has had numeouros health problems,from bronclitis to asthma.
We recently got referred to ent bcus he had glue ear.
I mentioned his sleepin how poor it was,and that he sleep talks. Alway tired,and behaoiur is hard work in the daytime.
So arranged a sleep study.
Results was sleep apnea.
Least seconds stop breathing was 15 most being 90!! Numerous times.
They are goin to take his adenoid and tonsils out in the next 6 weeks.
I'm bloody petrifed tho,now set up camp in his room to watch him.
Is there anythin i can do??
Also anyone out there with kids simalir age? Can u offer any advice,exp etc.
Thankyou.
T x
Views: 1032
Replies to This Discussion
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Permalink Reply by Kath Hope on
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Hi Tracey and welcome to our forum. There are a few other members on here with children who have sleep apnoea too. Can I firstly say that most children don't get diagnosed, and the oxygen deprivation continues to affect their growing brains, so it's very good news that your son has been diagnosed.
The rate of children being cured of sleep apnoea after having their tonsils and adenoids out is very good, but only another sleep study will prove that, so I hope they'll give him one after the operation. Sometimes the sleep apnoea does come back when the children grow into adults so it's something to bear in mind as he grows. If by any chance the operation doesn't fully cure him, then CPAP and/or a mandibular device will probably be offered.
Meanwhile, I can understand how you're going to be worried, so the best thing you can do is to try to get your son sleeping on his side. Aim, if possible, to clear any nasal stuffiness and if you can get the bed elevated by a couple of inches that will help (just placing books on the base at the top end of the bed should do it).
There was a recent study released of how treating and/or curing children from sleep apnoea improves the brain function caused through undiagnosed sleep apnoea. STUDY ON CHILDREN
Hope this helps and thinking about you. Keep in touch with his progress.
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Permalink Reply by tracey clark on
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Thankyou Kath.
I'm lucky his asthma dctor listened to me and refferd us to the ENT. Within 6 weeks of that we found out.
I have read a bit up on cpap i don't think he would tolerate this as he is a nitemare with his asthma one. What is a mandibuar device? Hopefully tho the T&A will cure it. I shud imagine they will do another study then when he has recoverd from the op.
I have eevated his bed with extra pillows,i shall get him sleepin on his side thankyou for the advice,he always sleeps on his back. One thing that i don't understand after radin up on it,is that many are snorers? Infact most!!My son isn't a snorer.
T xx
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Great that you have a good asthma doctor, as like I said most children get missed, although this should change now with the BLF's campaign which is targetting children too. Another reason they get missed is that children don't often snore - unlike adults (although there are some adults who don't snore too). There's a lady on my Facebook Page who years ago moved her whole family to the USA, as both her children suffer from OSA, and it was practically unheard of here back then.
Another interesting link about children with OSA is HERE
Let's hope the operation cures your son, but I would ensure they do give him a further sleep study when he's healed from the operation, rather than just assume the problem's gone away.
A mandibular device is a dental appliance which pulls the jaw forward to help free the airways, and you would need a dentist to make one to fit him. However, first things first...let's hope the op cures him :)
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Thank Kath you have been a major help,and the links are great. Well i had never hrd of it before,so wouldn't of had a clue what was wrong with him. Defitnyl good news more awareness,there needs to b. So many problems can be caused goin undiagnosed its scary.
Last night he had asthma attack my poor boy,so he not so good today,close obs and meds.
Fingers crossed he won't need any of thoses devices crickey.
If he does he does,you do what u got to do hey.
Thankyou again
T xx
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My pleasure Tracy and glad you found us :)
Sorry to hear of his asthma attack last night though. The sooner he has this op the better, and obviously it's good to know he has OSA before the anaesthetic as he'll be monitored very closely. Make sure you shout it from the rooftops to the anaesthetist, as to why he's having the op.
Latest news hot off the press about another young boy is here from the Mail Online - Your Child's Snoring Could Harm Their IQ
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Would they not know then??
I rang the hospital tday as wanted to know the findings of the report in detail.
Was told he has 16 episodes an hour. Sounds bad to me that is it?
T xx
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His episodes mean he has moderate sleep apnoea. Mild is 5-15 and Moderate is 15-30.
I am sure the anaesthetist will have a record of his diagnosis, but I personally never leave anything to chance, so I would just mention it anyway to be sure.
I'll bet the next 6 weeks of waiting are causing you anxiety, but try not to worry Tracey (easier said than done). We're here for you if you have any concerns! No harm in ringing to see if they can bump him up the list ;)
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Oh so in the middle then. :(
Well they said he on the short lisst,bascially if someone rings in sick for there op,it could be any day. Unsure he could have it tho as on anti b atm.
I'm alrealy on citroprlam for anxiety disorder,so it's not helpin,but you crack on as you do.
Thankyou ..xx
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That's good to hear and hope it comes quickly once the antibiotics have finished Tracey. It's not surprising you are anxious - not many women can bear their children suffering. Hang in there Tracey - keep strong!
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Permalink Reply by Terry Vella on
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Kath and Tracey, I was the one who recommended Tracey to this site as I thought she could have benefited from the experiences of the other mothers, welcome here Tracey. Kath, re the anaesthetic, in Australia, in smaller hospitals they won't operate on you if you have SA. You have to be in a hospital that has an intensive care ward. I found out last year when I had my Gallbladder out and had only just been diagnosed with SA a few weeks earlier and had just recieved my CPAP. I had my initial anaesthetic and was getting ready to go in for the op when they asked if I had any other medical conditions, I had forgot about SA because I had OP's before I was diagnosed with SA without any problems. They wanted to stop the operation and move me to another hospital. I was already panicing enough and said just keep going and I'll take the responsibility, they didn't like it but went ahead and had a nurse monitor me the whole time.
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Permalink Reply by RockRpsgt on
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My daughter had her toncills and adnoids taken out at 7 for the same reason. She also was diagnosed with ADHD prior to her sleep study. Now she is a healthy normal 12 yr old.
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Isn't the power of the internet fab Terry? Glad you could direct Tracey for some help and support :)
My personal experience from my operations (and others here in the UK) is that they normally make people stay in hospital overnight after anaesthetic, even if the procedure would only usually warrant a day case. After the operation we are put on the high-dependency ward to be closely monitored.
Great news for your daughter Rock, which I'm sure will give hope to Tracey.
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