Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hi

What is better distilled water verses tap water.  I was wondering what is best for the CPAP machine as many say distilled is best and if you are on free prescriptions then you should be able to get it.  As my area is a very hard water area and most kitchen last only around 12 - 18 months before you need to replace them.

If I do get a new machine I am thinking about asking for distilled water so that it protects the very expensive machine.  Also because I have some many allergies it would be safer for me too use.
Dee 

Views: 2390

Reply to This

Replies to This Discussion

Hi Kath, well my water has just arrived and there is 25L of it; they have sent Purified and not Distilled Water though. I am in the fortunate position of not having to pay for my prescriptions so I got it without any charge.

 

When I put my request in at the GP surgery I wrote a note saying: I have been advised by the hospital that I should use Distilled Water in my CPAP machine. I normally purchase this myself in quantities of 25L. The hospital has also advised me that I can get this on prescription. Well it worked

 

Good luck to you all, I think we have all worked well towards this and deserve a little reward (even if it is only water)
 
Kath Hope said:

Yes, I'll be sharing this news June and look forward to your confirmation on size.

Great news June and the other customer I was talking about also got purified water.  If you look at the article I posted further up the thread it seems purified is just as good and in summing up it quoted:-

"The only difference between distilled and purified water is distilled water goes through distillation while purified water goes through other processes such as reverse osmosis, ion exchange, Ozonation, sand filtration, etc.

.....................................................So do you choose distilled or purified water? Both are free of bacteria and most impurities – so the difference lies in the price."

So yes, this was an interesting topic and one I'll certainly be sharing with the newsletter list and in other places, so let's see if we all get some on prescription.

Cheers everyone

Purified Water is listed in the British Pharmacopœia (the UK register of medicinal standards).  Distilled Water is not.

At the last SATAday conference they mentioned that you can get distilled water on prescription.  But when I asked my GP he wasnt keen on the idea as he said that I don't use enough to have it on prescription.

Dee

I wonder why your GP didn't want to prescribe it Dee. Hmm.....

GP are pressurized to do their jobs and are not authorized to diagnose sleep apnea and would suspect their fear of their masters the government in effect licence them to practice medicines in the first place and limit prescription to recognized procedure

It should have said Purified water & not distilled.  I will try and get an appointment with my GP tomorrow as I need to ask him about increasing my anti-depressant as my depression hasnt improved.

Dee

sunlight is the best antidepressant

Hopefully your depression will improve when you get sorted out properly Dee.  See if you can get your GP to do blood tests on vitamin D too, as many people with sleep apnoea have low levels of this and need supplements.  It's important to get them checked though as self-medicating with vitamin D can be toxic.

I have been getting Vitamin D on prescription for nearly 4 years now.

dee 

Hi

Just to let you know that I finally got the purified water on prescription so hopefully it will come next week.  

Dee

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service