APAP or CPAP?

Replies to This Discussion

Permalink Reply by Kath Hope on August 2, 2011 at 10:56

Normally the hospital/sleep clinic tells people what pressure they're setting the machine at, but most CPAPs show the pressure in the display (assuming there is one).  If you can't see it, let us know which machine you have Diane so we can help you.

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Permalink Reply by paula jones on August 3, 2011 at 23:43

i dont know wot all the numbers mean,but i was told at hossy that my pressure is 14 highest,and im at my best at number 12...so after all iv said,they want to give me same Cpap pressure of 12 all the time,c if im more awake on that,if not i will be put back on Auto!! its worth a try because im still very very tired during the day!! i also got another mask full face,but i prefere my full face mask with nasal pillows!! so looks like i might be goin from Apap to Cpap,well trying it anyway ,c if it makes a difference,iv done 35 days of treatment.lol..so still at experimenting stage,seeing wots best for me!!  paula x x

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Permalink Reply by Rosemary Kemp on August 4, 2011 at 11:00

My hospital wanted my cpap reading to be just above the highest reading I had on auto. I seem to remember my highest on the loaned apap as being 11.8 so they were happy for my highest pressure on cpap to remain at 12 as it would catch the highest reading.

The apap on auto works better for me but different people find different things better it seems. Some poeple are much better with cpap. I also hate the nasal pillows because they dig into my nostrils and hurt! My full face mask with no nasal pillows just leaks! I bought a nasal pillows mask with nothing else so vision was good for reading or watching tele from bed but that also hurt! We just have to keep trying everything we can. I'm best with simply designed nasal masks.

At 35 days you are still discovering the way. I wish you well with the treatment. The benefits are fantastic for those who persist! Best wishes to you and may your sleep get better and better! Rosemary     

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Permalink Reply by Kath Hope on August 4, 2011 at 15:37

Did the hospital tell you if you were still having apnoeas, and if so, how many?  It's still such early days for you Paula regarding still being tired, as people often take a good while to feel the best benefit due to having to repay their bodies from all the years of sleep debt.  It will be interesting to see how you go on CPAP after APAP......

paula jones said:

i dont know wot all the numbers mean,but i was told at hossy that my pressure is 14 highest,and im at my best at number 12...so after all iv said,they want to give me same Cpap pressure of 12 all the time,c if im more awake on that,if not i will be put back on Auto!! its worth a try because im still very very tired during the day!! i also got another mask full face,but i prefere my full face mask with nasal pillows!! so looks like i might be goin from Apap to Cpap,well trying it anyway ,c if it makes a difference,iv done 35 days of treatment.lol..so still at experimenting stage,seeing wots best for me!!  paula x x

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Permalink Reply by Kath Hope on August 4, 2011 at 15:57

Hi Brenda.  Have a look here http://www.asiliveandbreathe.co.uk/ for scoliosis help.  The lady who owns the website is called Marion and she's a great source of help and support to people with scoliosis.  There's also a link there to her Facebook page where people talk to each other.

Brenda Pearce said:

i USE CPAP DUE TO POLIO AT THE AGE OF 8 MONTH WHICH I HAVE SCOLIOSIS. ANY OTHER MEMBERS WHO HAVE THE SAME I WOULD LIKE TO CHAT TO

BRENDA LUXTON PEARCE

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Permalink Reply by paula jones on August 5, 2011 at 0:00

Awww thanks for that,i can defo relate to alot your saying! my full face mask made so much noise leaks i think at 3am i ripped it off,and put my old lovely FFM withpillows back in and slept like a log!! hehe,they r a pain when they dislodge from your nose,it well wakes u,doesnt happen oftne so im sticking to that!! im just trying different things,Than

ks x x x

Rosemary Kemp said:

My hospital wanted my cpap reading to be just above the highest reading I had on auto. I seem to remember my highest on the loaned apap as being 11.8 so they were happy for my highest pressure on cpap to remain at 12 as it would catch the highest reading.

The apap on auto works better for me but different people find different things better it seems. Some poeple are much better with cpap. I also hate the nasal pillows because they dig into my nostrils and hurt! My full face mask with no nasal pillows just leaks! I bought a nasal pillows mask with nothing else so vision was good for reading or watching tele from bed but that also hurt! We just have to keep trying everything we can. I'm best with simply designed nasal masks.

At 35 days you are still discovering the way. I wish you well with the treatment. The benefits are fantastic for those who persist! Best wishes to you and may your sleep get better and better! Rosemary     

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Permalink Reply by paula jones on August 5, 2011 at 0:10

im having none!! lol..none at all,no OSA..but im still tired so even though all looks gd on data we r still trying this out as on pressure 12 im at my best deepest sleep,so think they want to keep me on 12,to c if im more awake!!  If its my body catching up,Well in all seriousness surely i woulda by now??? i expect some result as im having no apneas at all ..its flustrating annoying and even upsetting im still tired and nodding on chair everytime i try to watch t.v..so i will give this a go,and i can always go back to Auto,just wanna feel awake,i do have Awake hypo moments when i do feel Ace and in an awake mood, i love it,but its a shame its not very often.... Anyway im starting slimming world next tuesday so eating more healthy and losing weight might make me feel a bit better!! :)  staying postive  :)

Kath Hope said:

Did the hospital tell you if you were still having apnoeas, and if so, how many?  It's still such early days for you Paula regarding still being tired, as people often take a good while to feel the best benefit due to having to repay their bodies from all the years of sleep debt.  It will be interesting to see how you go on CPAP after APAP......

paula jones said:

i dont know wot all the numbers mean,but i was told at hossy that my pressure is 14 highest,and im at my best at number 12...so after all iv said,they want to give me same Cpap pressure of 12 all the time,c if im more awake on that,if not i will be put back on Auto!! its worth a try because im still very very tired during the day!! i also got another mask full face,but i prefere my full face mask with nasal pillows!! so looks like i might be goin from Apap to Cpap,well trying it anyway ,c if it makes a difference,iv done 35 days of treatment.lol..so still at experimenting stage,seeing wots best for me!!  paula x x

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Permalink Reply by katie on August 5, 2011 at 1:12

My Andrew started off on CPAP pressure of 10, we never got him to adjust so the doctor put him on APAP and he sleeps 10 to 11 hours every night. APAP was the best thing that could have happens to him and me.

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Permalink Reply by Kath Hope on August 5, 2011 at 9:42

Great to hear this Katie :)

katie said:

My Andrew started off on CPAP pressure of 10, we never got him to adjust so the doctor put him on APAP and he sleeps 10 to 11 hours every night. APAP was the best thing that could have happens to him and me.

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Permalink Reply by Kath Hope on August 5, 2011 at 10:00

Wow, that's amazing to hear you're having NONE!  Whilst I still think it can take longer for your body to be paid back it's full sleep debt, it does seem strange you aren't feeling any benefits.  You're certainly doing all you can to help yourself (like not drinking or smoking like you put on another post) and now going to Slimming World, so will be interesting seeing how the diet goes.  If you're still feeling tired, then perhaps a trip to the GP should be next to check for other 'conditons' that cause tiredness, like underactive thyroid (which has a link with OSA) along with diabetes etc.  Let us know how it's going.

paula jones said:

im having none!! lol..none at all,no OSA..but im still tired so even though all looks gd on data we r still trying this out as on pressure 12 im at my best deepest sleep,so think they want to keep me on 12,to c if im more awake!!  If its my body catching up,Well in all seriousness surely i woulda by now??? i expect some result as im having no apneas at all ..its flustrating annoying and even upsetting im still tired and nodding on chair everytime i try to watch t.v..so i will give this a go,and i can always go back to Auto,just wanna feel awake,i do have Awake hypo moments when i do feel Ace and in an awake mood, i love it,but its a shame its not very often.... Anyway im starting slimming world next tuesday so eating more healthy and losing weight might make me feel a bit better!! :)  staying postive  :)

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Permalink Reply by paula jones on August 5, 2011 at 13:15

iv had them two tests and they r both Perfect!! so im thinking im just unhealthy,so a change in diet excercise might help,i thought no one had No Apneas whilst on machine? i was supposed to fone hossy today and get machine changed to 12 pressure but whilst its fri im not foneing um,otherwise im stuck with it all wkend..lol..im gonna wait till mon so i can change it bk tues if i dont like it,hehehe..paula x x

Kath Hope said:

Wow, that's amazing to hear you're having NONE!  Whilst I still think it can take longer for your body to be paid back it's full sleep debt, it does seem strange you aren't feeling any benefits.  You're certainly doing all you can to help yourself (like not drinking or smoking like you put on another post) and now going to Slimming World, so will be interesting seeing how the diet goes.  If you're still feeling tired, then perhaps a trip to the GP should be next to check for other 'conditons' that cause tiredness, like underactive thyroid (which has a link with OSA) along with diabetes etc.  Let us know how it's going.

paula jones said:

im having none!! lol..none at all,no OSA..but im still tired so even though all looks gd on data we r still trying this out as on pressure 12 im at my best deepest sleep,so think they want to keep me on 12,to c if im more awake!!  If its my body catching up,Well in all seriousness surely i woulda by now??? i expect some result as im having no apneas at all ..its flustrating annoying and even upsetting im still tired and nodding on chair everytime i try to watch t.v..so i will give this a go,and i can always go back to Auto,just wanna feel awake,i do have Awake hypo moments when i do feel Ace and in an awake mood, i love it,but its a shame its not very often.... Anyway im starting slimming world next tuesday so eating more healthy and losing weight might make me feel a bit better!! :)  staying postive  :)

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Permalink Reply by Kath Hope on August 5, 2011 at 13:21

That's good news then, so it seems like the diet/exercise are your next route to take.  Most people still have apnoeas/hypopnoeas whilst still on their CPAP treatment, but the numbers are a lot lower, and should ideally be below 5.  Good idea of yours to wait until Monday ;)

paula jones said:

iv had them two tests and they r both Perfect!! so im thinking im just unhealthy,so a change in diet excercise might help,i thought no one had No Apneas whilst on machine? i was supposed to fone hossy today and get machine changed to 12 pressure but whilst its fri im not foneing um,otherwise im stuck with it all wkend..lol..im gonna wait till mon so i can change it bk tues if i dont like it,hehehe..paula x x

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