"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
British Lung Foundation - MP's Survey
Hi All,
Following a questionnaire and request for action by the British Lung Foundation I sent the prepared question letter about OSAS to my local MP, for Frome, Somerset and thought I should share his official response and quoted future Government action.
Please see attached WORD document file.
Graeme
Views: 79
- Attachments:
-
-
MP OSA Letter.doc, 13 KB
-
Replies to This Discussion
-
Permalink Reply by Graeme Joy on
-
DAVID HEATH CBE MP
Church Hill House
17 Bath Street
Frome
BA11 1DN
Mr Graeme D Joy
Frome, Somerset
BA11
Date: 9 April 2013
Dear Mr Joy,
Thank you for your email about sleep apnoea.
I am certainly aware of the serious nature of the disease, but the future programme of work on delivering improvements for people with respiratory disease, including those with obstructive sleep apnoea, will be a matter for the National Health Service Commissioning Board from April 2013.
The National Clinical Directors for Respiratory Disease have identified obstructive sleep apnoea (OSA) as one of the priority areas for the respiratory programme in the department for this year. As a result, a clinical lead and a project manager were appointed and are currently mapping existing services and identifying priorities for action on OSA.
Working groups have been established to support this work, involving a range of experts and stakeholders, and the national programme for physiological diagnostics continues to monitor access to investigations for OSA and other sleep-related breathing problems, and promotes best practice in service delivery.
Unfortunately, as a Minister, I am not allowed to raise matters in Parliament outside my own portfolio, however you can be assured of my general support.
Yours sincerely,
David Heath CBE MP
Minister of State
Defra
-
Permalink Reply by Kath Hope on
-
Thanks for posting Graeme. We're hoping that as many MP's as possible at the Parliamentary Reception on the 23rd of this month at the House of Commons. I think I'm getting some invites for the MP's and as soon as I do I'll let everyone know.
-
Permalink Reply by David on
-
Following my earlier email from Clive Betts Mp. he was true to his word and here is his reply:-
Dear David,
Thank you very much for your recent correspondence regarding the OSA drop-in session.
Unfortunately I was unable to attend the event, but one of my researchers did attend on my behalf. I now have lots of literature on OSA which I will read in detail in due course.
I am now aware that the risk factors which the British Lung Foundation use to calculate overall risk of OSD in a given constituency are obesity, diabetes, age, hypertension and gender. These factors are weighted respectively in terms of how likely they are to contribute to OSD. I am now aware that my constituency of Sheffield South East is in the overall risk band 4, which means that OSD is quite prevalent in my constituency, and as I have stated before, the diagnosis rate of OSD concerns me. I am also aware that there is not a specific sleep clinic in my constituency, which could help diagnosis, but there are in neighbouring constituencies in Sheffield where the risk band is as low as 1. I have already written to the Sheffield Clinical Commissioning Group on this matter, but now I am better informed I will write to them again if their response is not satisfactory.
Please do not hesitate to contact me again in the future regarding this or any other issue.
Regards
Clive Betts MP
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
© 2024 Created by The SleepGuide Crew.
Powered by
