"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
British Lung Foundation - MP's Survey
Hi All,
Following a questionnaire and request for action by the British Lung Foundation I sent the prepared question letter about OSAS to my local MP, for Frome, Somerset and thought I should share his official response and quoted future Government action.
Please see attached WORD document file.
Graeme
Views: 79
- Attachments:
-
-
MP OSA Letter.doc, 13 KB
-
Replies to This Discussion
-
Permalink Reply by Graeme Joy on
-
DAVID HEATH CBE MP
Church Hill House
17 Bath Street
Frome
BA11 1DN
Mr Graeme D Joy
Frome, Somerset
BA11
Date: 9 April 2013
Dear Mr Joy,
Thank you for your email about sleep apnoea.
I am certainly aware of the serious nature of the disease, but the future programme of work on delivering improvements for people with respiratory disease, including those with obstructive sleep apnoea, will be a matter for the National Health Service Commissioning Board from April 2013.
The National Clinical Directors for Respiratory Disease have identified obstructive sleep apnoea (OSA) as one of the priority areas for the respiratory programme in the department for this year. As a result, a clinical lead and a project manager were appointed and are currently mapping existing services and identifying priorities for action on OSA.
Working groups have been established to support this work, involving a range of experts and stakeholders, and the national programme for physiological diagnostics continues to monitor access to investigations for OSA and other sleep-related breathing problems, and promotes best practice in service delivery.
Unfortunately, as a Minister, I am not allowed to raise matters in Parliament outside my own portfolio, however you can be assured of my general support.
Yours sincerely,
David Heath CBE MP
Minister of State
Defra
-
Permalink Reply by Kath Hope on
-
Thanks for posting Graeme. We're hoping that as many MP's as possible at the Parliamentary Reception on the 23rd of this month at the House of Commons. I think I'm getting some invites for the MP's and as soon as I do I'll let everyone know.
-
Permalink Reply by David on
-
Following my earlier email from Clive Betts Mp. he was true to his word and here is his reply:-
Dear David,
Thank you very much for your recent correspondence regarding the OSA drop-in session.
Unfortunately I was unable to attend the event, but one of my researchers did attend on my behalf. I now have lots of literature on OSA which I will read in detail in due course.
I am now aware that the risk factors which the British Lung Foundation use to calculate overall risk of OSD in a given constituency are obesity, diabetes, age, hypertension and gender. These factors are weighted respectively in terms of how likely they are to contribute to OSD. I am now aware that my constituency of Sheffield South East is in the overall risk band 4, which means that OSD is quite prevalent in my constituency, and as I have stated before, the diagnosis rate of OSD concerns me. I am also aware that there is not a specific sleep clinic in my constituency, which could help diagnosis, but there are in neighbouring constituencies in Sheffield where the risk band is as low as 1. I have already written to the Sheffield Clinical Commissioning Group on this matter, but now I am better informed I will write to them again if their response is not satisfactory.
Please do not hesitate to contact me again in the future regarding this or any other issue.
Regards
Clive Betts MP
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
© 2025 Created by The SleepGuide Crew.
Powered by
