"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Shorter Hose
As i said in a previous discussion, my ahi's have gone back up to 25. I thought it was because I had started to use a much longer hose. Well I put my origional length hose back on to see if this changes things. I am sorry to say that this has made no difference at all. I am hoping to see my sleep nurse as soon as possible to try and sort this out. Her secretary said she would phone me tomorrow or sometime this week.
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Replies to This Discussion
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Permalink Reply by Terry Vella on
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Carolyn, I she doesn't call tomorrow, I would be on the phone to her everyday until you get to speak to her even a coupke of times a day. It may be annoying to them but this is your health and you have to look after yourself. Is there anywhere else you can go? In Australia we have sleep centres all over the place that can check machines etc. I only go to one because I am happy with mine, I can ring up and see someone that day and the lady I see puts up with me. Not sure what it's like in the UK, Kath maybe able to give you more suggestions.
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Permalink Reply by Carolyn Tipping on
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Hello Terry, I only transfered to this clinic as it only 10 mins up the road. I Hadn't used it for a few years so this is a new start at new clinic. I'll beat, not literally, I've met a few b***** nurses with all of my problems. If I don't get what I need from them I go higher up the ladder to her boss. I think this is the action I will end up taking. The nurses don't expect you to know that you can go direct to boss. I do and I will.
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Carolyn, we're all with you.
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Thanks Terry. It's great to have the support from people who know more about it than b***h nurse herself. I'll keep you informed.
Terry Vella said:Carolyn, we're all with you.
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Carolyn Tipping said:Thanks Terry. It's great to have the support from people who know more about it than b***h nurse herself. I'll keep you informed.
Terry Vella said:Carolyn, we're all with you.
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Carolyn, Did you get a call from the b***h nurse today? I'm in Australia and have to remember the time difference, I think it's 10.52pm in England. It's 9.52am on Tuesday here in Australia.
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Permalink Reply by Kath Hope on
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Carolyn, I've been thinking..... I thought the display on your machine only shows up a 7 day accumulation of your AHI, so how do you know it was still at 25 after only 1 night's use with the shorter hose? Forgive me if I'm wrong, but without the software I don't think you can check 1 night's usage, or did the sleep clinic clarify this? I would stick with the shorter hose for longer and see what happens after 7 days. Hopefully, the hospital will be in touch before then though.
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Hello Kath. I expected to see some change after 1 night on shorter hose. But I was mistaken. I will see what it says after 7 days. Still waiting for nurse to phone.
Kath Hope said:Carolyn, I've been thinking..... I thought the display on your machine only shows up a 7 day accumulation of your AHI, so how do you know it was still at 25 after only 1 night's use with the shorter hose? Forgive me if I'm wrong, but without the software I don't think you can check 1 night's usage, or did the sleep clinic clarify this? I would stick with the shorter hose for longer and see what happens after 7 days. Hopefully, the hospital will be in touch before then though.
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Permalink Reply by RockRpsgt on
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Opiates repress the respiratory drive. You need o2 treatment or an ASV. Personally I think ASV may be overkill and not help. I would start with 2L of oxygen while you sleep.
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Thanks Rock. How do I go about talking about o2 treatment with b***h nurse? I really want this sorted out as I feel really aweful.
RockRpsgt said:Opiates repress the respiratory drive. You need o2 treatment or an ASV. Personally I think ASV may be overkill and not help. I would start with 2L of oxygen while you sleep.
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