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I went to see my sleep nurse today, as I am really concerned about my, still high, aph's. She is really lovely and she actually listens to what I am saying and does her best to reassure me. She downloaded my bi-pap. The results are:-

Average 90% IPAP  17.4

Average 90% EPAP  15.3

Average % of Night in Cheyne-Stokes Respiration  2.0%

Average CA Index  6.2

Average OA Index  8.4

Average Hypopnea Index 4.4

Average RERA Index  0.4

AVERAGE AHI 19.0

Average FL Index  0.1

Average VS Index  14.8

Average % Night in Large Leak  6.7%

Average Large Leak  21mins 13 secs

My pressure has been raised to 12.0

 

What do you think?  Any ideas?

 

 

 

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Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?
Hello Kath, She didn't seem too concerned at all. I have got to monitor my oxygen levels overnight and take oxometer back to her in the morning. The cheynes stokes reminds me of when I sat with my lovely dad when he died. It was really horrific. All these readings have put the fear of god into me. Since watching my dad die I have an absolute terror of not being able to breath. Do many people get these differant breathing episodes? I know some of it is due to my medication. I'm thinking this sleep aponea is going to kill me. Do you think I'll be ok?

Kath Hope said:
Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?
Try not to be alarmed Carolyn.  The nurse is taking your condition seriously by getting you to take in the oximeter for the readings.  Cheynes stokes is often linked with apnoeas, especially centrals.  Centrals can also happen due to too high a reading.  I've yet to hear of anyone dying of sleep apnoea whilst using their machines, so the good news for you is that you've been diagnosed.  Your nurse will no doubt take your Bi-Pap readings tomorrow too.  When you let us know how you get on, use this discussion that you've started rather than creating a new one.  That way people can keep track easier.  I wish you a good night's restful sleep now.....

Carolyn Tipping said:
Hello Kath, She didn't seem too concerned at all. I have got to monitor my oxygen levels overnight and take oxometer back to her in the morning. The cheynes stokes reminds me of when I sat with my lovely dad when he died. It was really horrific. All these readings have put the fear of god into me. Since watching my dad die I have an absolute terror of not being able to breath. Do many people get these differant breathing episodes? I know some of it is due to my medication. I'm thinking this sleep aponea is going to kill me. Do you think I'll be ok?

Kath Hope said:
Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?
Thanks Kath.  Night, Night.

Kath Hope said:
Try not to be alarmed Carolyn.  The nurse is taking your condition seriously by getting you to take in the oximeter for the readings.  Cheynes stokes is often linked with apnoeas, especially centrals.  Centrals can also happen due to too high a reading.  I've yet to hear of anyone dying of sleep apnoea whilst using their machines, so the good news for you is that you've been diagnosed.  Your nurse will no doubt take your Bi-Pap readings tomorrow too.  When you let us know how you get on, use this discussion that you've started rather than creating a new one.  That way people can keep track easier.  I wish you a good night's restful sleep now.....

Carolyn Tipping said:
Hello Kath, She didn't seem too concerned at all. I have got to monitor my oxygen levels overnight and take oxometer back to her in the morning. The cheynes stokes reminds me of when I sat with my lovely dad when he died. It was really horrific. All these readings have put the fear of god into me. Since watching my dad die I have an absolute terror of not being able to breath. Do many people get these differant breathing episodes? I know some of it is due to my medication. I'm thinking this sleep aponea is going to kill me. Do you think I'll be ok?

Kath Hope said:
Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?

My advice is to find out your EXACT settings at your next appointment. 12 is a very vague answer for a Bpap.

 

 

FYI-Cheyne stokes presents as centrals in trains.

How were the oximeter results Carolyn?  Just re-read my last reply where I put central can be as a result of too high a "reading" and I should have put too high "settings."  Sorry if I confused you.

Hi Rock - please explain why, "12 is a very vague answer for a Bpap." As an engineer, 12 is 12 all day long and whilst no less accurate than 12.0 it is less reassuringly so.

Oops! she said 12.0 - which is very accurate to my engineer's way of thinking.

Hello Kath. I don't know what my results were yet. I expect the nurse will get back to me next week. I'll let you know as soon as I get them.

12cm is a straight PAP setting Tiger. A Bpap setting would be one pressure over another like 12/8cm. That is why 12 is vague.

You engineers are funny. My uncle(same degree) just asked me the same question.


Tigers Fan said:

Hi Rock - please explain why, "12 is a very vague answer for a Bpap." As an engineer, 12 is 12 all day long and whilst no less accurate than 12.0 it is less reassuringly so.

Oops! she said 12.0 - which is very accurate to my engineer's way of thinking.

Along your line of thinking you are right though. 12 is 12 and a very specific answer. LOL

RockRpsgt said:

12cm is a straight PAP setting Tiger. A Bpap setting would be one pressure over another like 12/8cm. That is why 12 is vague.

You engineers are funny. My uncle(same degree) just asked me the same question.


Tigers Fan said:

Hi Rock - please explain why, "12 is a very vague answer for a Bpap." As an engineer, 12 is 12 all day long and whilst no less accurate than 12.0 it is less reassuringly so.

Oops! she said 12.0 - which is very accurate to my engineer's way of thinking.

Carolyn is on an auto-Bpap. Her settings are more likely to 12/8 to 17/12 or something along those lines.

A woodworking friend uses measures such as 'an easy 12cm' or 'a tight 12cm' and when I complain about this (to me) infuriating method, he hands me his carpenters' pencil and tells me to mark 12.0cm if I can.

I understand that Carolyn's intake Pmin was set to 12 and her exhale Pmin left at 8 (I think she said it was at 8 elsewhere).

Now a bit of education, please Rock. Why does an auto-BiPAP need B-Flex - which I understand to be a pressure drop on the exhale according to the exhale pressure the machine is delivering. Why does it not just deliver a slighly lower exhale pressure and be done with it?

Engineers funny?? We do it with precision!

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