Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

**IMPORTANT REQUEST**

ng the comparatively low awareness of OSA there is, both among the general public as well as healthcare professionals. It also asks them to take appropriate action to draw attention to OSA in governments and parliaments across the UK.

Even if you don't have Sleep Apnoea, please fill it in and share this important action.

Thank you!
Here's the link to the form www.blf.org.uk/osa-action

 

Views: 537

Reply to This

Replies to This Discussion

Job done!

Great work Gary. Have been busy sending the link to all my social media sites.  Please everyone consider hitting the Facebook, Twitter + other Share Buttons to get this viral.

Just filled it in, only takes a minute!

Sent it yesterday, got a reply from David Liddington MP's office a couple of hours later saying he had written to the Dept of Health.

 

Wow, that's brilliant news Bill and the first I've heard of a response.  This is very encouraging, and I would urge everyone to pass the link to all their family and friends.

Bill Thomson said:

Sent it yesterday, got a reply from David Liddington MP's office a couple of hours later saying he had written to the Dept of Health.

 

Just heard of another person who has received an email back from her local MSP, Mr Mike MacKenzie who is pleased to support this. 

Hi,

I wrote a paragraph about my experiences of OSA to my MP, and appended the British Lung Foundation's form letter. I received a prompt reply through the post (attached).

Jonathan.

Attachments:

Great news Jonathan and thanks for letting us know.  Can others let us know too if they get any feedback?  Still waiting for mine here in Hull

Hi Kath

I recieved a letter from Karl Turner the MP for Hull East Costituency to inform me has written a letter to the Secretary of State For Health in support. Letter came end of last week so I  am sure yours will follow soon as we  have the same MP. 

Hmm.... how come you got a letter before me?  He'd better send me one as well

Ian Adamson said:

Hi Kath

I recieved a letter from Karl Turner the MP for Hull East Costituency to inform me has written a letter to the Secretary of State For Health in support. Letter came end of last week so I  am sure yours will follow soon as we  have the same MP. 

Just heard Norman Baker MP - East Sussex is taking action

I just received a letter from Angela Eagle MP, with a copy of the letter she sent to "The Secretary of State for Health" Jeremy Hunt. 

Kath, I have emailed you a copy of them. 

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service