"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
Study Trials for New Non-Invasive Electrical Stimulation TherapyLATEST UPDATE (24/7/15) ONLY 3 remaining places left for people wanting to be part of the study for the proposed alternative Non-Invasive… Started by Kath Hope in Sleep Apnoea |
46 |
Jan 10, 2017 Reply by Bill Thomson |
Cleaning masks and other equipment?I have only just worked out how to take my humidifier tank apart after nearly 2 years. The brown sludge on the bottom was pretty disgusting… Started by Iain Noble in Sleep Apnoea |
8 |
Jan 9, 2017 Reply by Jonathan |
NewbieHi I have recently been diagnosed with sleep apnea and pick up my Cpap equipment on Thursday. Seen a lot about Philips machines, does anyo… Started by CS in Sleep Apnoea |
1 |
Jan 9, 2017 Reply by Kath Hope |
EquipmentIm using a full face mask and it lets alot of air out sometimes... then if i turn my machine off then on again its fine y is it doing that?? Started by P in Sleep Apnoea |
2 |
Jan 6, 2017 Reply by Paul Hemsil |
20 year old recently diagnosed20 year old daughter diagnosed with sleep apnea at St James hospital Leeds. CPAP machine needed, appointment in December. Any advice really… Started by R Watson in Sleep Apnoea |
5 |
Nov 15, 2016 Reply by Kath Hope |
RelationshipsHi all Since I have been diagnosed with sleep apnoea my wife sleeps downstairs and has started to be offish with me. Has anyone else had th… Started by Aaron Dale in Sleep Apnoea |
7 |
Nov 11, 2016 Reply by Iain Noble |
Just diagnosed and avoiding sleepHi, This is my first time in a forum but I have so many unanswered questions I thought that it was the best way to find out. On Monday (5 d… Started by Aimee Jones in Sleep Apnoea |
3 |
Nov 10, 2016 Reply by Iain Noble |
HumidifierHI, I keep reading about humidifiers - I don't have one - should I? What are the benefits? i'd appreciate any advice. Thank you Started by Aimee Jones in Sleep Apnoea |
1 |
Nov 10, 2016 Reply by Iain Noble |
Getting a mask to be comfortable .....I'm under the care of an amazing NHS clinic in Nottingham, but I just don't seem to be able to find a mask that I can wear successfully all… Started by Steve Doxey in Sleep Apnoea |
1 |
Oct 26, 2016 Reply by Kath Hope |
Backpacking with your CPAPHi All, I have been asked many times how do I go camping and do so much backpacking with a CPAP machine, so I put up a blog post to try and… Started by Richard Brown in Sleep Apnoea |
0 | Oct 4, 2016 |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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