Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hello I'm Mike, I am on a journey to discover the root cause of my years of insomnia and depression, and having read an article on sleep deprivation on the internet and my wife's concern not just over my dreadful Jurassic park t-rex coming snoring but my gagging and gasping for breathe, she counts up to 10 seconds of non breathing some nights, has led me to this excellent website. I'm off to the doctors this week to get the ball rolling. I also have RLS (Restless legs syndrome) which aggravates my condition. 

Mike

Views: 229

Reply to This

Replies to This Discussion

I agree Snoreyhead, as I hear of and see lots of machines for sale due to people purchasing what has turned out to be the wrong type for them, but unfortunately the problems don't come to light at first.  It's fine for people like Symmit (and would have been for me too) with straightforward OSA and no other health problems, but not for everyone, and especially if there are underlying undiagnosed other health conditions that people have. 

Unfortunately, the expertise isn't the same at every NHS clinic/hospital, but they are learning...  The good thing is though that we do now have 'Patient Choice' as to where we are referred http://www.nhs.uk/choiceintheNHS/Yourchoices/Pages/Yourchoices.aspx

Your NHS seems a lot better than our, we would be waiting years, I think symmit's point is to get something done as quick as possible, I have just posted a new discussion on a poor man who didn't know he had SA until it was too late. I know Mike says he has had it a long time and a bit longer doesn't matter but it does, the longer it gets left the worse it is and more chance of other illness's occuring. I went down a similar track to symmit and paid more but would have spent 10 times as much as I did knowing what I know now about this illness and how much better I felt even after one night. I think the point here is the urgency.

Yes, I know what Symmit was saying Terry and I totally agree if the appointment is slow or if the GP isn't taking them seriously to take immediate action, but here in the UK there are a lot of NHS clinics that work quickly nowadays, so I was only meaning that he has Patient Choice, and therefore can choose to go to a sleep clinic which works quickly.  A lot of the private tests here are done online and people never get to see a doctor face to face.  However, there are a few private clinics setting up now that do offer this service, thankfully if people can afford it.  The difference here in the UK is that we have a right to free help.  However, I'm all for quick action as you know! 

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Wednesday
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Wednesday
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Tuesday
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Tuesday
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service