"I have an appointment with my NHS Respiratory physio team on Friday and will plead my case for an F30 or F40. They said to me last week they did not have f40 in as yet however they are soon to see resmed rep any day now."
Sleep Apnoea Forum Bringing Help + Support to the Patient
Welcome to our Forum - Feel Free to Introduce Yourself Here.
Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers.
Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation. Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.
Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...
Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum. Don’t be shy in posting and sharing, as we’re all in this together and to help each other.
Best Wishes for good sleep!
Kath
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Replies to This Discussion
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Permalink Reply by Roz B on
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Bless you Rosemary, I'm really pleased to say the past two nights have been much better. I think i had one of the setting incorrect for my particular mask.
I'm not feeling great as have a headache since yesterday, now today the bottom of my nose feels a little sore…. me thinks its a little spot appearing!
Yesterday I noticed I felt out of breath during the daytime which is a little unusual for me, but thinking about it, it could be just that my lungs are now being exercised more than normal and they are rebelling!!
I live in pain daily through arthritis in my hip and fibromyalgia… it would be so nice if I could also get some relief from that too… i'm hoping :)
Thanks for all the encouragement and support, it really is appreciated
roz x
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Permalink Reply by Kath Hope on
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I also used to feel out of breath, and have heard this from lots of others new to CPAP. You're spot on when you say it could be that your lungs are now being exercised more than normal - my clinic said this too!
Hoping that once your treatment is going well, your fibromyalgia pain should lessen, along with all the other health benefits. The only way is up now.... :)
Roz B said:.....Yesterday I noticed I felt out of breath during the daytime which is a little unusual for me, but thinking about it, it could be just that my lungs are now being exercised more than normal and they are rebelling!!
I live in pain daily through arthritis in my hip and fibromyalgia… it would be so nice if I could also get some relief from that too… i'm hoping :).....
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I hope so Kath :)
I had a long call from Philips this morning checking that everything was ok. they seem really helpful and have told me when they will be sending the cards for replacement…so they can check up on me that I have been using it :)
Must admit as each day goes by I am feeling more positive. i know its very early days.
Hope everyone else is feeling good today xx ((hugs))
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Great to hear you're getting more positive day by day, and when you reap the rewards of better health, you'll be keen to keep on with your treatment :)
It's good to hear how helpful Philips Respironics are being - I have a lot of dealings with that company and every member of their staff I've come into contact with has always been helpful and friendly. They'll also be able to give you results of your sleep, such as AHI (amount of apnoeas/hypopnoeas per hour) which will no doubt have drastically improved.
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I hope so :) I will keep you updated on how things are going. I am so pleased I have found you, i dont feel so alone with it all now xx
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Permalink Reply by Greg Harman on
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Hi everyone. I have just ordered a product from Kath via EBay and so stumbled across the website. I have been using a CPAP for about 6 or 7 years and hope to learn a few tips from others. Thanks :-)
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hi Greg
I'm a newbie on here and to CPAP, so we'l learn together. hope you are getting along ok with your machine
hugs roz xx
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Hi Greg, and welcome to the forum. Hope you do learn useful tips and info on here, but your experience will no doubt help others too. Just a tip (already)..... if you order in the future, most of the products are cheaper on the website due to Ebay's high selling fees. In case you've not found the main website it's www.hope2sleep.co.uk
Kath
Greg Harman said:Hi everyone. I have just ordered a product from Kath via EBay and so stumbled across the website. I have been using a CPAP for about 6 or 7 years and hope to learn a few tips from others. Thanks :-)
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Permalink Reply by gina on
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Hi Gregi am a newbe been on cpap since dec glad you found here cos the is a brill place to talk and learn x
Kath Hope said:Hi Greg, and welcome to the forum. Hope you do learn useful tips and info on here, but your experience will no doubt help others too. Just a tip (already)..... if you order in the future, most of the products are cheaper on the website due to Ebay's high selling fees. In case you've not found the main website it's www.hope2sleep.co.uk
Kath
Greg Harman said:Hi everyone. I have just ordered a product from Kath via EBay and so stumbled across the website. I have been using a CPAP for about 6 or 7 years and hope to learn a few tips from others. Thanks :-)
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Thanks Roz, and Kath. It may be easier to collect any future purchases Kath lol, I only live about 5 miles from you and pass there usually to and from work. One thing that someone may be able to help with, I use a Resmed mask and the thin plastic clip which holds the gel part in place snapped taking it off today. CH hospital lung function dept is closed weekends so it means going without it on tonight. Having been in hospital 2 weeks ago with pneumonia my CPAP has been even more use than ever if that is possible, so this is a real pain. Two points, first you'd think they would have some provision for obtaining a part when needed and second the poor design of this flimsy component. Anyway, enough of my whingeing - thanks for the warm welcome. Greg
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Wow, just spotted you're in Skirlaugh just down the road. Yes, you can save on postage too LOL. Which mask is it Greg? I should be able to help you out somehow if you can get here in the snow.
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It is Resmed Ultra Mirage ii - large. I'm still not driving yet Kath after being in hospital, but my wife could pop down. The road is quite clear. Thanks :-)
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