"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Take Action for Sleep Apnoea Please
**IMPORTANT REQUEST**
ng the comparatively low awareness of OSA there is, both among the general public as well as healthcare professionals. It also asks them to take appropriate action to draw attention to OSA in governments and parliaments across the UK.
Even if you don't have Sleep Apnoea, please fill it in and share this important action.
Thank you!
Here's the link to the form www.blf.org.uk/osa-action
Views: 561
Replies to This Discussion
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Permalink Reply by Kath Hope on
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Great Darryl
My husband got a letter this morning, but am still awaiting mine.
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Jonathan Lord, MP for Woking responded to someone within a few hours!
Update on this one:-
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John Lamont, MSP for Ettrick, Roxburgh + Berwickshire has agreed to take action now.
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Another's been reported - Paul Burstow Lib MP of Sutton, Cheam & Worcester Park.
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Yet another positive reply:-
Thank you for your recent communication received during the Parliamentary recess.Thank you for contacting me about obstructive sleep apnoea.I am grateful for your details of this condition and have passed your letter to Jackson Carlaw MSP, the Scottish Conservatives health spokesman and our health research team (your personal details were removed). I fully support your campaign to raise awareness of this condition.We will investigate the British Lung Foundation’s charter and consider whether there are any points which can be taken forward in the Scottish Parliament in due course. If there are any shortcomings which can be found in the NHS’s treatment and diagnosis processes we will be pleased to raise these issues with the Scottish Government.Thank you again for taking the time to contact me on this issue.With kind regards.Yours sincerely,Annabel M Goldie MSPWest of Scotland Region
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Permalink Reply by Bill Thomson on
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Our MP, David Lidington (Aylesbury), has just emailed me with a PDF copy of the response he received from Jeremy Hunt, Secretary of State for Health.
The response seems encouraging; at least it acknowledges that OSA is regarded with some importance and is being given a high priority. I will forward the email to Kath - no doubt Jeremy Hunt will be replying in similar fashion to the other MPs who have contacted him.
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More responses coming in - Sutton Cheam & Worcester Park , and these are just the ones we're hearing of, so there must be lots of others, which is great news :)
- Attachments:
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MP Response Sarah 1.jpg, 80 KB -
MP Response Sarah 2.jpg, 80 KB
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Permalink Reply by Jonathan on
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Hi,
I have received the attached reply to my letter to my MP.
Jonathan.
Jonathan said:Hi,
I wrote a paragraph about my experiences of OSA to my MP, and appended the British Lung Foundation's form letter. I received a prompt reply through the post (attached).
Jonathan.
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Permalink Reply by Lorna Ozturk on
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done
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