"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Take Action for Sleep Apnoea Please
**IMPORTANT REQUEST**
ng the comparatively low awareness of OSA there is, both among the general public as well as healthcare professionals. It also asks them to take appropriate action to draw attention to OSA in governments and parliaments across the UK.
Even if you don't have Sleep Apnoea, please fill it in and share this important action.
Thank you!
Here's the link to the form www.blf.org.uk/osa-action
Views: 566
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Great Darryl
My husband got a letter this morning, but am still awaiting mine.
-
-
Jonathan Lord, MP for Woking responded to someone within a few hours!
Update on this one:-
-
-
John Lamont, MSP for Ettrick, Roxburgh + Berwickshire has agreed to take action now.
-
-
Another's been reported - Paul Burstow Lib MP of Sutton, Cheam & Worcester Park.
-
-
Yet another positive reply:-
Thank you for your recent communication received during the Parliamentary recess.Thank you for contacting me about obstructive sleep apnoea.I am grateful for your details of this condition and have passed your letter to Jackson Carlaw MSP, the Scottish Conservatives health spokesman and our health research team (your personal details were removed). I fully support your campaign to raise awareness of this condition.We will investigate the British Lung Foundation’s charter and consider whether there are any points which can be taken forward in the Scottish Parliament in due course. If there are any shortcomings which can be found in the NHS’s treatment and diagnosis processes we will be pleased to raise these issues with the Scottish Government.Thank you again for taking the time to contact me on this issue.With kind regards.Yours sincerely,Annabel M Goldie MSPWest of Scotland Region
-
Permalink Reply by Bill Thomson on
-
Our MP, David Lidington (Aylesbury), has just emailed me with a PDF copy of the response he received from Jeremy Hunt, Secretary of State for Health.
The response seems encouraging; at least it acknowledges that OSA is regarded with some importance and is being given a high priority. I will forward the email to Kath - no doubt Jeremy Hunt will be replying in similar fashion to the other MPs who have contacted him.
-
-
More responses coming in - Sutton Cheam & Worcester Park , and these are just the ones we're hearing of, so there must be lots of others, which is great news :)
- Attachments:
-
-
MP Response Sarah 1.jpg, 80 KB -
MP Response Sarah 2.jpg, 80 KB
-
-
Permalink Reply by Jonathan on
-
Hi,
I have received the attached reply to my letter to my MP.
Jonathan.
Jonathan said:Hi,
I wrote a paragraph about my experiences of OSA to my MP, and appended the British Lung Foundation's form letter. I received a prompt reply through the post (attached).
Jonathan.
- Attachments:
-
Permalink Reply by Lorna Ozturk on
-
done
- ‹ Previous
- 1
- 2
- Next ›
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
© 2025 Created by The SleepGuide Crew.
Powered by
