Hope2SleepGuide

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Marion@As I Live and Breathe's Discussions (45)

Discussions Replied To (44) Replies Latest Activity

"Quote from "CPAP and Ventilator Secrets" (available from www.Hope2Sleep.co.uk)Some e…"

Marion@As I Live and Breathe replied Feb 4, 2012 to Power Cuts

6 Feb 4, 2012
Reply by Roz B

"Thanks for the kind words Sally - this book was written by me and my son,, under our…"

Marion@As I Live and Breathe replied Jan 4, 2012 to Childrens Book

3 Jan 4, 2012
Reply by Kath Hope

"Best to avoid real diamantes - not child-friendly. Dinosaurs sounds nice. How about…"

Marion@As I Live and Breathe replied Dec 1, 2011 to Hose huggies (Kath)

6 Dec 1, 2011
Reply by Marion@As I Live and Breathe

"I've mentioned this on Facebook in the hope that others will come over and join us."

Marion@As I Live and Breathe replied Nov 28, 2011 to BREATHING PROBLEMS AND VENTILATOR

2 Nov 28, 2011
Reply by Marion@As I Live and Breathe

"I've just been for my regular overnight Sleep Study in hospital.As usual, my Hose-Li…"

Marion@As I Live and Breathe replied Nov 20, 2011 to Stand for CPAP mask.

4 Nov 20, 2011
Reply by symmit

"The book isn't published til December 5th. It will be available from Kath's website.…"

Marion@As I Live and Breathe replied Oct 13, 2011 to BLOATING

19 Aug 17, 2012
Reply by Kath Hope

"It's advisable to clean out the humidifier regularly to prevent build-up of mineral…"

Marion@As I Live and Breathe replied Oct 11, 2011 to Choose a machine

13 Oct 11, 2011
Reply by Marion@As I Live and Breathe

""Petroleum-based creams and lotions should NOT be used when using Oxygen Therapy as…"

Marion@As I Live and Breathe replied Oct 11, 2011 to BLOATING

19 Aug 17, 2012
Reply by Kath Hope

"Journalists and programmers do not allow facts to get in the way of a good story.I'v…"

Marion@As I Live and Breathe replied Oct 9, 2011 to Comments about OSA on TV Shows

5 Oct 9, 2011
Reply by Kath Hope

"There's a free exhibition of the book's art work at a Suffolk Art Gallery 12-19th Oc…"

Marion@As I Live and Breathe replied Oct 9, 2011 to A Monkey, a Mouse and a CPAP Machine - Childrens Book

1 Oct 9, 2011
Reply by Marion@As I Live and Breathe

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Latest Activity

Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2, 2024
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2, 2024
Collette rose is now a member of Hope2SleepGuide
Oct 31, 2024
John posted a discussion
Oct 30, 2024
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29, 2024
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24, 2024

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