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questions?
I feel that I have not been giving enough attention to Hope2SleepGuide. Im off for the next 3 days if anyone has any questions for me. For those of you that have left me messages I promise to answer this week.
Rock
Views: 528
Replies to This Discussion
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Permalink Reply by Kath Hope on
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I'll start the ball rolling with a personal question for you Rock...... I'm currently trying to get my APAP working at it's best for me, but no matter what I have the maximum pressure set on, it always spends 95% of the time at max and the central apnoeas shoot up too. I can get good results with a constant CPAP pressure of 14.5, but it bugs me that APAP doesn't work as good for me. Do you come across people who just fare better on straight CPAP than APAP, and if so, why?
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Permalink Reply by gina on
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you may be able to help i am not sure its a long story but the thing i am a bit lost with is ive been told ive sleep disorerdered breathing and not sleep apneoa with AHI of 33 events per hour but i may be mistaken are thay not both the same ???cos ive been discharged from my specalist cos nothing can be done apart from psychology . ive asked for a second oppion cos i think there may be some thing more that could be done but hubby and some friends saying dont bother to see the other specaliust so i am so muddled up
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Permalink Reply by Sandy on
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I have been diagnosed with OSA since October 2011, and started on CPAP immediately, for the first few weeks I felt refreshed and had a new life. But since about Christmas time I have started to have tingling in my hands and arms, and feeling very tired again, and my whole body joints and muscles just ache. In fact when I go to sleep with my mask I now wake up feeling I have run a marathon and had no sleep at all, even though the machine appears to be working according to my sleep clinic. I am at the point where I am tired but don't want to go to sleep as it seems the longer I sleep the more tired I feel. Has anyone else experienced this, any advice please?
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Permalink Reply by RockRpsgt on
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What are your max apneas and central apneas? Are they lower on Straight pap or auto pap? Is one higher on one and lower on the other? vice versa? Your wording of the question is complicated. The object is to keep both as low as possible. If your question is "Do some do better on one or the other?" the answer is yes.My current needed straight pap pressure is 10cmwp. Personally I don't tolerate straight PAP. I prefer an autoPAP pressure of 9-11cmwp. It's a comfort zone.
Kath Hope said:I'll start the ball rolling with a personal question for you Rock...... I'm currently trying to get my APAP working at it's best for me, but no matter what I have the maximum pressure set on, it always spends 95% of the time at max and the central apnoeas shoot up too. I can get good results with a constant CPAP pressure of 14.5, but it bugs me that APAP doesn't work as good for me. Do you come across people who just fare better on straight CPAP than APAP, and if so, why?
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How was it that "they" determined you have sleep related breathing issues?
gina said:you may be able to help i am not sure its a long story but the thing i am a bit lost with is ive been told ive sleep disorerdered breathing and not sleep apneoa with AHI of 33 events per hour but i may be mistaken are thay not both the same ???cos ive been discharged from my specalist cos nothing can be done apart from psychology . ive asked for a second oppion cos i think there may be some thing more that could be done but hubby and some friends saying dont bother to see the other specaliust so i am so muddled up
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The machine almost always works. Honestly rarely does it fail to provide you with the prescribed air. Do you have an average of how many hours you sleep? Try adding an extra half hour of sleep to your schedule.....15 minutes at least. Your body requires a minimum amount of sleep. In the beginning of PAP treatment just getting that amount of QUALITY sleep can be enough to show a benefit on treatment. Educate yourself on sleep debt. Sleep can and will have to be made up to a certain extent. An extra 30 minutes a day on PAP will go a long way to doing that. Listen to your body, try sleeoing until you wake up a day or two. No alarms!
Talk to your doc about the tingling hands immediately. This could or could not be something of major importance. I am not qualified to answer this question,
Sandy said:
Sandy said:I have been diagnosed with OSA since October 2011, and started on CPAP immediately, for the first few weeks I felt refreshed and had a new life. But since about Christmas time I have started to have tingling in my hands and arms, and feeling very tired again, and my whole body joints and muscles just ache. In fact when I go to sleep with my mask I now wake up feeling I have run a marathon and had no sleep at all, even though the machine appears to be working according to my sleep clinic. I am at the point where I am tired but don't want to go to sleep as it seems the longer I sleep the more tired I feel. Has anyone else experienced this, any advice please?
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The marathon experience is condusive to your pressure not being high enough. How were you diagnosed?
RockRpsgt said:The machine almost always works. Honestly rarely does it fail to provide you with the prescribed air. Do you have an average of how many hours you sleep? Try adding an extra half hour of sleep to your schedule.....15 minutes at least. Your body requires a minimum amount of sleep. In the beginning of PAP treatment just getting that amount of QUALITY sleep can be enough to show a benefit on treatment. Educate yourself on sleep debt. Sleep can and will have to be made up to a certain extent. An extra 30 minutes a day on PAP will go a long way to doing that. Listen to your body, try sleeoing until you wake up a day or two. No alarms!
Talk to your doc about the tingling hands immediately. This could or could not be something of major importance. I am not qualified to answer this question,
Sandy said:
Sandy said:I have been diagnosed with OSA since October 2011, and started on CPAP immediately, for the first few weeks I felt refreshed and had a new life. But since about Christmas time I have started to have tingling in my hands and arms, and feeling very tired again, and my whole body joints and muscles just ache. In fact when I go to sleep with my mask I now wake up feeling I have run a marathon and had no sleep at all, even though the machine appears to be working according to my sleep clinic. I am at the point where I am tired but don't want to go to sleep as it seems the longer I sleep the more tired I feel. Has anyone else experienced this, any advice please?The "maratho
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Permalink Reply by snoreyhead on
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Two questions if I may?
1) I am awaiting an operation to have by turbinates, reduced is this likely to be the cause of my hypopneas being higher than my restrictive and central sleep apneas? I suffer with one blocked nostril on 98% of nights.
2) As a mask is designed to have some leakage for the purpose of exhaling when breathing what is the leak level that is acceptable?
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i had a sleep test and that showed i had sleep apnea with low oxygen (can't remember what that was) and AHI of 33. I then used CPAP for about 18 weeks but i struggled with this, but i kept trying every night for at least 4 to 6 hours, but i was so sleep deprived i ended up off sick from work. I still continued then i got an appointment for seeing the specialist, and i was so down with it all i stopped using CPAP for 3 weeks before i went to see him . I visited the specialist who was cross with me, and think i got him on a bad day !! He looked in my mouth and said large tonsils and large tongue so nothing could be done as too much fat in that area ! I said my epworth score was only 6 so he discharged me and insisted it was no good continuing with CPAP, then discharge letter came saying i had sleep related breathing not sleep apnea?!!!!
RockRpsgt said:How was it that "they" determined you have sleep related breathing issues?
gina said:you may be able to help i am not sure its a long story but the thing i am a bit lost with is ive been told ive sleep disorerdered breathing and not sleep apneoa with AHI of 33 events per hour but i may be mistaken are thay not both the same ???cos ive been discharged from my specalist cos nothing can be done apart from psychology . ive asked for a second oppion cos i think there may be some thing more that could be done but hubby and some friends saying dont bother to see the other specaliust so i am so muddled up
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Thank you Rock. The average I sleep is about 7.5 hours, I have tried sleeping longer by half an hour and an hour I have even had 9+ hours on the machine, but the longer I am on it the worse I feel. Very recently I wake in the night when I turn over and the room spins and I feel sick. I was taken to hospital on Friday as this was happening during the day too,( this was because I have other medical conditions) and making me very unwell. I have been waiting months to see a neorologist, as my GP suspects there is a problem with my central nervous system (I have already been diagnosed with carpel tunnel syndrome but my GP thinks the problem is in my spine!) and my appointment is on Thursday so I am hoping some of my questions can be answered then.
RockRpsgt said:The machine almost always works. Honestly rarely does it fail to provide you with the prescribed air. Do you have an average of how many hours you sleep? Try adding an extra half hour of sleep to your schedule.....15 minutes at least. Your body requires a minimum amount of sleep. In the beginning of PAP treatment just getting that amount of QUALITY sleep can be enough to show a benefit on treatment. Educate yourself on sleep debt. Sleep can and will have to be made up to a certain extent. An extra 30 minutes a day on PAP will go a long way to doing that. Listen to your body, try sleeoing until you wake up a day or two. No alarms!
Talk to your doc about the tingling hands immediately. This could or could not be something of major importance. I am not qualified to answer this question,
Sandy said:
Sandy said:I have been diagnosed with OSA since October 2011, and started on CPAP immediately, for the first few weeks I felt refreshed and had a new life. But since about Christmas time I have started to have tingling in my hands and arms, and feeling very tired again, and my whole body joints and muscles just ache. In fact when I go to sleep with my mask I now wake up feeling I have run a marathon and had no sleep at all, even though the machine appears to be working according to my sleep clinic. I am at the point where I am tired but don't want to go to sleep as it seems the longer I sleep the more tired I feel. Has anyone else experienced this, any advice please?
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I was Diagnosed by having an overnight study at home, I was stoping breathing 67 times an hour, and my sats were dropping to 42. My machine is set at the maximum and I am using about 18 of the 20 on average. I have had a oxymeter whilst on the machine and I average about 96 which I am told is fine.
RockRpsgt said:The marathon experience is condusive to your pressure not being high enough. How were you diagnosed?
RockRpsgt said:The machine almost always works. Honestly rarely does it fail to provide you with the prescribed air. Do you have an average of how many hours you sleep? Try adding an extra half hour of sleep to your schedule.....15 minutes at least. Your body requires a minimum amount of sleep. In the beginning of PAP treatment just getting that amount of QUALITY sleep can be enough to show a benefit on treatment. Educate yourself on sleep debt. Sleep can and will have to be made up to a certain extent. An extra 30 minutes a day on PAP will go a long way to doing that. Listen to your body, try sleeoing until you wake up a day or two. No alarms!
Talk to your doc about the tingling hands immediately. This could or could not be something of major importance. I am not qualified to answer this question,
Sandy said:
Sandy said:I have been diagnosed with OSA since October 2011, and started on CPAP immediately, for the first few weeks I felt refreshed and had a new life. But since about Christmas time I have started to have tingling in my hands and arms, and feeling very tired again, and my whole body joints and muscles just ache. In fact when I go to sleep with my mask I now wake up feeling I have run a marathon and had no sleep at all, even though the machine appears to be working according to my sleep clinic. I am at the point where I am tired but don't want to go to sleep as it seems the longer I sleep the more tired I feel. Has anyone else experienced this, any advice please?The "maratho
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I average on straight CPAP (14.5) at around AHI 5 - almost all being obstructives.
On APAP set at 13.5-16 the AHI is all over the place ranging from AHI 5 to 19 with lots more centrals.
Maybe I should just stick to CPAP, but thought APAP would have been better for when things vary, like food, drink + temperature.
Did get better results when trialling a VPAP briefly.
RockRpsgt said:
What are your max apneas and central apneas? Are they lower on Straight pap or auto pap? Is one higher on one and lower on the other? vice versa? Your wording of the question is complicated. The object is to keep both as low as possible. If your question is "Do some do better on one or the other?" the answer is yes.My current needed straight pap pressure is 10cmwp. Personally I don't tolerate straight PAP. I prefer an autoPAP pressure of 9-11cmwp. It's a comfort zone.
Kath Hope said:I'll start the ball rolling with a personal question for you Rock...... I'm currently trying to get my APAP working at it's best for me, but no matter what I have the maximum pressure set on, it always spends 95% of the time at max and the central apnoeas shoot up too. I can get good results with a constant CPAP pressure of 14.5, but it bugs me that APAP doesn't work as good for me. Do you come across people who just fare better on straight CPAP than APAP, and if so, why?
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