I have ehlers danlos which has caused scoliosis since birth. I have been checked at Brompton Hospital since very young due to my condition. I have had a back operation and have been using a nippy ventilator for about 5 years. I look forward to hearing from others, I live in Bucks.
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Have just put a similar reply on Elizabeth's discussion that hoping others in similar circumstances to yours will be helped by reading the posts, and that you'll be a source of help to others with your condition.
I've mentioned this on Facebook in the hope that others will come over and join us.
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