Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hello all Hose Heads.(that name still makes me chuckle)

Thought I should should drop in and have a read again, not been on for a while as I am very busy with three jobs, two cats and a girlfriend (who is now my fiancee).

I really hope you are all getting a great nights sleep, I have read that it is very hard for some as they have other issues. Mine is still a success story. Been a hose head since 31st Jan 2012 and with the odd night or two when I've taken it off for no reason. Its been wonderful. Too good in fact. I now stay up far too late because I dont feel tired anymore.

The only thing I suffer from at night is my nose blocking but I have overcome this by using those nasal strips. I feel very lucky as you can imagine.

I will try and have a look here more often

Sleep well

Steve

ps. still waiting for my driving license back though......

Views: 96

Reply to This

Replies to This Discussion

Great to hear from you Steve and glad it's still going well.  Those nasal strips are a great help, and it's all I need now since my nose surgery (no more sprays and potions).  However, if you don't have a humidifier, I would ask for one of those from your NHS clinic, as it will help your nasal issues even more.

Yes, do keep dropping by, and apart from hearing of people's success, there's always people who need a helping hand.

Best Wishes.

Kath

Thanks for that. I will look into it. If I can be of any help I will.

Kindest regards Steve.

ps. does any know if the CPAP users are still meeting at James Cook University Hospital this Sat 19th May?

Not sure Steve, but if you find out can you let us know and I'll put it up as an Event or you can.

stephen smith said:

Thanks for that. I will look into it. If I can be of any help I will.

Kindest regards Steve.

ps. does any know if the CPAP users are still meeting at James Cook University Hospital this Sat 19th May?

Hi Kath.

I have just had a call from my specialist and the meeting is at 10am to 1pm this saturday(19th May) in the Acedemic Centre, James Cook University Hospital. He says there might be about 100 people turn up. I think its going to be very informative and if people can make it that would be great for us sufferers and the hospital.

Thanks again

Steve

How did the meeting go yesterday Steve?

Hi Kath. ooops I meant to post about it. Its was quite good. Lots of information for people like myself who is new to OSA and the CPAP machine. It did get a bit political at one point because the sleep apnea clinic is moving to Redcar and the funding is going to come from the patients GP funds. All very well if your GP back this type of medication but as I have read on this forum there are a few that are just terrible and should be struck off or re-educated, maybe the latter is a bit more reasonable...lol.

What can i say. It was a good chance to have a chat with fellow sufferers and meet with the guy from Resmed. Yes, I should of asked him about the battery question but being a man "I forgot", :o) and of cause seeing my specialist again is always good. He is going to let me try the new nasal pillow FX to see whats its like as the trust is only testing them at the moment, well in the next week or two.

Not much else happened really, just getting to know people and hear whats going on.

Take care and sleep well

Steve

Glad you enjoyed it, but shame to hear things are changing in your area.  I just hope the new changes aren't going to affect people getting diagnosed - it's hard enough convincing some GP's of the need to be tested, which is why our Sleep Strips are flying off the shelves.  Every week I speak to someone who's GP is fobbing them off or dishing out sleeping pills and anti-depressants instead :(

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Saturday
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service