"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Cleaning tubinghi all, this is my first post. I clean my mask daily. I feel I don't clean my tubing often enough as I find it difficult to get it dry an… Started by Linda in Sleep Apnoea |
6 |
Dec 29, 2017 Reply by Kath Hope |
Excess water in mask - no humidifierHello I was wondering if anyone had any experience or ideas about excess water in cpap mask. I'm wearing a resmed swift fx nasal mask and… Started by Katie Ward in Sleep Apnoea |
6 |
Dec 29, 2017 Reply by Katie Ward |
Hi, newbie hereI was issued with my machine and started using it in September this year, I've just had my review, and it looks like I'm stuck with it for… Started by Kev Behr in Sleep Apnoea |
8 |
Dec 29, 2017 Reply by Sleep2snore |
!2v to 24v adaptor for caravan useCan anyone suggest where I might find a realistically priced adaptor, as I don't want to use an inverter. Post a URL link if possible. Ke… Started by Kev Behr in Sleep Apnoea |
19 |
Dec 28, 2017 Reply by Sleep2snore |
EPR settingsMerry Christmas all, Ok my CPAP pressure is currently at 15. I've noticed along with the chipmunk cheeks, breathing out is slightly harder.… Started by Sean Baker in Sleep Apnoea |
1 |
Dec 28, 2017 Reply by Sleep2snore |
CPAP air pressure.Hi once again Guys, Being a newbie at CPAP I was wondering what is a normal air pressure!! The reason for me asking is that my machine was… Started by Sean Baker in Sleep Apnoea |
4 |
Dec 24, 2017 Reply by Sleep2snore |
Sore nose bridge.Hi everyone, ive just joined the site, so this is my first post so it's possible this is an old topic!! I've been on Cpap therapy for 10 da… Started by Sean Baker in Sleep Apnoea |
3 |
Dec 22, 2017 Reply by Kath Hope |
DC power leadsHi, wonder if anyone can help me, I am looking for a DC power lead without the car lighter attachment for my Philips REMstar Auto A-Flex. I… Started by Adam Humphreys in Sleep Apnoea |
12 |
Dec 11, 2017 Reply by Sleep2snore |
Best CPAP MACHINE FOR CAMPING?Hi I'm new to the forum. I would like a compact machine for use in a camper van. Does anyone have experience of this using electric hook… Started by Sue Butcher in Sleep Apnoea |
5 |
Dec 10, 2017 Reply by Sue Butcher |
My Philips respironics is mibehaving and I am on holiday. Hoping someone can help.My APAP machine has been my best friend until two nights ago. It suddenly started to blast me with constant pressure and kept me an hubby a… Started by Judith-Ann Wardlaw in Sleep Apnoea |
1 |
Nov 30, 2017 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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