Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I went to see my sleep nurse today, as I am really concerned about my, still high, aph's. She is really lovely and she actually listens to what I am saying and does her best to reassure me. She downloaded my bi-pap. The results are:-

Average 90% IPAP  17.4

Average 90% EPAP  15.3

Average % of Night in Cheyne-Stokes Respiration  2.0%

Average CA Index  6.2

Average OA Index  8.4

Average Hypopnea Index 4.4

Average RERA Index  0.4

AVERAGE AHI 19.0

Average FL Index  0.1

Average VS Index  14.8

Average % Night in Large Leak  6.7%

Average Large Leak  21mins 13 secs

My pressure has been raised to 12.0

 

What do you think?  Any ideas?

 

 

 

Views: 225

Reply to This

Replies to This Discussion

Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?
Hello Kath, She didn't seem too concerned at all. I have got to monitor my oxygen levels overnight and take oxometer back to her in the morning. The cheynes stokes reminds me of when I sat with my lovely dad when he died. It was really horrific. All these readings have put the fear of god into me. Since watching my dad die I have an absolute terror of not being able to breath. Do many people get these differant breathing episodes? I know some of it is due to my medication. I'm thinking this sleep aponea is going to kill me. Do you think I'll be ok?

Kath Hope said:
Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?
Try not to be alarmed Carolyn.  The nurse is taking your condition seriously by getting you to take in the oximeter for the readings.  Cheynes stokes is often linked with apnoeas, especially centrals.  Centrals can also happen due to too high a reading.  I've yet to hear of anyone dying of sleep apnoea whilst using their machines, so the good news for you is that you've been diagnosed.  Your nurse will no doubt take your Bi-Pap readings tomorrow too.  When you let us know how you get on, use this discussion that you've started rather than creating a new one.  That way people can keep track easier.  I wish you a good night's restful sleep now.....

Carolyn Tipping said:
Hello Kath, She didn't seem too concerned at all. I have got to monitor my oxygen levels overnight and take oxometer back to her in the morning. The cheynes stokes reminds me of when I sat with my lovely dad when he died. It was really horrific. All these readings have put the fear of god into me. Since watching my dad die I have an absolute terror of not being able to breath. Do many people get these differant breathing episodes? I know some of it is due to my medication. I'm thinking this sleep aponea is going to kill me. Do you think I'll be ok?

Kath Hope said:
Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?
Thanks Kath.  Night, Night.

Kath Hope said:
Try not to be alarmed Carolyn.  The nurse is taking your condition seriously by getting you to take in the oximeter for the readings.  Cheynes stokes is often linked with apnoeas, especially centrals.  Centrals can also happen due to too high a reading.  I've yet to hear of anyone dying of sleep apnoea whilst using their machines, so the good news for you is that you've been diagnosed.  Your nurse will no doubt take your Bi-Pap readings tomorrow too.  When you let us know how you get on, use this discussion that you've started rather than creating a new one.  That way people can keep track easier.  I wish you a good night's restful sleep now.....

Carolyn Tipping said:
Hello Kath, She didn't seem too concerned at all. I have got to monitor my oxygen levels overnight and take oxometer back to her in the morning. The cheynes stokes reminds me of when I sat with my lovely dad when he died. It was really horrific. All these readings have put the fear of god into me. Since watching my dad die I have an absolute terror of not being able to breath. Do many people get these differant breathing episodes? I know some of it is due to my medication. I'm thinking this sleep aponea is going to kill me. Do you think I'll be ok?

Kath Hope said:
Was the nurse herself concerned?  What did she say to the Cheynes Stokes events + the central apnoeas?  Can you get your readings to compare now the pressure's been changed?

My advice is to find out your EXACT settings at your next appointment. 12 is a very vague answer for a Bpap.

 

 

FYI-Cheyne stokes presents as centrals in trains.

How were the oximeter results Carolyn?  Just re-read my last reply where I put central can be as a result of too high a "reading" and I should have put too high "settings."  Sorry if I confused you.

Hi Rock - please explain why, "12 is a very vague answer for a Bpap." As an engineer, 12 is 12 all day long and whilst no less accurate than 12.0 it is less reassuringly so.

Oops! she said 12.0 - which is very accurate to my engineer's way of thinking.

Hello Kath. I don't know what my results were yet. I expect the nurse will get back to me next week. I'll let you know as soon as I get them.

12cm is a straight PAP setting Tiger. A Bpap setting would be one pressure over another like 12/8cm. That is why 12 is vague.

You engineers are funny. My uncle(same degree) just asked me the same question.


Tigers Fan said:

Hi Rock - please explain why, "12 is a very vague answer for a Bpap." As an engineer, 12 is 12 all day long and whilst no less accurate than 12.0 it is less reassuringly so.

Oops! she said 12.0 - which is very accurate to my engineer's way of thinking.

Along your line of thinking you are right though. 12 is 12 and a very specific answer. LOL

RockRpsgt said:

12cm is a straight PAP setting Tiger. A Bpap setting would be one pressure over another like 12/8cm. That is why 12 is vague.

You engineers are funny. My uncle(same degree) just asked me the same question.


Tigers Fan said:

Hi Rock - please explain why, "12 is a very vague answer for a Bpap." As an engineer, 12 is 12 all day long and whilst no less accurate than 12.0 it is less reassuringly so.

Oops! she said 12.0 - which is very accurate to my engineer's way of thinking.

Carolyn is on an auto-Bpap. Her settings are more likely to 12/8 to 17/12 or something along those lines.

A woodworking friend uses measures such as 'an easy 12cm' or 'a tight 12cm' and when I complain about this (to me) infuriating method, he hands me his carpenters' pencil and tells me to mark 12.0cm if I can.

I understand that Carolyn's intake Pmin was set to 12 and her exhale Pmin left at 8 (I think she said it was at 8 elsewhere).

Now a bit of education, please Rock. Why does an auto-BiPAP need B-Flex - which I understand to be a pressure drop on the exhale according to the exhale pressure the machine is delivering. Why does it not just deliver a slighly lower exhale pressure and be done with it?

Engineers funny?? We do it with precision!

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service