Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Tongue Surgery to Cure Sleep Apnoea - Trans-Oral Robotic Surgery

Am sat here right now with 5 stitches in my own tongue from a biopsy I had a 5 days ago, and after this experience, nobody is coming near my tongue!  However, the following article is a testimony of one man's experience of how it cured his sleep apnoea.  I'd like to know if he has had a sleep study done since the surgery though, as he does say he's still snoring a little. 



"Around 120,000 Britons suffer from sleep apnoea, where snorers stop breathing in the night.

Anthony Baker, 70, a retired company director from Thames Ditton, Surrey, had a new treatment for the condition.

THE PATIENT

'I did feel exhausted a lot of the time, but I just put it down to ageing,' said Anthony Baker

'I did feel exhausted a lot of the time, but I just put it down to ageing,' said Anthony Baker

My snoring has driven people mad over the years.

One of the worst times was when I caught a sleeper train in Australia  — and kept half the carriage awake, apparently.

My partner, June, is a light sleeper and hates my snoring — so much so that I was relegated to the spare room a few years ago.

It started in my 40s and over the years I’ve tried gadgets such as nasal strips to improve airflow, but nothing has ever helped.

Then, about six years ago, June said I’d started making really strange noises in my sleep.

She said it was as though I had stopped breathing and was gasping for air.

Looking back, I did feel exhausted a lot of the time, but I just put it down to ageing.

I also blamed my age for the fact I was having memory problems. Sometimes I would leave the house and forget where I was going.

June was so worried about the noises I was making while asleep that I decided to see my GP.

Two years ago, I was diagnosed with obstructive sleep apnoea, where you stop breathing while asleep and wake up to kick-start your breathing again.

In my case, my tongue was flopping back in my throat when I was asleep, blocking my airway so I couldn’t breathe.

My specialist, Mr Kotecha, explained my memory problems could have been caused by the lack of oxygen to my brain, which was effectively causing it to malfunction.

The lack of oxygen also increased my risk of high blood pressure, diabetes and heart disease, which was worrying.

By coincidence, at the time I was diagnosed, Mr Kotecha said he and a colleague were trialling a type of robotic surgery they thought would be suitable for me.

It would cut away some of my tongue so even if it did flop to the back of my throat during the night, it wouldn’t be bulky enough to block my airway. I jumped at the chance.

Mr Kotecha explained he would do three things: take off a bit of my epiglottis — located behind the tongue — so it wouldn’t vibrate so much, which is what was causing the snoring.


Around 40 per cent of the adult population are snorers and 10 per cent of these have some degree of sleep apnoea

He would also shave a bit off my tongue to make my airway bigger so it couldn’t get obstructed when I was asleep.

Lastly, he would remove some of the top of my mouth, again to make the airway bigger

He said that until now, it had been almost impossible to do the operation manually, which is why the robot was so exciting.

I had the operation a year ago at St Mary’s Hospital, London. It took a couple of hours and when I woke up from the anaesthetic I wasn’t in pain.

Because it’s a new procedure — I was the third person in the country to have the op — I stayed in for two nights. It took a couple of weeks for everything to settle down.

Now I sleep eight hours straight and I’m less tired. I still snore a bit, but it’s not nearly as bad.

My memory hasn’t got any worse. I’m still in the spare room, but hope I’ll be allowed back eventually.

THE SURGEON

Mr Bhik Kotecha is a consultant surgeon at The Royal National Throat, Nose and Ear Hospital, London.

Around 40 per cent of the adult population are snorers and 10 per cent of these have some degree of sleep apnoea.

There are two forms — obstructive sleep apnoea is the most common.

This is where an obstruction — perhaps the tonsils, the tongue flopping back in the throat or nasal polyps — blocks the airway.

Sometimes the obstruction is caused by the muscles and soft tissues in the throat relaxing and collapsing so much that they cause a total blockage.

There is another form — central sleep apnoea, where the brain effectively forgets to tell the lungs to breathe, but this is rare.

One of the key symptoms of obstructive sleep apnoea is snoring, but what is worse is that the patient stops breathing.

The lack of oxygen causes them to wake up in order to restore normal breathing. As a result, sleep can be fragmented.

Sufferers often feel exhausted and may have a morning headache.

Men are twice as likely to suffer as women. That’s because they are more likely to store excess weight around the neck, which puts extra pressure on the tissues so they are more likely to collapse.

Women also have higher levels of the hormone oestrogen, which protects against sleep apnoea.

Under-diagnosis is a problem. Many people assume they are simply snorers when sleep apnoea is the cause of the snoring.

And there are serious medical implications. Because it deprives the body of oxygen, the condition increases the chance of heart disease, high blood pressure, stroke and type 2 diabetes. Memory and concentration can also be impaired.

The good news is that GPs are increasingly aware of the condition. 

The condition is diagnosed with a sleep study and the recommended treatment is continuous positive airway pressure (CPAP).

A mask connected to a machine blows air into the throat, keeping the airway open — but drop-out rates are high.

In terms of surgery, until now it has been difficult to access the base of the tongue.

But a new robotic technique pioneered in the U.S. means we have 360 degree access to the area and a 3D view. 

My colleagues and I at St Mary’s are now performing it in the UK.

Called trans-oral robotic surgery, it uses a laser to cut away about 10 per cent of the back of the tongue.

It is suitable for those with moderate to severe sleep apnoea and patients who cannot tolerate CPAP.

They must have a body mass index under 35, as fat around the neck will affect the success of the procedure.

We use a very precise machine called the Da Vinci robot — better known for its use in prostate cancer surgery.

We put its three tiny arms inside the patient’s mouth.

One holds a telescope, so we can see what we’re doing, another holds the laser to cut away part of the tongue and tissue, and the final arm holds forceps to remove excess matter or manipulate the tissue.

The laser shaves off the top layer of the back of the tongue. It works at 300 degrees Celsius and seals  the blood vessels as it goes, so  there should be no bleeding. The procedure takes around two hours.

As with any operation, there is the risk of infection, but this is small.

Patients may find it painful to swallow after the operation — we advise soft food for the first 48 hours.

We have a success rate of 80 per cent. I am delighted Mr Baker has benefited from the surgery.

The operation costs £12,000 to £15,000 and is available on the NHS, or privately at the Princess Grace Hospital in London."


Article: http://www.dailymail.co.uk/health/article-2127411/Want-stop-snoring...

Views: 377

Reply to This

Replies to This Discussion

Way back in around 1990 my husband had a UPPP operation to cure his long-term snoring.

This is a Uvulo-Palato-Phryngo-Plasty procedure in which the uvula, and other soft fleshy parts of the throat, are surgically removed under general anesthesia. He had to stay in hospital for a few days.

The procedure did work and his snoring ceased.

A few years later we heard that laser surgery had taken over from the scapel, making the whole operation easier and less painful.

Fast forward to 2009:-  he was snoring badly again and had had a couple of 'mini-strokes'.

This time he was issued with a CPAP machine and is a lot better.

He doesn't miss his uvula (the dangly bit hanging down at the back of the throat).
However, when he started going to a new dental surgery, the dentist was really startled to see he didn't have one!

That gave him quite a chuckle!!

Unfortunately, most of the surgery often only temporarily fixes sleep apnoea.  I once saw a study someone did of children who have their tonsils/adenoids removed.  Whilst it mostly cures sleep apnoea in childhood, a high percent of them had it return.  However, this is still good as it saves the poor children having to grow up with CPAP and only have to resort to treatment when they're older.

I do know a man who was cured by surgery, but he had full jaw alignment, septoplasty, tongue, palate + UPPP.  Think I'll stick to CPAP.

I know I have a problem with my tongue so I would jump at the chance of having it done.

You're braver than me Joe!  Did you see the new article I put today about different tongue surgery http://hope2sleepguide.co.uk/forum/topics/yet-another-new-technique...

I I have made an appointment with my g.p to ask for an appointment with that consultant

 

I have also lost 2 stone and still going!!

Well done on the weight loss Joe :) and good luck with the referral.  Let us know how it goes.

Well if I don't get anywhere with my problem of cpap not working for me, will maybe go down this line as well :) have to do something :( Gratz on the weight loss Joe and will be interesting to see how you get on with the GP and op

Isla x

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Becky Murkin replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"I have an appointment with my NHS Respiratory physio team on Friday and will plead my case for an F30 or F40. They said to me last week they did not have f40 in as yet however they are soon to see resmed rep any day now."
Tuesday
Judy posted a discussion

Headgear tips please

Hi, this is a rather trivial question, and apologies if it isn't appropriate for this forum, but I’m hoping someone might have some tips.I use the Resmed N20 mask. I also dye my white hair roots with a decent brand (as it would take several years to…See More
Monday
Judy updated their profile
Monday
Jonathan replied to Iain Noble's discussion Resmed Airfit F20 Woes
"Hi.  No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask I notice cpap.com still appear to be selling the Quattro FX.  I have imported stuff from…"
Apr 28
Iain Noble posted a discussion

Resmed Airfit F20 Woes

Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
Apr 28
Iain Noble replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"Hi All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
Apr 28
Sarah Martin is now a member of Hope2SleepGuide
Apr 27
jjimjam updated their profile
Apr 17
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Apr 16
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service