"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Update from this "hose head"
Hello all Hose Heads.(that name still makes me chuckle)
Thought I should should drop in and have a read again, not been on for a while as I am very busy with three jobs, two cats and a girlfriend (who is now my fiancee).
I really hope you are all getting a great nights sleep, I have read that it is very hard for some as they have other issues. Mine is still a success story. Been a hose head since 31st Jan 2012 and with the odd night or two when I've taken it off for no reason. Its been wonderful. Too good in fact. I now stay up far too late because I dont feel tired anymore.
The only thing I suffer from at night is my nose blocking but I have overcome this by using those nasal strips. I feel very lucky as you can imagine.
I will try and have a look here more often
Sleep well
Steve
ps. still waiting for my driving license back though......
Views: 100
Replies to This Discussion
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Permalink Reply by Kath Hope on
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Great to hear from you Steve and glad it's still going well. Those nasal strips are a great help, and it's all I need now since my nose surgery (no more sprays and potions). However, if you don't have a humidifier, I would ask for one of those from your NHS clinic, as it will help your nasal issues even more.
Yes, do keep dropping by, and apart from hearing of people's success, there's always people who need a helping hand.
Best Wishes.
Kath
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Permalink Reply by stephen smith on
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Thanks for that. I will look into it. If I can be of any help I will.
Kindest regards Steve.
ps. does any know if the CPAP users are still meeting at James Cook University Hospital this Sat 19th May?
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Not sure Steve, but if you find out can you let us know and I'll put it up as an Event or you can.
stephen smith said:Thanks for that. I will look into it. If I can be of any help I will.
Kindest regards Steve.
ps. does any know if the CPAP users are still meeting at James Cook University Hospital this Sat 19th May?
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Hi Kath.
I have just had a call from my specialist and the meeting is at 10am to 1pm this saturday(19th May) in the Acedemic Centre, James Cook University Hospital. He says there might be about 100 people turn up. I think its going to be very informative and if people can make it that would be great for us sufferers and the hospital.
Thanks again
Steve
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Hi Kath. ooops I meant to post about it. Its was quite good. Lots of information for people like myself who is new to OSA and the CPAP machine. It did get a bit political at one point because the sleep apnea clinic is moving to Redcar and the funding is going to come from the patients GP funds. All very well if your GP back this type of medication but as I have read on this forum there are a few that are just terrible and should be struck off or re-educated, maybe the latter is a bit more reasonable...lol.
What can i say. It was a good chance to have a chat with fellow sufferers and meet with the guy from Resmed. Yes, I should of asked him about the battery question but being a man "I forgot", :o) and of cause seeing my specialist again is always good. He is going to let me try the new nasal pillow FX to see whats its like as the trust is only testing them at the moment, well in the next week or two.
Not much else happened really, just getting to know people and hear whats going on.
Take care and sleep well
Steve
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Glad you enjoyed it, but shame to hear things are changing in your area. I just hope the new changes aren't going to affect people getting diagnosed - it's hard enough convincing some GP's of the need to be tested, which is why our Sleep Strips are flying off the shelves. Every week I speak to someone who's GP is fobbing them off or dishing out sleeping pills and anti-depressants instead :(
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