Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Hi Leoni

Sorry there was a delay in approving you onto the forum as we had a glitch and notifications weren't coming through.  If you had a private sleep test with Philips then you will have got an official diagnosis - probably from Dr Dawson.  If this is the case then you can purchase an auto machine from us at the charity.   If you'd like some help with this being new to you then give us a call tomorrow 0300 102 9711 or you can email support@hope2sleep.co.uk

Leoni Atkins said:

Hi everyone - lovely to e-meet you! 

I'm hoping you can help me. I took a private sleep test with Philips a few months back before the lockdown which shows I have severe sleep apnea. Unfortunately I haven't been able to get into a proper sleep clinic due to the Covid-19 situation but I desperately need to get this treated so I can get a decent night's sleep. 

I'm willing to buy a mask and machine myself, but does anyone know the best way of doing this without testing? I haven't found anywhere that provides testing of this equipment so would just have to buy on faith....

Any help, advice or sharing of experiences would be much appreciated. 

Kind regards, Leoni 

Good evening to you all,

I am a new member here, and I am very pleased to have found this forum.

I have been using a CPAP machine for over four years now, and I have accepted the situation and have managed to get used to it.

At the start I was very resentful of the young man who caused the car accident which caused me to need to use the CPAP machine again, after I had been lucky enough to have successful nasal surgery to eliminate the blockages in my nasal passages and allow me to breath clearly again.

I hope that I can contribute something to the forum and help others to improve the quality of their sleep, and thus improve their lives.

Best wishes from Cornwall.

HM

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Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
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