"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Obtaining reasonably priced pre-loved equipment without hassleI know how difficult it is for anyone in the U.K. to obtain pre-used cpap equipment and accessories and new items are out of reach for many… Started by Eric Swindon in Sleep Apnoea |
0 | Nov 26, 2017 |
Obtaining reasonably priced pre-loved equipment without hassleI know how difficult it is for anyone in the U.K. to obtain pre-used cpap equipment and accessories and new items are out of reach for many… Started by Eric Swindon in Sleep Apnoea |
0 | Nov 26, 2017 |
Portable MachinesDoes anyone have experience of using a portable machine? I have been invited to join a walking holiday in the far east and at some overnigh… Started by Kevin Pigott in Sleep Apnoea |
3 |
Nov 6, 2017 Reply by Kevin Pigott |
Sore nose irritated faceHi all, I am in quandary as I have used every type of mask the clinic can offer me. I was recently given a nose pillow mask after I told t… Started by Terry Foxon in Sleep Apnoea |
2 |
Oct 31, 2017 Reply by Sleep2snore |
RAFFLE for out UK Supporters - ends Saturday 21st October 2017We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of the UK)* RAFFLE WILL BE DRAWN TH… Started by Kath Hope in Sleep Apnoea |
0 | Oct 19, 2017 |
CPAP MACHINE FOR SALEBRAND NEW, NEVER USED S9 AUTOSET WITH H5i HUMIDIFIER Complete with all tubing and masks and full instructions Looking for best offer Started by A Perry in Sleep Apnoea |
9 |
Oct 4, 2017 Reply by A Perry |
Long term sleep deprivationI am into my 5th year of sleep problems. Have been attending drmackays clinic for four years. Have tried everything, different types of cpa… Started by David Waterton in Sleep Apnoea |
1 |
Oct 1, 2017 Reply by Kath Hope |
Side Effects of CPAP / Corneal UlcerI wondered if any CPAP users have experienced any side effects from their CPAP use. I suffer with dry eye syndrome, they think this is due… Started by Mauro Cipriani in Sleep Apnoea |
2 |
Sep 11, 2017 Reply by Mauro Cipriani |
Jury ServiceHello, Thanks for adding me...my husband has chronic sleep apnea and has just received papers for jury service. Does anyone know if he can… Started by Susan Mooney in Sleep Apnoea |
3 |
Sep 8, 2017 Reply by Kath Hope |
finally no more sleep apneahi all not posted here for a long time but this was a valuable source of information when it all started well i have been off sleep apnea… Started by simon howlett in Sleep Apnoea |
2 |
Sep 3, 2017 Reply by Sleep2snore |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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