"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Welcome to our Forum - Feel Free to Introduce Yourself Here.
Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers.
Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation. Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.
Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...
Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum. Don’t be shy in posting and sharing, as we’re all in this together and to help each other.
Best Wishes for good sleep!
Kath
Views: 13125
Replies to This Discussion
-
Permalink Reply by Roz B on
-
Bless you Rosemary, I'm really pleased to say the past two nights have been much better. I think i had one of the setting incorrect for my particular mask.
I'm not feeling great as have a headache since yesterday, now today the bottom of my nose feels a little sore…. me thinks its a little spot appearing!
Yesterday I noticed I felt out of breath during the daytime which is a little unusual for me, but thinking about it, it could be just that my lungs are now being exercised more than normal and they are rebelling!!
I live in pain daily through arthritis in my hip and fibromyalgia… it would be so nice if I could also get some relief from that too… i'm hoping :)
Thanks for all the encouragement and support, it really is appreciated
roz x
-
Permalink Reply by Kath Hope on
-
I also used to feel out of breath, and have heard this from lots of others new to CPAP. You're spot on when you say it could be that your lungs are now being exercised more than normal - my clinic said this too!
Hoping that once your treatment is going well, your fibromyalgia pain should lessen, along with all the other health benefits. The only way is up now.... :)
Roz B said:.....Yesterday I noticed I felt out of breath during the daytime which is a little unusual for me, but thinking about it, it could be just that my lungs are now being exercised more than normal and they are rebelling!!
I live in pain daily through arthritis in my hip and fibromyalgia… it would be so nice if I could also get some relief from that too… i'm hoping :).....
-
-
I hope so Kath :)
I had a long call from Philips this morning checking that everything was ok. they seem really helpful and have told me when they will be sending the cards for replacement…so they can check up on me that I have been using it :)
Must admit as each day goes by I am feeling more positive. i know its very early days.
Hope everyone else is feeling good today xx ((hugs))
-
-
Great to hear you're getting more positive day by day, and when you reap the rewards of better health, you'll be keen to keep on with your treatment :)
It's good to hear how helpful Philips Respironics are being - I have a lot of dealings with that company and every member of their staff I've come into contact with has always been helpful and friendly. They'll also be able to give you results of your sleep, such as AHI (amount of apnoeas/hypopnoeas per hour) which will no doubt have drastically improved.
-
-
I hope so :) I will keep you updated on how things are going. I am so pleased I have found you, i dont feel so alone with it all now xx
-
Permalink Reply by Greg Harman on
-
Hi everyone. I have just ordered a product from Kath via EBay and so stumbled across the website. I have been using a CPAP for about 6 or 7 years and hope to learn a few tips from others. Thanks :-)
-
-
hi Greg
I'm a newbie on here and to CPAP, so we'l learn together. hope you are getting along ok with your machine
hugs roz xx
-
-
Hi Greg, and welcome to the forum. Hope you do learn useful tips and info on here, but your experience will no doubt help others too. Just a tip (already)..... if you order in the future, most of the products are cheaper on the website due to Ebay's high selling fees. In case you've not found the main website it's www.hope2sleep.co.uk
Kath
Greg Harman said:Hi everyone. I have just ordered a product from Kath via EBay and so stumbled across the website. I have been using a CPAP for about 6 or 7 years and hope to learn a few tips from others. Thanks :-)
-
Permalink Reply by gina on
-
Hi Gregi am a newbe been on cpap since dec glad you found here cos the is a brill place to talk and learn x
Kath Hope said:Hi Greg, and welcome to the forum. Hope you do learn useful tips and info on here, but your experience will no doubt help others too. Just a tip (already)..... if you order in the future, most of the products are cheaper on the website due to Ebay's high selling fees. In case you've not found the main website it's www.hope2sleep.co.uk
Kath
Greg Harman said:Hi everyone. I have just ordered a product from Kath via EBay and so stumbled across the website. I have been using a CPAP for about 6 or 7 years and hope to learn a few tips from others. Thanks :-)
-
-
Thanks Roz, and Kath. It may be easier to collect any future purchases Kath lol, I only live about 5 miles from you and pass there usually to and from work. One thing that someone may be able to help with, I use a Resmed mask and the thin plastic clip which holds the gel part in place snapped taking it off today. CH hospital lung function dept is closed weekends so it means going without it on tonight. Having been in hospital 2 weeks ago with pneumonia my CPAP has been even more use than ever if that is possible, so this is a real pain. Two points, first you'd think they would have some provision for obtaining a part when needed and second the poor design of this flimsy component. Anyway, enough of my whingeing - thanks for the warm welcome. Greg
-
-
Wow, just spotted you're in Skirlaugh just down the road. Yes, you can save on postage too LOL. Which mask is it Greg? I should be able to help you out somehow if you can get here in the snow.
-
-
It is Resmed Ultra Mirage ii - large. I'm still not driving yet Kath after being in hospital, but my wife could pop down. The road is quite clear. Thanks :-)
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
© 2025 Created by The SleepGuide Crew.
Powered by
