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Sleep Apnoea Forum Bringing Help + Support to the Patient
A Sad Story
I read this story on another site, the lady is in the UK, I have just removed names, I posted a comment to the mother saying how sad I felt for her.
My son was diagnosed with sleep apnoea for four yrs before he passed away suddenly in his sleep in November 2010, he always wore his cpap mask without fail, but unfortunately, it didn't save his life.
When I look back now, my son had snored very loudly for quite a few years, and it was treated as a joke. We had never even heard of sleep apnoea.
My son had always snored extremely loudly, which we all joked about. That is until he was staying with me one weekend, and I heard him making this awful choking sound.
I rushed in to him, and he then told me this happened quite often.
I insisted he went to see his GP when he got back home, which he did, and was referred to a sleep clinic.
He was assessed over night,and was told he had sleep apnoea, and supplied more or less immediately with cpap equipment, which as I said before he never failed to use.
If went away overnight he always took it with him.
I now think he had been suffering with this a long time before he was diagnosed, therefore all his organs in his body had been overworked, as we now know they can as I have since found out much to my regret.
When they carried out a post mortem on my son. The Coroner stated sleep apnoea, as main cause, and a partially blocked left ventricle in his heart.
My son was 46 yrs old.
If we had only known just what this was... but due to lack of awareness,and ignorance, we had absolutely no idea. Had we been better informed my son might still be with us...
Since he passed away I have tried my best to make others aware how serious,sleep apnoea can be, as I would hate anyone to go through what I have and still am due to ignorance.
Also by doing this it is helping me come to terms with the tragic death of my dear son.
I also feel he wont have died in vain, if my story helps anyone else,
Views: 122
Replies to This Discussion
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Permalink Reply by Kath Hope on
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Thanks for sharing this Terry, and I know the lady concerned will be pleased when I tell her (I've had many conversations with her and she supports my active posts on Facebook. This highlights the fact that we must be vigilante in looking out for the symptoms we know so well in our dear friends and family, and NOT to listen to some of the medics that are still insisting that sleep apnoea does not run in families, when we on here know this is not true. I have customers on Hope2Sleep in 3 generations from the same family, and it's also in 3 generations of my own - and that's without all of those long gone who died of strokes and heart attacks.
The sooner we can catch people with sleep apnoea, the less damage will be done to their bodies, and I know the lady will feel some small comfort that her son's death has at least saved others!
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Permalink Reply by Colette Walsh on
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I have tried to advise friends of the dangers of heavy snoring however they ignore the dangers. Both myself and my sister have sleep apnea. My sister definitely had it as a young child, we would listen for her taking her next breath as she slept. The sad story is scary for those of us with apneas. My consultant has advised me I have probably had this problem for a long time.
I did not realise that sleep apnea affected other parts of the body so thank you for the education.
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It's like banging your head against a brick wall isn't it Colette? Dr Park's told me once that people often only listen after the first heart attack or stroke :( If only people were all tested for sleep apnoea they could prevent so much damage to their bodies. Did you look at my blog about weight + sleep apnoea? If not, have a look at the last paragraph http://www.sleepapnoeablog.com/obesity-weight-problems/
Did you manage to get your AHI down any more? I remember you telling us about your really high AHI of around 200, and I think it had come down to somewhere in the 20's.
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Permalink Reply by Terry Vella on
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I'd really like to know how you're going as well Colette as 200 is huge and hopefully you are below 20 now. The other worrying thing about diagnosing SA is the symptoms are different in everyone, I'm a 49 year old male but don't snore and was 10kg underweight and still have SA, so there really isn't an exact profile.
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