"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Welcome to our Forum - Feel Free to Introduce Yourself Here.
Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers.
Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation. Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.
Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...
Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum. Don’t be shy in posting and sharing, as we’re all in this together and to help each other.
Best Wishes for good sleep!
Kath
Views: 13125
Replies to This Discussion
-
Permalink Reply by melanie appleby on
-
Hi Deborah, since our last phone call, i would like to thank you for all the help you have given kev and my self in regards to the masks. he has tried the large and finds it more comfortable to wear. the room seems so quiet now that i keep checking on kev to make sure his machine is ok. we do get a bit of water in the bottom of the humidifier which i hope is normal.
we really can not thank you and your company enough.
much love from 2 very happy people
mel and kev x
-
Permalink Reply by Deborah Wainwright on
-
You are most welcome, Mel! Yes, the Simplus has a new diffuser in it ... mainly for the benefit of the partner :) Is Kev finding any trouble with mask leak or anything like that?
-
-
Hi Deborah, no where near as much leaking as his other masks that he has tried. i would recommend this mask to other sleep apnea sufferers. for patients and partners. it is a very well made mask. x
-
Permalink Reply by Iwan Davies on
-
Hi all
I'm a newly diagnosed OSA sufferer and, as of last Friday, a fellow hosehead(!).
It's all a bit new at the moment, though I seem to be coping with the CPAP machine and mask ok at the moment. I've even managed to maintain most of my beard, which has been with me for the past 15 years or so and which I was really loathe to lose. It was long overdue a good trim anyway! Today, for the first day in goodness knows how long, I've got through the day without feeling particularly tired - if I didn't understand the science I would say it's a miracle!
Looking forward to chatting and finding out more about this, frankly, rather odd world!
Iwan
-
Permalink Reply by Kath Hope on
-
Pleased to hear you've managed to keep your beloved beard Iwan
and even more pleased to hear you're already feeling the benefits of CPAP therapy!Whilst many sleep apnoea sufferers at present feel rather isolated in their condition, they won't soon as more and more people get diagnosed. Our condition is actually as common as asthma and diabetes, but at the moment only a very small proportion are diagnosed, and I'd go as far to say that we're the lucky ones
Iwan Davies said:Hi all
I'm a newly diagnosed OSA sufferer and, as of last Friday, a fellow hosehead(!).
It's all a bit new at the moment, though I seem to be coping with the CPAP machine and mask ok at the moment. I've even managed to maintain most of my beard, which has been with me for the past 15 years or so and which I was really loathe to lose. It was long overdue a good trim anyway! Today, for the first day in goodness knows how long, I've got through the day without feeling particularly tired - if I didn't understand the science I would say it's a miracle!
Looking forward to chatting and finding out more about this, frankly, rather odd world!
Iwan
-
Permalink Reply by Terry Vella on
-
Welcome Iwan, it becomes second nature to us, I look at it as an extra arm or leg and most of us will tell you that we can no longer sleep without it. It has saved my life. A lot of people get that sudden burst of energy, what sometimes happens is it tapers off for a while and after 3 - 6 months you start to feel like that everyday as your body starts to heal. Remember for most of us we have had this illness a long time. I'm sure if you read up on it a bit more from either posts on here or websites, the more you will learn and understand our illness and how interesting sleep can be
-
-
Hi Terry , Kath and "the rest of the team" . .............me and the new machine , are going great guns . sorry I don't reply to much stuff on here lately . ive always got something on . so don't think im ignoring you or anything !! kath <3
-
-
Good to hear your doing well Kath.
-
-
Great to hear Kathryn. Onwards and upwards...
Kathryn Chapman, said:Hi Terry , Kath and "the rest of the team" . .............me and the new machine , are going great guns . sorry I don't reply to much stuff on here lately . ive always got something on . so don't think im ignoring you or anything !! kath <3
-
Permalink Reply by Terry Foxon on
-
Hî there, I am new to this site and joined as I was looking for information about apnoea. I have been using a cpap for a year with some success. Went to see my consultant yesterday and asked to try the wisp and wore it for the first time last night and I have to say it s the best yet. It was very light and comfortable and I didn't try to rip it off in my sleep.
-
-
That's good to hear Terry, and I've actually been trialling the Wisp lately - no easy task for someone like me who is still a mouth breather and usually needs a full face mask. I have to say that I was very impressed and feel that Respironics have had a great breakthrough with this mask and I especially think it will be great for people who are prone to nasal bridge problems. I imagine the reason you didn't feel like ripping it off is because it's so small, light and feels so soft. It also seals well and I tried my best (for the trial) to cause a leak, which proved very difficult! Just wish I could train myself not to open my mouth in my sleep, as I'm not a lover of chin straps! Hope this mask continues to give you full success!
Terry Foxon said:Hî there, I am new to this site and joined as I was looking for information about apnoea. I have been using a cpap for a year with some success. Went to see my consultant yesterday and asked to try the wisp and wore it for the first time last night and I have to say it s the best yet. It was very light and comfortable and I didn't try to rip it off in my sleep.
-
Permalink Reply by Roz B on
-
hi and welcome Terry
i too am now using the Wisp, as Kath has said i think Philips Respironics have he ally made a breakthrough with this one.
i thought the True blue was best until I tried the Wisp. My only comment to them would have been please can they make a Small, rather than Small/Medium size together as I think I am somewhere in between S/M & P, so I'm alternating them, The petite with the S/M but I'm finding air leaks into my eye on the S/M.
I guess most of their customers may be using the larger of the masks, even on the True Blue Mr Oko never kept a stock of the Petitle replacements. It wasn't a huge issue as he just calls Philips and tells them to send them out and the arrive next day.
I'm assuming from where you are from we possible see the same consultant :)
Ive been using CPAP now for about 18 mtgs and could have managed with out his or Kath's help. I wasn't an 'easy starter' lol
glad to hear that you are coping well xx
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
© 2025 Created by The SleepGuide Crew.
Powered by
