"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Newbie
Hello I'm Mike, I am on a journey to discover the root cause of my years of insomnia and depression, and having read an article on sleep deprivation on the internet and my wife's concern not just over my dreadful Jurassic park t-rex coming snoring but my gagging and gasping for breathe, she counts up to 10 seconds of non breathing some nights, has led me to this excellent website. I'm off to the doctors this week to get the ball rolling. I also have RLS (Restless legs syndrome) which aggravates my condition.
Mike
Views: 252
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
I agree Snoreyhead, as I hear of and see lots of machines for sale due to people purchasing what has turned out to be the wrong type for them, but unfortunately the problems don't come to light at first. It's fine for people like Symmit (and would have been for me too) with straightforward OSA and no other health problems, but not for everyone, and especially if there are underlying undiagnosed other health conditions that people have.
Unfortunately, the expertise isn't the same at every NHS clinic/hospital, but they are learning... The good thing is though that we do now have 'Patient Choice' as to where we are referred http://www.nhs.uk/choiceintheNHS/Yourchoices/Pages/Yourchoices.aspx
-
Permalink Reply by Terry Vella on
-
Your NHS seems a lot better than our, we would be waiting years, I think symmit's point is to get something done as quick as possible, I have just posted a new discussion on a poor man who didn't know he had SA until it was too late. I know Mike says he has had it a long time and a bit longer doesn't matter but it does, the longer it gets left the worse it is and more chance of other illness's occuring. I went down a similar track to symmit and paid more but would have spent 10 times as much as I did knowing what I know now about this illness and how much better I felt even after one night. I think the point here is the urgency.
-
-
Yes, I know what Symmit was saying Terry and I totally agree if the appointment is slow or if the GP isn't taking them seriously to take immediate action, but here in the UK there are a lot of NHS clinics that work quickly nowadays, so I was only meaning that he has Patient Choice, and therefore can choose to go to a sleep clinic which works quickly. A lot of the private tests here are done online and people never get to see a doctor face to face. However, there are a few private clinics setting up now that do offer this service, thankfully if people can afford it. The difference here in the UK is that we have a right to free help. However, I'm all for quick action as you know!
- ‹ Previous
- 1
- 2
- Next ›
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
© 2025 Created by The SleepGuide Crew.
Powered by
