"Stuart,
I don't know how long you have been using your machine, or what type or make of machine you have, but a lot of the modern machine have data cards in them that read the data from your sleep. This can be read by software that is in…"
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Stuart Adrian Gillespie
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Stuart Adrian Gillespie's Discussions
I'm so worried about my Health condition and putting on weight.
3 Replies
Hi everyone, I have been hit by Universal Credit cuts and problems whilst in lockdown, I also can't go into shops as I'm still shielding. I'm not sure if my sleep apnea is working or not as I only…Continue
Started this discussion. Last reply by Sleep2snore Aug 13, 2020.
Stuart Adrian Gillespie's Page
Latest Activity
"So sorry that this post got missed Stuart and was flagged up thanks to Holly's reply. Do let us know which machine you have so we can help."
"Hey. Depending on your make of machine you can download the app. I have a Philips dream station and you can see how you are doing every day. It took me 6 months to see any difference what so ever. At first I was more tired than I was before I…"
I'm so worried about my Health condition and putting on weight.
Hi everyone, I have been hit by Universal Credit cuts and problems whilst in lockdown, I also can't go into shops as I'm still shielding. I'm not sure if my sleep apnea is working or not as I only seem to get my machine checked out once a year. I don't know if I should check out my SD card in my machine, to see how things are going? Is there a program I need?I also now feel I'm loosing my concentration, and this worries me greatly. Truth is I feel tired each day, and despite waking each day…See More
"They have now suggested my wife should give up her well paid job and becomes sole carer for my children. With many jobs becoming scarce, I don't consider this to be an option. Am I being unreasonable?"
"At the moment I have a problem with Social Services, because they believe my sleep apnea effects my ability to care for my two children. (Who are aged 3 and 4) I have been using a Dream Ware Mask, and a machine that records my sleeping on an SD…"
"At the moment I have a problem with Social Services, because they believe my sleep apnea effects my ability to care for my two children. (Who are aged 3 and 4) I have been using a Dream Ware Mask, and a machine that records my sleeping on an SD…"
"Hi All This is the second time Ive joined.... See below Apr 13, 2017, 7:08 PM
I had to join again because my posts were Deleted. I hope they will all be put back now? I posted an item that I thought was relevant to all. Please look and…"
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- Phillips
- If Mask Being Used, What Type or Name?
- Dreamware
Page for STUART G. a happily married parent of two young boys.
Under the care of my Hospitals Lung Finction Clinic. Ive had problems with leaks and noise from my machine. Howrver I now think it's as good as I can get it. Recently been told a section 47 meeting needed to be held because my sleep apnea put my boys at risk? I do not believe this is true. I came back to this forum after several years to see if anyone else had experienced this? It seems I am the first....
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Latest Activity
"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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